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Worried? Pain in neck, tingling on face, Dizziness

Hi.  FOr ages I have been complaining about dizziness and a pins and needles feeling in my left cheek.  (by ages, since 2003)  I have been sent for ultrasound of coratid artery (no problems) and and MRI/MRA (no problems) but the symptoms are not only stil there, they are getting worse, considerably.  I have noticed that this summer, with humidity real high, they are horrible!  

When this happens, I will feel a pins and needles type tingling from actually right below my jaw bone, covering the entire left side of my face to the left of my eye and about a 1/3 of the way into my forehead on same side.  This will intensify as the day goes on.  

Then my neck will hurt BAD!  Again, always the left, from my shoulder blade, sort of up the back of my neck, to behind my left ear.

After that I will be hit with HUGH waves of dizziness, sometimes to the point of almost blacking out.  I have a real feeling something is major wrong!  I feel somewhat sick to my stomach.  When I say dizziness, it isn't like everything spins, it is like I feel out of whack.

This really has me worried.  It comes out of no place, my stress level is probably the  lowest it has been in years ( I quit work a few months ago and am glad about that decision - no $$ issues  because of it)

Does ANYONE have a clue?  My dr. just told me medicine can't fix everything, but THIS IS NOT NORMAL and NOT in my head.  I just don't want to have to have a stroke to prove it!
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Avatar universal
I wanted to share my story and hope that this helps.. I have been going through the ringer with my symptoms and after 6 months am finally coming out of it. This sounds like my issue to a T. Let me tell you... it is stress and anxiety. I had no clue that it could create this much physical problems but IT CAN!i am a 32 year old woman in the best physical shape of my life - exercise 6x a week, extremely healthy and no previous health issues or headaches.

December 2015: My company decided that it was laying off the entire office  and that I would be forced into self employment.. a moment I thought i was ready for but definitely not subconsciously. I even told my therapist (who i see regularly) i was excited to start this journey.

Mid December 2015 to Early January 2016: Extreme lower jaw and tooth pain on the left side.. I thought that I had a gum infection,but since i had been to the dentist earlier in December with nothing wrong I chose to floss more and use mouth wash. Mild tension headaches start.

Mid January 2016: dizziness, cheek pressure but no sinus infection or fluid. I go to an ENT to be sure and there is nothing wrong with me. He gives me OTC allergy medicine recommendations and sends me on my way. Tension headaches still going

February 2016: Wake up with extreme upper back and neck pain.. tingling in my left shoulder blade and a knot in my lower neck on the left side. I try everything to stretch it out, massage, nothing works. I visit a chiropractor.. he tells me that my atlas is out and I let him manually adjust me for the first time.. I start to get a headache and sinus infection within a week of my adjustment. I start a google FRENZY and go into a dark hole of worry about having a stroke and dying. not kidding.. i took it there. I rush to Urgent care where they take another set of x rays, tell me i am fine, calm me, and give me antibiotics and a shot of steroids in the butt and tell me its just a sinus infection.

March 2016: official first month of self employment as my job kept me on until end of February. This is where it got BAD. My entire body locked up, my left side of my face was tingling, burning, my neck was extremely knotted and tight, the headaches and dizziness made me feel like i was dying and my traps were a mess. I went back to the ENT and he told me he couldn't find another sinus infection and gave me steroids to calm the inflammation.. worked for about a week and it all came back. End of march i go to an orthopedic surgeon.. he looks at my x rays and tells me that I have chronic upper back issues and that its postural. Sends me to physical therapy for a month. I'm in PT and we are working on back strengthening exercises which is absurd because i have a personal trainer 2x a week for the last two years and work out another 3 to 4 with cardio. he can't understand the inflammation or why my muscles aren't calming down.

April 2016: I go to a family friend who is an oral surgeon.. he diagnoses my TMJ and gives me a soft night guard and a day splint.. also gives me muscle relaxers (which i took for two days and HATE).. i am not a medication kind of girl and have been super medicated for the last month. Still getting headaches, still have body knots and tension, still feeling dizzy and overall tingling in the face.

Mid month i have a total panic attack and take myself to the ER... they check my blood - good. vitals - out of control because of the panic.. they give me a valium and EVERYTHING goes away. DING!

i head to a neurologist just to be sure.. he orders me a brain MRI and everything comes back clear. He tells me about trigger points and referred pain - offers to inject them but i say no (i just want to fix instead of mask the issue).. he tells me that even putting a needle in would relieve the pain.. DING! ACUPUNCTURE!

