Aa
Introduce yourself here.
Hi everyone you can introduce yourself on this thread.
What brought you here, how long you have been waiting for a diagnosis and a little bit about yourselves.
You can read about me on the top of this page.
3 years and 1 month I have been waiting. Mariax
What brought you here, how long you have been waiting for a diagnosis and a little bit about yourselves.
You can read about me on the top of this page.
3 years and 1 month I have been waiting. Mariax
Hi everyone, new to the forum.
Reading some of your stories here am just in tears. I knew i wasn't alone having previously found a forum on another site with people mentioning problems like mine, but looking here, well...some posts i could've written myself, it's like seeing my own symptom stories.
Well, i'm Emma, am 29 and single mum to 2 children. I live in the UK.
Looking back, i recall having symptoms in my teens, but back then i suppose they didn't seem so important? I don't know?
This is going to be an essay of a post so will try to keep it fairly brief.
Age 14, fall during ice skating twice in a week resulted in complex pain syndrome, i believe now it's called complex regional pain syndrome. It was in my knees, right worse. It eased by about age 17 and only bothered me occasionally since til recently when it decided to pop back for visit which was a nasty one.
I remember having a non stop twitching eye when i was 17/18, it lasted maybe a fortnight. Also i recall many nerves twitching all over the place but at the time i didn't know it could be the start of a health problem.
I had my son when i was almost 20 by c section. Soon after i got pains in my right big toe, then the side of the toe went numb. Weirdly, despite it being numb, it still gets the sharp pains sometimes! Odd huh!
I had my daughter almost 3 years later natural birth. When she was maybe a year/18 months i got the eye twitching back, constant for maybe 10 weeks or more? Also around this time i started getting pins and needles in both legs almost immediately on bending. Also i started getting a tight skin feeling and chill on my shins, left worse as i remember. I had physio, saw a neuro and had an mri of the brain and ct of the spine, apprently fine.
My left shoulder blade im sure i can remember having an altered sensation as far back as when i'd just had my son. In sept last yr i think it was, tingling started. About a month ago this turned into full blown pins and needles.
About 4 years ago i started getting occasional tingles in my arms and hands. I had a weird right foot with pins and needles at the same time. My dr took no notice. I kept going back and was told i had anxiety. I didn't, but the symptoms were leading that way.
The foot thing happened again months after. The hand tingles continued.
I have had many weird feelings of bruises, burns, scratches etc but there is absolutely nothing there. I still often have this on the top of my hands.
About 2 years ago tingles started in my face as well as in my mouth, my tongue, lips, throat and sometimes i was sure i could feel it in my chest. Apparently this meant i was nuts. My dr said stress and anxiety, no-one gets tingles in the face i was told.
Repeated visits to the gp got me some blood tests which i was told were normal. I started getting tightness and tingles in left side just under the breast and ribs. I had an xray and was told since my back was fine it was stress. I still have this almost daily.
In sept 2010 i was admitted to hospital for gallbladder area pain. Blood tests showed my calcium was low. I was told to see my gp so i did. Indeed that and my vit d were low. This led to a dx of hypoparathyroidism. I had to wait a further 7 months til i saw an endocrinologist before i got that diagnosis though. That was may last yr. Despite my calcium being corrected and within good normal range, i continued to have sensory issues and pain. The neuro i got referred to said it was still the cal causing it. I wasnt convinced. I saw him again, my levels were still fine, and he said my neuro exam was also fine except my big toe and shin.
He didnt even seem bothered i'd been having tingles in my groin.
I started getting weird chills, like as if standing in front of the fridge with the door open, mainly on my back, front and legs. Its been all over though. I cant find an explanation.
After having 'migraine aura' for the first few times, i had a brain scan, which neuro did after some massive **** ups by the hospital. It was meant to be with contrast but wasnt. I was told it was fine, but without the contrast, how am i to know.
Prior to this too, i had what they called 'tension headache' in the back of my head and sides. I've since learnt this could've been a type of migraine. I do not believe it was tension as i wasn't stressed when it started, and not even deep relaxation shifted it. Sometimes my head had a cold water feeling in it too...you should've seen the drs face when i told him that! I could just imagine his facebook status that night 'had some crazy woman in surgery today'!
I started getting like mobile phone buzzing, on and off with seconds between, mainly in my thighs but sometimes elsewhere. Other weird feelings started like creeping, insects etc. I'm sure you all know the type.
