Still No Answer!

[tjbk]

Hi all. Had an appt this morning and heard the dreaded "we still don't know what's going on" statement again. Spinal MRI shows no spinal lesions, tumors, etc. I have DDD and numerous "small" disk herniations but not showing any spinal impact. Brain MRI shows only a few small lesions that "don't really indicate MS". EMG/NC showed some denervation but doc wasn't excited over the findings. I still don't have feeling in my right leg and suffer from spasticity and myoclonus. Doc's suggestion is to "wait it out and see if anything changes". I was so disappointed that I almost cried in his office. He was so sympathetic and kept apologizing but it didn't help much. I'm still a limbo-lander....

[tjbk]

You're right, no one wants to be diagnosed with MS (or tumors or ??).  Under normal circumstances I would be jumping for joy at having nothing medically wrong with me. But this is not normal circumstances and something IS wrong. They just can't find it! Believe me when I say I'd be ecstatic if I was told I had a pinched nerve, PT to release nerve, and ibupropen for discomfort. I already do the chiro thing, lymphatic massage therapy, regular detox etc. Forgive me, I'm all for hollistic treatment but also believe there are some conditions that require medical diagnosis and treatment. Since they can't rule out MS or other similar condition I'm scared. The roller-coaster of "we may have found something"..."nope, guess we didn't" is enough to drive anyone a bit crazy at times.

[TheLightSeeker]

Hey tjbk,
Sorry that you are still a limbolander.
However,I'm confused. No spinal lesions, no tumors,no significant spinal impact and nothing indicative of  MS.  That could be both and  good and bad
If your Neuro had told you that this is" Limbolanditis" and there's no cure for it (just like numerous neuro-degenerative and auto-immune conditions) but there's some new drugs that clinical studies show that they work better than a placebo, and they may help with some symptoms, would this be more acceptable to you?
Or if you were to get diagnosed with MS. That would be probably more devastating.
There's a glimpse of hope inside you perhaps, that  maybe he will find something that  can be dealt with and get this over with!
I do not mean to criticize anyone here, you or your doctors. But they do as they are trained to, and I'm sure they have their best intentions to help their patients.
But they have their limitations, time constraints and professional protocols and biases.
On the other hand you as a patient, suffering for years with all the symptoms and no answers, can get very emotional and stressed out, dealing with all this and more!

There's an underlying undetected -so far- causative factor. It needs to be detected!
If you're up to it, post or pm me your medical history including various tests and findings.
Please include any significant events, injuries, traumas, surgeries from the past, with emphasis around the time just before the onset of your first serious symptoms.
Take care,
Blessings,
Nikodicreta