Avatar universal

Narcolepsy can diagnosis be wrong?

Diagnosed with Narcolepsy. Have history of pituitary microadnoma high prolactin. PCOD historectamy 2002 On dostinex. Can something in my brain cause this. I am now on ritalin 20SR  twice a day. Awake but body still tired. Also that thyroid medication had it irradiated a year ago Due to high levels.
Is there any other answer for sleeping so much. Or am I just in denial.
3 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hi Thanks for the advise I do have graves disease had thyroid radiation in 2006 have had levels monitored every month for awhile now every three months. Dr says it is fine. Trying to find answer have lots of blood work. Stoped the dostinex feeling a little better. Had overnight test and day testing for sleep. Lost reproductive function in 2000 thyroid in 2006 and treated for high prolactin levels that fluctuate with out treatment. Cortisol fluctuation from high to low. and Low Gh. Don't understand why endocrine system is so strange. Just worried about losing more organs high calcium. Asymetrical pituitary, prolactinoma and adnoma in pituitary all different diagnosis depending upon Dr.  tsh 166.67 before treatment for graves in 2006 In 2000 T41 2.8 and T3 uptake 22.. Hoping someone can shead some light on problems and give me help to the answer. Weaning off medications so I know what my symptoms are and what are the side effects staying on Estradiol and synthroid and Ritalin.
Have idopathic neuropathy have electromyography and nerve conduction studies  done every 6 mnths.
Told I had depression and anxiety turned out to be hyperthyroid then narcolepsy. Sad that I can not do activities that I love to do but I still have the desire to do them, but my body just will not work. Frustrated!
What direction should I go? Told to go to nero endocrinologist and investigate Endorine Disruptors. Have had exposure to many chemicals including Methyl ethyl ketone and others do to work building transformers AC and DC as well as x-ray coils. In family run electronic shop.
Do I just have bad genetics Neropathy ,narcolepsy, loss of fertility, graves disease. Pituitay abnormality.
Have done multiple sleep tests day and night. Do get stuck at times when asleep muscles do not work well. Mental confusion as well at times Concentration not good can not retain info when reading told I have learning disability.
Helpful - 0
Avatar universal

There are a lot of differentials associated with Narcolepsy. I am assuming that you had an overnight polysomnogram followed by a multiple sleep latency test (MSLT) which is important in the diagnosis. In studies with Dostinex, 5-7 % of subjects reported fatigue and asthenia as adverse effects. Also, you should get your thyroid levels checked. Hypothyroidism can also lead to symptoms of fatigue.
You should consult your doctor for a complete evaluation to find out any other cause for your symptoms.

Do write in if you need any other information.

Helpful - 0
Avatar universal
I am assuming you had an overnight sleep test along with an MSLT nap test to receive this narcolepsy diagnosis. Did you have any other sleep disorders show up? Do you have episodes of cataplexy?

My sleep doctor is one who (in general) doesn't entertain a diagnosis of narcolepsy until any other sleep disorders are therapeutically treated, as long term sleep disorders can mimic narcolepsy in some respects.
Helpful - 0
Have an Answer?

You are reading content posted in the Sleep Disorders Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Healing home remedies for common ailments
Dr. Steven Park reveals 5 reasons why breathing through your nose could change your life
Want to wake up rested and refreshed?
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.