I started getting saddle paraesthesia more. A lumbar scan for this was negative. I'm starting acupuncture next week for this with my hosp physio. She seems a lot more optimistic than i am.
In oct last year, i started feeling this weird ache, kind of viral but not quite the same? Maybe a bit like extreme fatigue from severely overdoing the gym? Even in my head though? I'd had earache some time and drs said there was nothing to see there. Then i got dizzy, almost fell into shelves in the supermarket and got marched to the gps to be diagnosed with vertigo. Very bad timing with a uni exam that week and the tablets for it making me drowsey!
I'd had a gland which was enlarged for years and this started hurting again making me think it was viral. The others started getting much bigger and hurting too. The ent chap said he didnt think i had vertigo, tested for different things and my bloodwork showed pos for epstein barr with IGg levels. So, he said i've had it but not so recently, but it may explain my big glands. Okies. By the way, i was sent to him for the glands and a sore throat for 5 months.
Well, absolutely fed up and feeling rotten and my poor other half probably sick of me moaning about ignorant drs, feeling poorly, having pains, came with me to my endocrinology appointment, which i have 3 monthly now. I'd done my research and knew i probably had autoimmune hypoparathyroidism as i didn't 'fit' the other illnesses to cause it. So, my fiance had to practically beg this dr for further testing. He's done crp, ana, and a few others. He was so reluctant to do any! I get the results in a fortnight. My crp wasnt raised on the tests with the ent.
I dont know if i have been tested for things such as lyme and lupus so i'm going to ask for these next time if i haven't had them already.
My symptom list is about 70 long. I havent included them all here but some others that may or may not be relevent are:
prickles/tingles/weird creeping sensation anywhere on body. Today lots of it in the groin and bottom which is worrying.
Burning pain/nerve pain in bum, upper leg, groin and inside thigh-piriformis? My physio thinks if so only slightly.
Outside of my feet feel odd, like numb, and when i walk the feeling spreads across the sole.
Pains in hands and arms, shooting pains and aches.
Jaw pain across cheek and teeth, no dental probs.
Upper back pain.
Random pains for no reason anywhere.
Palipitations.
Stabbing pains in chest, sometimes just one, and sometimes they last all day.
Endometriosis for approx 15 yrs.
Underarm pain!? No glands felt.
Vibrations under skin and sometimes feel deeper.
Vibrations and tingles on nose
Felling wobbly, and jelly legs?
I won't go on, this is too long already. I don't know what to do next.
I so understand what people are saying here and totally understand their frustration. It's scary, and it's so hard to get a diagnosis.
I hope everyone is having a good and symptom free day!
Apologies for the long post!
All the best to everyone!
Emma
Reading some of your stories here am just in tears. I knew i wasn't alone having previously found a forum on another site with people mentioning problems like mine, but looking here, well...some posts i could've written myself, it's like seeing my own symptom stories.
Well, i'm Emma, am 29 and single mum to 2 children. I live in the UK.
Looking back, i recall having symptoms in my teens, but back then i suppose they didn't seem so important? I don't know?
This is going to be an essay of a post so will try to keep it fairly brief.
Age 14, fall during ice skating twice in a week resulted in complex pain syndrome, i believe now it's called complex regional pain syndrome. It was in my knees, right worse. It eased by about age 17 and only bothered me occasionally since til recently when it decided to pop back for visit which was a nasty one.
I remember having a non stop twitching eye when i was 17/18, it lasted maybe a fortnight. Also i recall many nerves twitching all over the place but at the time i didn't know it could be the start of a health problem.
I had my son when i was almost 20 by c section. Soon after i got pains in my right big toe, then the side of the toe went numb. Weirdly, despite it being numb, it still gets the sharp pains sometimes! Odd huh!
I had my daughter almost 3 years later natural birth. When she was maybe a year/18 months i got the eye twitching back, constant for maybe 10 weeks or more? Also around this time i started getting pins and needles in both legs almost immediately on bending. Also i started getting a tight skin feeling and chill on my shins, left worse as i remember. I had physio, saw a neuro and had an mri of the brain and ct of the spine, apprently fine.
My left shoulder blade im sure i can remember having an altered sensation as far back as when i'd just had my son. In sept last yr i think it was, tingling started. About a month ago this turned into full blown pins and needles.
