All negative, I presume? Did you get copies of the results? Did they run a Western Blot? If so, which bands were positive? Sorry to pepper you with questions.. It's just that my PA said that it is their sickest patients who test completely negative. They will do an antibiotic "challenge" for someone with symptoms who is testing negative for Lyme (and other possibilities have been eliminated) to see if they develop antibodies. Of course it can take a while to diagnose MS, so a case of Lyme that mimics MS can be tricky.
been tested with a speciality test now 3 times in 3 years.
I hope I don't sound like.a broken record on this forum, but I saw your symptoms on one of your posts on the MS board. Have you been checked out for Lyme Disease yet? It can cause every single symptom you list.
I had nearly all of your symptoms with my Lyme, which mimiced MS. And there's lots of Lyme in PA. Many people test false negative and doctors tend to think that excludes Lyme, but it doesn't. I tested negative twice before I got tested at IGeneX, a specialty lab. I tested diagnostically positive there, although I was still CDC negative. I also discovered I have a coinfection. Alled Bartonella, which makes the neurological (and GI) symptoms of Lyme worse.
There are doctors experienced with the disease that we call LLMDs, Lyme Literate Medical Doctors. The good ones are associated with ILADS. you can ask for doctor referrals from ILADS, or a local Lyme support group. The right doc can make a clinical diagnosis based on symptoms, history, and tests without requiring a CDC "positive" antibody test.
This might be helpful reading for you. It was written for doctors, so you can breeze through the medical-ese. There are other great articles on the ILADS website, too.
http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
P.S. I have heat sensitivity also. I start to feel like I am in an oven when it hits the high 70's.
Keep us posted!
i was in the sun on sunday and still feel like this. still tired and exhausted and still have no energy. i didnt think a simple task of mowing the lawn for a few minutes would wipe me out so much. UGH add this up to just one more damn thing i cant do. THIS STINKS. I am so tired of finding more and more things I cant do. :(
OMG if you have any neuro type illness you should never mow the grass in the sun lol. No really it will make you ill. I got stuck in the sun in September 2 years ago and I was just like that vibrating everywhere and ended up having to go home as we were on holiday only about 2 hours drive away.
I avoid the sun now, but do allow myself to sit in it for max 20 mins for those vit d rays. xxxx Once you cool you will feel better.x