I go back to the orthopedic surgeon in April - he tells me that I need to breathe as his advice and wants me to continue physical therapy. orders a cervical MRI. I get the results and I have a couple minor bulging discs.. the only major was 3mm at C5... nothing he says the would cause the facial tingling or the major inflammation

At this point i am meditating every day, taking lavender infused epsom salt baths, getting 1.5 hour massages every week, taking long walks, listening to soothing music, neglecting my work because i am making it my job to calm down.

I also moved in with my boyfriend in February.. new EXPENSIVE apt, no full time job, new BMW car payment (all commitments pre job loss), student loans, my own health insurance..

my therapist wanted me on an antidepressant because I have a history and i was convinced this was all physical and that stress, anxiety and depression had never affected me this way... it was impossible. I had also never been in this stressful situation before.

I started cupping and acunpunture on my back and a couple of sessions for my jaw and TMJ... MIRACLE!! i felt relief after 2 sessions. IT is something you need be patient with, but it works! I still did massage once a week, heat muscle, epsom salt baths, meditation, icing, and rest.

The facial flushing and tingling was spreading across my nose and into my cheeks.. totally scaring me and causing me to panic. I decided i was desperate because the other pain was dissipating but not the facial. i went back on lexapro after reading that anxiety can cause facial tingling.

May 2016: So here we are... this last month has been game changing. I have been on lexapro for 3 weeks. i started with 5mg (I'm super sensitive) and i felt relief within a week. I am now up to 10mg just in the last few days and it has made major changes. I am doing acupuncture and massage about every week and a half to keep it up. I am still meditating every day and started working out about 5x a week again.

The other game changer was that i went to a doctor in Irvine, CA (where i am from) who is a chiropractor (who uses the little tool instead of manual - which i think started my freak out) and is also a nutritionist. He told me that when our brain is in a hyper active state for too long it can actually get stuck. I was FLOORED! I had NEVER in my life heard of this or had anyone experience it. I knew the mind was powerful but wow. It explained why i could do all these relaxation techniques and my brain was still in FIGHT OR FLIGHT mode all the time. He took a look at my x rays and MRI and noticed I had a straightening of the cervical spine.. which basically 80% of our population has due to cell phones and computers. This puts a ton of pressure on the nervous system and stretches the brain stem and sympathetic nerve system and messes with your entire Neuro function. My mind was in constant anxiety... as soon as i knew this i felt less bad already... he adjusted my body and told me to give him 3 months. he was going to restore the curve in my neck and help me. I am taking a supplement with vitamin B (helps with nerves), magnesium (helps with muscles and relaxing) and an antioxidant. I am also on 10mg of Lexapro.

I honestly thought it was hopeless and made it my JOB to get well. but let me tell you that TODAY.. all my neck tension is gone, my back is full of cupping marks but no pain, my ears are no longer full from my TMJ and I'm about 80% out of the woods on that, I am taking lexapro (it ***** for the first few days, but stick it out i promise you it gets better - i was puking and had insomnia... but it goes away)... and my face just tingles a little here a there around my nose or cheeks.. it doesn't scare me anymore because i know its my adrenaline and the only way to combat it is to work out and release it and that with time and less worry it will!


Helpful - 2
4 Comments
Hope you see this Mara R4444.
This sounds EXACTLY LIKE ME!
How are things for you now?
Holy hell you just described me!
How are you these days!
I stay in a state of chronic anxiety thinking the worst all the time,but even when I'm not thinking about it,it hits md from nowhere!
Constant dizziness drives me batty!
Are you getting total relief now?
Can you PLEASE email me ***@****
HELP. I have questions. You almost fully descrived my symptoms. Please contact me
Please contact me! I have questions. HELP Im freaking out.Thinking something is seriously wrong. Feel also pressure in my neck and head line my arteries are inflammed. Please contact me Pvillarreal34 @yahoo .c o m
Avatar universal
Hi there!  I know you haven't been on this forum in several years, but I've had the same symptoms you describe for 4 years no with no resolution.  Was wondering if you ever found a way to fix it! Thanks!
Helpful - 0
Avatar universal
ekf
Many years have passed, hope u r well. I have had your experience. I finally got so desperate that I went to the local chiropractic,who is very good. I had just finished 8 wks PT but my neck muscles were rigid. I was scared I was losing my mind the dizziness was affecting me so. He asked his massage gal to treat me first. She did a technique new to me that involved lifting my head while sitting. She said the cranial bones were involved, too tight. After an adjustment I felt like the blood was flowing back to my brain. Like a miracle.