About 4 years ago i started getting occasional tingles in my arms and hands. I had a weird right foot with pins and needles at the same time. My dr took no notice. I kept going back and was told i had anxiety. I didn't, but the symptoms were leading that way.
The foot thing happened again months after. The hand tingles continued.
I have had many weird feelings of bruises, burns, scratches etc but there is absolutely nothing there. I still often have this on the top of my hands.
About 2 years ago tingles started in my face as well as in my mouth, my tongue, lips, throat and sometimes i was sure i could feel it in my chest. Apparently this meant i was nuts. My dr said stress and anxiety, no-one gets tingles in the face i was told.
Repeated visits to the gp got me some blood tests which i was told were normal. I started getting tightness and tingles in left side just under the breast and ribs. I had an xray and was told since my back was fine it was stress. I still have this almost daily.
In sept 2010 i was admitted to hospital for gallbladder area pain. Blood tests showed my calcium was low. I was told to see my gp so i did. Indeed that and my vit d were low. This led to a dx of hypoparathyroidism. I had to wait a further 7 months til i saw an endocrinologist before i got that diagnosis though. That was may last yr. Despite my calcium being corrected and within good normal range, i continued to have sensory issues and pain. The neuro i got referred to said it was still the cal causing it. I wasnt convinced. I saw him again, my levels were still fine, and he said my neuro exam was also fine except my big toe and shin.
He didnt even seem bothered i'd been having tingles in my groin.
I started getting weird chills, like as if standing in front of the fridge with the door open, mainly on my back, front and legs. Its been all over though. I cant find an explanation.
After having 'migraine aura' for the first few times, i had a brain scan, which neuro did after some massive **** ups by the hospital. It was meant to be with contrast but wasnt. I was told it was fine, but without the contrast, how am i to know.
Prior to this too, i had what they called 'tension headache' in the back of my head and sides. I've since learnt this could've been a type of migraine. I do not believe it was tension as i wasn't stressed when it started, and not even deep relaxation shifted it. Sometimes my head had a cold water feeling in it too...you should've seen the drs face when i told him that! I could just imagine his facebook status that night 'had some crazy woman in surgery today'!
I started getting like mobile phone buzzing, on and off with seconds between, mainly in my thighs but sometimes elsewhere. Other weird feelings started like creeping, insects etc. I'm sure you all know the type.
I started getting saddle paraesthesia more. A lumbar scan for this was negative. I'm starting acupuncture next week for this with my hosp physio. She seems a lot more optimistic than i am.
In oct last year, i started feeling this weird ache, kind of viral but not quite the same? Maybe a bit like extreme fatigue from severely overdoing the gym? Even in my head though? I'd had earache some time and drs said there was nothing to see there. Then i got dizzy, almost fell into shelves in the supermarket and got marched to the gps to be diagnosed with vertigo. Very bad timing with a uni exam that week and the tablets for it making me drowsey!
I'd had a gland which was enlarged for years and this started hurting again making me think it was viral. The others started getting much bigger and hurting too. The ent chap said he didnt think i had vertigo, tested for different things and my bloodwork showed pos for epstein barr with IGg levels. So, he said i've had it but not so recently, but it may explain my big glands. Okies. By the way, i was sent to him for the glands and a sore throat for 5 months.
Well, absolutely fed up and feeling rotten and my poor other half probably sick of me moaning about ignorant drs, feeling poorly, having pains, came with me to my endocrinology appointment, which i have 3 monthly now. I'd done my research and knew i probably had autoimmune hypoparathyroidism as i didn't 'fit' the other illnesses to cause it. So, my fiance had to practically beg this dr for further testing. He's done crp, ana, and a few others. He was so reluctant to do any! I get the results in a fortnight. My crp wasnt raised on the tests with the ent.
I dont know if i have been tested for things such as lyme and lupus so i'm going to ask for these next time if i haven't had them already.
My symptom list is about 70 long. I havent included them all here but some others that may or may not be relevent are:
prickles/tingles/weird creeping sensation anywhere on body. Today lots of it in the groin and bottom which is worrying.
Burning pain/nerve pain in bum, upper leg, groin and inside thigh-piriformis? My physio thinks if so only slightly.
Outside of my feet feel odd, like numb, and when i walk the feeling spreads across the sole.
Pains in hands and arms, shooting pains and aches.
Jaw pain across cheek and teeth, no dental probs.
Upper back pain.
Random pains for no reason anywhere.
