i'm still here

[illinwithoutacause]

hello dear limbolanders,

i just wanted to check in with you all since i have taken a bit of a break.  i have been checking in on the forum fairly regularly, but just haven't much to report from my end.  i've been feeling poorly and tend to withdraw when that happens.

i went to see yet another new doctor last week, the day after my quarterly visit with my neuro who said she was happy to see how great i looked and how strong i was.  i look like death warmed over and am as weak as a kitten, so i don't know what hallucinogens she is on.  i take it all with a grain of salt at this point.

anyway, the new doctor i saw is a naturopath and a physician assistant (p.a.). who specializes in diagnosing and treating lyme disease and other neurotoxic illness.  since i received the positive lyme and rickettsia test results in early august, but am allergic to most of the antibiotic used to treat those infections, i started researching alternatives.  i met a mom at my daughter's school who also suffers from lyme, and so does her husband, and they both see this new doc.

i had a 2.5 hour long appointment and he listened to and wrote down everything i said for the first hour.  he then gave me a physical exam and after a short break, he sat me down for another hour to tell me what he thought.  first he turned on a recorder so he could burn a CD of the conversation for me to play for my husband and use for future reference.  he said he is absolutely certain that i am suffering from a neurotoxic illness.  he thinks lyme is just part of the problem and that i am dealing with a multitude of other issues, including mercury toxicity and exposure to other infectious agents.  i have started an herbal protocol to deal with microbial infections and will also do a special metals urine test.

then today i ended up in the ER because i think i have another blood clot in my left leg.  they weren't able to locate any ultrasound techs since it was the weekend, so i'm scheduled to go tomorrow.  they put me on an anticoagulant shot as a precaution.  i pray the leg pain is related to neuropathy rather than a DVT, but i will let you know.

i see a number of new folks on the forum, and am grateful to jibjen, sarah and you other lovely members of the group for welcoming and supporting them.  i will do my best to be more present, but i know everyone understands the need to retreat into our own heads from time to time.

blessings to you all~
binx


  

[sarahw244]

Thanks for the update!  So very sorry to hear that you are not doing so well, but happy that it wasn't a DVT.  Are the stockings comfy?  I've heard mixed reviews.  Sorry, that was random, lol!

Aren't PA's great?  NP's are too.  They actually take the time to listen to and still treat their patient's like human beings, not numbers.  I really hope and pray that this guy can give you some relief!  You deserve it!

Take care, and I agree...you do have A LOT of grace!
(((hugs)))
Sarah

[illinwithoutacause]

thanks, everyone.

vascular ultrasound was clear, thank goodness.  the docs think i have post-thrombotic pain syndrome.  now i get to wear these super sexy compression stockings to help alleviate the pain and abate the onset of additional blood clots.

whoever said 40 was the new 30 didn't swim in my polluted gene pool.  it has been a most ungraceful stage of life for me.

;-)
binx

[suzsibs]

Hi Binx
You really are going through it at the moment, I pray your leg pain is just leg pain and not another DVT.
I'm glad you have found a new doc who can look into your problems and treat you with natural therapies, being allergic to meds must make life so difficult for you.
I just sent you a bear hug before I saw this post but here's another one because you deserve it.
BIG BEAR HUG
Suz

[Jacksmom516]

Hi!

I am sorry you have been feeling so poorly as of late - I am glad you found a doctor that took the time he did with you and hope that his alternative tx help with your pain.  

Feel better and we are here for you

My thoughts are with you -

Jacksmom

[jibjen]

Hi Binx,

Thanks for checking in with us and letting us know how you are doing. Please do not apologize for taking time to take care of yourself and do what you have to do. It is all part of this land we live in..We are blessed to have you here.

I am so gladd you have this doc and have found an alternative to tx. and do hope your pain is not DVT. Please let us know.

We are with you Binx, every step of the way. Please know you have all our thoughts and prayers.

Love Jibs