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Avatar universal
I've had very similar symptoms as you.  Did you every figure out what was causing your symptoms?
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Avatar universal
Dr 's seem to forget about cervicogenic dizziness which can cause all of the symptoms you have described, as well as, many of the other posts describing similar symptoms.

Vestibular rehabilitation by physical therapy should help resolve the symptoms. :-)
Vestibular.org/cervicogenic-dizziness
Ask your Dr. about cervicogenic dizziness and request physical therapy for vestibular rehabilitation. I sincerely hope this will help you. Also, compazine will help will help with the nausea until the therapy resolves the problem with cervicogenic dizziness.
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Avatar universal
great advice, thanks
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Avatar universal
Sounds like B12 deficiency or parathyroid problems..the latter are not known much to docs.. look at John Norman's site.  
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Avatar universal
You have every symptom of B12 deficiency.. Any doc can give those shots.. first go get some capsules of B complex then get those shots and blood work..Demand it, docs sometimes don't get it
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Avatar universal
I had a nek injury 3 years a go, a car hit me in the parking area, I had a lot of fisio therapy but  the damige is still here, now I heve a teengle on my  right side of the nek, face, shoulder, the worst is wen I going to sleep, it is a night mare, the doctors say no much they can do, they become like atrites and I have to learn to live with, please any one can give me a answer, thank you
Helpful - 0
Avatar universal
I had a nek injury 3 years a go, a car hit me in the parking area, I had a lot of fisio therapy but  the damige is still here, now I heve a teengle on my  right side of the nek, face, shoulder, the worst is wen I going to sleep, it is a night mare, the doctors say no much they can do, they become like atrites and I have to learn to live with, please any one can give me a answer, thank you
Helpful - 0
Avatar universal
My situation started a few days ago... Oddly enough, I was putting up Christmas decorations at work, & suddenly I just felt odd. I had numbness to the face (centrally located), pain to the right side of my chest, pain under the jaw line on the left side & a bit of dizziness. At first I thought "STROKE?!!?", but being that (ironically) I am a 911 dispatcher, fluent in Emergency Medical Dispatch, I started walking myself through the tests, & had my partner validate that I was doing fine. I am hoping it's Costocondritis, but we shall see...
Helpful - 0
Avatar universal
My situation started a few days ago... Oddly enough, I was putting up Christmas decorations at work, & suddenly I just felt odd. I had numbness to the face (centrally located), pain to the right side of my chest, & a bit of dizziness. At first I thought "STROKE?!!?", but being that (ironically) I am a 911 dispatcher, fluent in Emergency Medical Dispatch, I started walking myself through the tests, & had my partner validate that I was doing fine. I am hoping it's Costocondritis, but we shall see...
Helpful - 0
Avatar universal
you have described exactly what i feel I thought i was the only one that felt this and i myself had several car accidents plus fell on my back in 2000, so if anyone could give us an answer plz do
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Avatar universal
Hi, finally all symptoms gone.

I had all those symptoms.  3 months of hell.  Stiff neck, had to keep cracking it to make any difference.  Slept ok but on waking up the stiffness, confusion, tingling, vertigo etc.,  Spent fortune on physio, massages etc.,  Solution was very simple.  

Cause was using chat on my phone, constantly looking down and typing.  RSI followed.  First, stop chatting on phone/texting, facebooking etc.,  

Then get the bottom part of your palm of your hand, just above the wrist, and massage the muscle behind your ear [mine was right hand side] but underneath and behind your ear.  You will find instant relief and symptoms disappear within 10 minutes.  Massage using firmish pressure in a circular motion.  That does the trick!
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Avatar universal
I had the same thing and have the same treatment and yes chiro and massage help! It doesn't cure it but instead of me being this way 100% of the time its like 50% of the time and not as bad when it does happen so i'm happy.
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Avatar universal
Hi All,
I was reading these and they go back through the years and I was sorry so much time has passed with so many people fearful.   With negative MRIs and tests, the hard part is over for most of you.  I repeatedly saw the symptoms of 1.) pinched nerves and 2.) Vertigo or particularly - Benign Paroxysmal Positional Vertigo (BPPV).   Both of which do not show up in tests, but rather are determined by the symptons.  

Pinched nerves can cause everything from muscle pain to panic attacks.  There was one girl on here who had a "tapping" and everything she explained sounded like the classical "pop" when you pinch a nerve.  