Palipitations.
Stabbing pains in chest, sometimes just one, and sometimes they last all day.
Endometriosis for approx 15 yrs.
Underarm pain!? No glands felt.
Vibrations under skin and sometimes feel deeper.
Vibrations and tingles on nose
Felling wobbly, and jelly legs?
I won't go on, this is too long already. I don't know what to do next.
I so understand what people are saying here and totally understand their frustration. It's scary, and it's so hard to get a diagnosis.
I hope everyone is having a good and symptom free day!
Apologies for the long post!
All the best to everyone!
Emma
Sorry you're going through all of this... I think you're on the right path with working on getting medicaid or some kind of health insurance. The sooner you can get started on figuring out what's going on the sooner you will hopefully get some answers.
From a fellow newbie to the forum, welcome! It does seem like a great place to ask questions, share advice and experiences, etc.
Smiles,
Laura
From a fellow newbie to the forum, welcome! It does seem like a great place to ask questions, share advice and experiences, etc.
Smiles,
Laura
Hello and welcome! I am sorry I didn't see this sooner, I tend to overlook this thread of posts sometimes.
I am sooo glad that you found us. It sounds like you have a lot on your plate! There are many here who have been through similar situations with similar symptoms, each having their own stories to tell and each having their own experiences in this journey.
Have you had any other tests at all besides the MRI/CAT scans? Has anyone (doctors) said anything in regards to what they are thinking you may have? Have you had any blood work at all looking for things like low vitamin D, low vitamin B12, or elevated ANA, etc? These are all things that should be done to begin to eliminate diseases as you progress along this journey.
I know you said that you have no insurance right now, that must be really hard when you are trying to sort through all this medical business! I have insurance (although it's not very good) and I have a tremendous amount of medical bills every month/year. How far along are you in your disability/ssi case?
Again, welcome! You will find yourself in good company here! Please feel free to start posts, ask questions, give advice, etc. whenever you want.
Looking forward to hearing from you soon!
Sarah
I am sooo glad that you found us. It sounds like you have a lot on your plate! There are many here who have been through similar situations with similar symptoms, each having their own stories to tell and each having their own experiences in this journey.
Have you had any other tests at all besides the MRI/CAT scans? Has anyone (doctors) said anything in regards to what they are thinking you may have? Have you had any blood work at all looking for things like low vitamin D, low vitamin B12, or elevated ANA, etc? These are all things that should be done to begin to eliminate diseases as you progress along this journey.
I know you said that you have no insurance right now, that must be really hard when you are trying to sort through all this medical business! I have insurance (although it's not very good) and I have a tremendous amount of medical bills every month/year. How far along are you in your disability/ssi case?
Again, welcome! You will find yourself in good company here! Please feel free to start posts, ask questions, give advice, etc. whenever you want.
Looking forward to hearing from you soon!
Sarah
I'll jump right in to my concerns:
M.S., and/ or
Fibromyalgia,
Thyriod (Hashimoto's/Silent/Hypothyroid)
Hypoglycemia
Graves Disease
Addison's Disease
Chronic Fatigue Syndrome
I was already in the severely disabled category, per Voca,tional Rehab looking over my Ortho's files, etc. after having been run over by an SUV on my bike, 6 yrs. Ago.
I have recently (2 1/2 mos. ago) been told, after an m.r.i. an cat scan that I had a lesion on my brain. This was after having prior intermitant walking troubles for 9 years (dx'd as 'not orthopaedic') along with weakness and stamina concerns.
What landed me in the hospital for 5 days when I found out I had the lesion was a very bad flare:
After being in bed for most of the day for 3 1/2 mos. (my status had changed from hand tremors dx- essential tremor-- to, on occasion, 'wildly erratic', almost seizure-like jerky arm movements gthat, it seemed, landed me in bed-- an accompanying debilitating exhaustion.
When my status progressed to added symptoms of memory loss, body going 'back and forth' (tardive dyskinesia concerns), knees collapsing, 'head going back and forth', and my prior 'partial paralysis' (?)/ VERY slow, almost immovable legs/walking concerns, I went to the e.r..
I had lost my job... no insurance... so I tried the e.r. It helped to get an m.r.i.
Although I do grope to get through each week, getting 1-2 hours worth of ANYTHING AT ALL done per day, I intendd to get an attorney to help me with ss.i., followed by medi-caid.
