After 2 years of worsening gait and headache and incontinence symptoms, a benign tumor was found at C1-C3. I had surgery to have it removed in April of this year. The lab tests came back inconclusive and it's being called a "neoplasm of uncertain nature". I was referred to a neurologist that specializes in MS. A new MRI shows something at T1, but no brain lesions and the lumbar puncture shows 3 o-bands and a critically high white blood count and high lymphs. The doctor wants me to start Copaxone injections. She also recommended IVIG which the insurance company rejected. I am not definite for MS, but the neurosurgeon and MS doctor are insistent I start on MS medication to "see if it helps". The next MRI is the one year follow-up from the surgery date - eight months away. I'm pretty lost here and not sure if I should start on the Copaxone or keep driving myself crazy searching for a diagnosis. I had a world-renowned surgeon do my brainstem surgery and he told my family after surgery that he was confident the tumor was neurosarcoiditis - but the labs were inconclusive.