Also, for Vertigo, I finally got relief from the craziest exercise which helps dislodge some of the calcium pieces ?) in the inner ear so they can reattach in a place that doesn't cause vertigo (dizziness).   One gentleman here says he is seeing worm like things and his eyes cross.  Sounds like definite vertigo.  I found an exercise called the Epley Maneuver.  There is also the Semont or Brandt-Daroff exercises. Here is a video showing the Brandt-Daroff exercise (http://www.youtube.com/watch?v=hhinu_oU_hM) and the Epley Maneuver) http://www.youtube.com/watch?v=nX1HU-CCg2Y&feature=related).  The Epley worked best for me.  

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Avatar universal
i don"t have any pain but i suffer from horrible dizziness that also causes nauciousness.I was in a car accident about 14 years ago and suffered diziness right after that,but then it went away.Now it has been back for the last several years including feeling of fullness in my ears,terrible dizziness,nausea and i get cold.clammy sweaty feeling accompanied by shakieness..i have been to 2 ents had am mri and cat scan of my head and seen  a neurologist.nothing seems to be helping could an old neck injury be causing this?it seems worse when i have to be looking up or down for a period of time...what type of dr can help?
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Avatar universal
I'm having a very similar problem. I wonder if you are hydrated, getting enough minerals, electrolytes, etc. This is happening to me in the wake of not having much to eat for a few days after a long bike ride on a warm day. I am at the point where it comes and goes. I am hoping that getting my hydration and nutrition back in line I will feel consistently better. I supplement sometimes with 5-HTP (for serotonin) and  GABA Calm (GABA/tyrosine for dopamine and such). You may want to read about these and determine if they could be helpful for you.
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Avatar universal
Low blood pressure is helped by an increasein sodium/salt. Just make sure her doc is okay with it. Google an illness called pots postural orthotic tachycardia syndrome and see if she has any other symptoms along with the low blood pressure.
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Avatar universal
I have had all the symptoms that most people are having,tingling, pins and needles etc on the left side of my face, down my shoulder and into the top of my chest.I also have a sore left elbow for the past year which I was told was tennis elbow but I am right handed.
I am now seen a chiropractor in Dublin who took x-rays and said my bones are all over the place, I am 48.He reckons I may have a pinched nerve in my neck or back or both.He has started treatment and already after 2 weeks my elbow pain has almost gone and my pins and needles have improved somewhat.
If you suffer from back or neck pain maybe you should try this route.
All the best.
Colm
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Avatar universal
I just had another thought - as the symptoms originated in your left cheek - have you had your wisdom teeth checked?  These can cause pressure on nerves occasionally.  Just a thought .
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Avatar universal
Do you live near a golf course or other place where strong chemicals are used at all?  Or did your job involve chemicals of any kind?  Have you looked into food allergies or intollerances ( possibly to colourings, or preservatives rather than to actual food ).  Low blood pressure can cause extreme dizziness and nausea which comes on with a hot sweating type of feeling. Also - if your muscles are very tight or knotted there can sometimes be a blockage to the nerve impulses in neck or shoulder area.  I would recommend an Osteopath rather than a Chiropractor - or often you find someone who has combined both of these modalities - An osteopath can work more finely with the nervous system.  I hope that you find a solution to these disturbing problems so that you can enjoy your time free from work.
I agree with the comments about yoga and massage also - these are the most important and helpful things we can do for ourselves.  
Someone mentioned that their husband sees "worms" in front of his eyes - my mum used to call this a "billious attack" - whether it has anything to do with the liver or whether it is a type of migraine symptom I'm not sure.
Take care xxx
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Avatar universal
I agree about the chiropractor- my daughter has had problems lately with migraines, dizziness, visual disturbances, neck pain.  We saw many specialists and had many tests done.  It was decided she has complex migraines and we also discovered she has extremely low blood pressure.  We decided to give the chirpractor a try and she has been gooing for over a month now.  No migraine since, neck pain is much better- she is still seeing him  twice a week but eventually she will only need to go once a month for maintenence.  She is so much happier as she is not only feeling better but feels there is hope.  We are now concentrating on the low blood pressure which she was told to try and manage by keeping hydrated with water and by moving her body (she always feels better when she is physically active).  These things have helped but she is still experiencing bouts of dizziness particularly while sitting in class.  So if anyone has any thoughts or experience with this I'd appreciate your feedback. Wish you all well.
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Avatar universal
Same thing has happened to me. I thought i was having a stroke. Think its a trapped nerve. Not helped by my pillow arrangement. You need a triangular pillow to support your head and neck. Stress does not help by way of not sleeping well and fidgetting all night. I take sleep aid from chemist and that helps.
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