Also, I have halting speech (trying to remember my next word), and brain fog-- maybe presenting as confusion and 'can't think through complex tasks'.
Thinking tasks that I used to do well are better for me, more successful, yet thinking tasks that used to be challenging are now MOUNTAINOUS to try to tack le. Only getting one task done per day is uNacceptable.
For help/assistance, which is what I need in oder to progress in any kind of a reasonable time frame, I summize I would need a nurse's aide. Hence, I'm wallowing in a mire here.
Strexss, maybe, or having too big a week, trying to work under pressure of a time factor... if I add a five hour project to my week... I.ve ended up with the 'head back and forth', eyes 'batting/blinking real fast' (nastygmus?), legs not wanting to walk, knees collapsing, hand wanting to shake symptoms.
These symptoms occurred twice in the past two days. I'm not sure if going to the wmergency room or lying and resting for a good while will be my next step.
Some of these symptoms, per the internet searches I do while resting for hours on end, say 'ivf not treated soon, can b permanent.
Oh, and my 'nurse daughter', who lives out of town is STRANGELY unsupportive. Two siblings think I'm making it upor exagerating, or something.
Oh, headaches, which I NEVER had before now are auite regular. In fact, they come on prior to my worst excacerbations.
The neuro. In the hospital said she has never seen my kind of movment disorder and said to go to specialty hospital, in Miami, a good distance away.
My other child, I have been shielding from all this, as she needed to have the 'eye of the tiger', being in the navy, in a danger zone, doing highly dangerous work, for almost a year.
Their Dad, my ex, has had tumoultuously disabling status for many years. I kind of am having to 'go it alone'. He has priority, health-wise, you could say.
I spoke, yesterday, with my nurse daughter, mentioning my lesion, upon running by her my severe excacerbation symptoms. She doesnt believe me-- saying the hospital would not tell me I have a lesion on my brain, then just let me go home. (They kept me under watch, for 5 days).
Thanks for being there, you all. Sorry to be so verbose, but its been an eventful time, here, all the while moving, handling, home, car, room-mate stuff, daughter serving in the middle east (HER status is too stressful for me, really). But, like the military says about post traumatic stress disorder-- handling your health 'takes a different kind of courage'.
By the way, I'm a 52 year old female. Oh, insomnia has been a great concern, for about a year, now... mualthough it had been a problem before.
I'm curious about past over-use of pesticides, or ammonia when cleaning/over-use.
I've had my share of traumatic events, both recently, and in years past. Maybe 'fight-or-flight' responses wear down one's immune system stuff/neurological system.
I'd like to make a joke about not being able to remember where I parked my car in the parking lot, ALL THE TIME. But I may come across, well as being a little too 'kooky', as it is.
I do appreciate this forum, though. :) Blessings, both large and small, to all.
M.S., and/ or
Fibromyalgia,
Thyriod (Hashimoto's/Silent/Hypothyroid)
Hypoglycemia
Graves Disease
Addison's Disease
Chronic Fatigue Syndrome
I was already in the severely disabled category, per Voca,tional Rehab looking over my Ortho's files, etc. after having been run over by an SUV on my bike, 6 yrs. Ago.
I have recently (2 1/2 mos. ago) been told, after an m.r.i. an cat scan that I had a lesion on my brain. This was after having prior intermitant walking troubles for 9 years (dx'd as 'not orthopaedic') along with weakness and stamina concerns.
What landed me in the hospital for 5 days when I found out I had the lesion was a very bad flare:
After being in bed for most of the day for 3 1/2 mos. (my status had changed from hand tremors dx- essential tremor-- to, on occasion, 'wildly erratic', almost seizure-like jerky arm movements gthat, it seemed, landed me in bed-- an accompanying debilitating exhaustion.
When my status progressed to added symptoms of memory loss, body going 'back and forth' (tardive dyskinesia concerns), knees collapsing, 'head going back and forth', and my prior 'partial paralysis' (?)/ VERY slow, almost immovable legs/walking concerns, I went to the e.r..
I had lost my job... no insurance... so I tried the e.r. It helped to get an m.r.i.
Although I do grope to get through each week, getting 1-2 hours worth of ANYTHING AT ALL done per day, I intendd to get an attorney to help me with ss.i., followed by medi-caid.
Also, I have halting speech (trying to remember my next word), and brain fog-- maybe presenting as confusion and 'can't think through complex tasks'.
