Sounds like alot to deal with espically with a 10 month old, my kids are older but still sucks the same. Hopefully we can both get some answers soon, nothing is worse than not knowing. You are very lucky to have a dr that cares and is trying to figure it out for you!! My mom has lupus and at 1st they told her she had Mono, I think my mom was in her 30's when they diagnosed her and then they really didn't know to much about it. She is almost 49 and doing well even though she is sore and does have some lupus related issues. But she works full time and lives a very happy active life in spite of having a very ugly disease!! Big hugs hun!!
It really sucks not knowing whats wrong. I started pursuing my illnesses a few months ago and have finally gotten lucky with a good doctor. My GP is almost certain I have Lupus. I have a few good days, but I am usually pretty worn out and tired. It's very difficult with a 10 month old. Thank god for my husband. He is great. I haven't worked in almost 2 years now, mostly to take care of my son and for fear of being sick and not able to work. I don't do to much these days and I am so tired. I would hate to see what it would be like if I was working all the time again. I got lucky my Neurologist is also a Rheumy. so I kind of get 2 birds with one stone there! When I went to the ER the doctor was to quick to want to give me drugs for pain witch I refused ( I hate drugs) and told me it was a migraine. I have had migraines since I was in high school and they have never been anything like that. He was just pissed he had to get out of bed at 1 am. Oh well hopefully we will both get some answers soon.
I am in the same boat as you, on March 24th I went to the hospital with left side weakness, stuttering, twitching and a few days later starting having seizures. I had 2 CT scans a MRI and all of them were clear. I had a ton of blood work done a EEG and what not and everything came back find. At least your dr is taking it serious mine just told me I was crazy. I am 28 years old and was fine one minute and couldn't speak or move my left side and within 20 minutes was calling 911. I go see a Neurologist June 24th and I am hoping to get some answers as to what is going on with me. I am feeling much better now but it took over 2 weeks to start feeling "normal" again. I am still like you having issues saying some words, I have very sensitive hearing I don't sleep well and have major headaches almost every day. I have also been having issues with losing feeling in my left leg and arm still. It is so very frustrating to not be taken seriously or not to have any answers. I hope you are feeling better sorry to ramble on so much but yes I had stroke like symptoms and all my scans came back clear