Hi everyone. I am not familiar with Narcolepsy or sleep disorders in general but my sleep has always been different. Typically, I fight daytime sleepiness with caffeine. In prior years, the caffeine has been a lot but I’ve lowered it significantly. I guess I am not sure what all I need to say… I work 8-5, and by 5:00 I’m exhausted and go home and sleep anywhere from 2-5 hours typically, waking up at night (usually) and staying up until anywhere from 2-4 am before getting another few hours of sleep. I’ve found this cycle works the best as far as getting me through the day and getting the most done.
Generally one day a week, I will just come home and crash and sleep (of course not non-stop, but I’ll stay in bed) until the following morning when I have to get up for work. These are the nights I typically have the most dramatic dreams and can generally recall several. I often start dreaming before I even completely fall asleep as I’ve found I often can tell a story about what I was dreaming about when being disturbed in light sleep.
In early August I developed an eyelid twitch that has not gone away. I’ve seen two eye doctors and my doctor twice. This week, I lowered my caffeine to nearly nothing for five straight days and experienced even more interesting symptoms. My dreams became even more widespread and tiring (very vivid, intense) and I woke up and even acted out a couple of times while still sleeping this week. I’ve felt okay during the day, and of course been hit with intense drowsiness suddenly as well, which seemed to be worse with less caffeine.
The main reason I’m writing is because the symptom that’s gotten the most worse this week is a loss of sensation in my legs while walking. This happens very briefly – like for a split second, and it only happens while I’m walking. I will be talking, and suddenly it feels like I have no legs or perhaps a “jello-like feeling. Just as my legs would buckle, lock, or I’d fall, I gain feeling again. It’s literally a split second loss of sensation/feeling. It seems like it starts around the knee. Could this be possibly related to narcolepsy, or is this maybe something else I’m dealing with?
Obviously, I’m worried about a brain tumor because of the twitch combined with this problem. I haven’t had an MRI or anything to verify yet, but obviously a brain tumor isn’t the most common problem that would cause something like this. I guess you could call it a 'loss of balance'. I’m 31, male, about 145 pounds, active… No other major health problems. Does anyone have any input? : (