Thinking tasks that I used to do well are better for me, more successful, yet thinking tasks that used to be challenging are now MOUNTAINOUS to try to tack le. Only getting one task done per day is uNacceptable.
For help/assistance, which is what I need in oder to progress in any kind of a reasonable time frame, I summize I would need a nurse's aide. Hence, I'm wallowing in a mire here.
Strexss, maybe, or having too big a week, trying to work under pressure of a time factor... if I add a five hour project to my week... I.ve ended up with the 'head back and forth', eyes 'batting/blinking real fast' (nastygmus?), legs not wanting to walk, knees collapsing, hand wanting to shake symptoms.
These symptoms occurred twice in the past two days. I'm not sure if going to the wmergency room or lying and resting for a good while will be my next step.
Some of these symptoms, per the internet searches I do while resting for hours on end, say 'ivf not treated soon, can b permanent.
Oh, and my 'nurse daughter', who lives out of town is STRANGELY unsupportive. Two siblings think I'm making it upor exagerating, or something.
Oh, headaches, which I NEVER had before now are auite regular. In fact, they come on prior to my worst excacerbations.
The neuro. In the hospital said she has never seen my kind of movment disorder and said to go to specialty hospital, in Miami, a good distance away.
My other child, I have been shielding from all this, as she needed to have the 'eye of the tiger', being in the navy, in a danger zone, doing highly dangerous work, for almost a year.
Their Dad, my ex, has had tumoultuously disabling status for many years. I kind of am having to 'go it alone'. He has priority, health-wise, you could say.
I spoke, yesterday, with my nurse daughter, mentioning my lesion, upon running by her my severe excacerbation symptoms. She doesnt believe me-- saying the hospital would not tell me I have a lesion on my brain, then just let me go home. (They kept me under watch, for 5 days).
Thanks for being there, you all. Sorry to be so verbose, but its been an eventful time, here, all the while moving, handling, home, car, room-mate stuff, daughter serving in the middle east (HER status is too stressful for me, really). But, like the military says about post traumatic stress disorder-- handling your health 'takes a different kind of courage'.
By the way, I'm a 52 year old female. Oh, insomnia has been a great concern, for about a year, now... mualthough it had been a problem before.
I'm curious about past over-use of pesticides, or ammonia when cleaning/over-use.
I've had my share of traumatic events, both recently, and in years past. Maybe 'fight-or-flight' responses wear down one's immune system stuff/neurological system.
I'd like to make a joke about not being able to remember where I parked my car in the parking lot, ALL THE TIME. But I may come across, well as being a little too 'kooky', as it is.
I do appreciate this forum, though. :) Blessings, both large and small, to all.
Thanks for the welcome! These things do seem to be alarmingly hard to dx. I can't imagine being in limboland for 6 yrs!! You're made of strong stuff I think! :)
I'm still hoping that what I have doesn't turn out to be MS, but I've accepted that there are good chances that it will be since the symptoms haven't completely gone away.
Stay well and thanks again for the welcome.
Smiles,
Laura
I'm still hoping that what I have doesn't turn out to be MS, but I've accepted that there are good chances that it will be since the symptoms haven't completely gone away.
Stay well and thanks again for the welcome.
Smiles,
Laura
Hi and welcome.
Well you have been through the mill haven't you. These diseases are just so hard to diagnose it drives me nuts.
With the ON it could turn out to be MS. Perhaps you had a clinically isolated syndrome and will not get sick again.
The problem with the tests is that they dont always show up lesions, and even a negative LP does not mean someone does not have MS. I was talking to someone only this morning who has just been diagnosed with MS with a NEGATIVE LP.
I hope it isnt MS and I hope it is just an isolated incidence for you.
Its hard being in limboland I know i have worn the T shirt for nearly 6 years lol.
Big hugs. Mariax
Well you have been through the mill haven't you. These diseases are just so hard to diagnose it drives me nuts.
With the ON it could turn out to be MS. Perhaps you had a clinically isolated syndrome and will not get sick again.
The problem with the tests is that they dont always show up lesions, and even a negative LP does not mean someone does not have MS. I was talking to someone only this morning who has just been diagnosed with MS with a NEGATIVE LP.
I hope it isnt MS and I hope it is just an isolated incidence for you.
Its hard being in limboland I know i have worn the T shirt for nearly 6 years lol.
Big hugs. Mariax
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