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narcolepsy

I am diagnosis with narcolepsy and have had symptoms for 5 years now.  I have been taking 500 mg. of nuvigil for over 2 years. Plus, 60 mg of adderall a day. My symptoms have slowed down a little, but I have to take 2 naps a day and not drive anywhere.  I have sleep studies twice a year and it seems to get worse each time.  Its very aggravating to me!  It seems like something would help. I see a team of specialists at Vanderbilt, but I need something else, but what?  Anyone have any suggestions?  I have tried everything!!
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Avatar universal
WOW that is a lot of nuvigil! I hope you are able to find something else that will help you. Wishing you the best of luck!
Helpful - 0
9526964 tn?1404308948
I have a friend who has narcolepsy. He has these hallucinations that he sees or hears something that aren't there. I experienced that one time, he was about to sleep but he suddenly woke up and asked me if I said something but I didn't. Hope you find the best cure for that. Because he? He still has it.
Helpful - 0
9780765 tn?1405910914
I have to do a sleep study next month to see if I have narcolepsy..... that is actually what introduced me to this site, I am doing a sleep journal.  I did not realize until last night how many dang times I wake up at night.  My doctor mentioned Ritalin. I am so worried about taking meds, I am so close to getting my 8 year old off Ritalin by going organic.  I am also finding it oh so hard to keep up with 2 boys that are very high in energy.  
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Avatar universal
I WAS DIAGNOSED 35 YRS AGO . . . I'VE BEEN TAKING 40MG  OF CITALOPRAM IN THE AM ...   AND 1 MG OF CLONAZEPAM AT NIGHT TO HELP WITH SLEEP ALONG WITH 10MG OF MELATONIN. I AM LOOKING FOR SOMETHING STRONGER TO HELP WITH SLEEP
Helpful - 0
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