For years I have had symptoms that I didn't know what they were from. Still don't. But I feel I may be getting closer. Here goes.... The first one I remember is a soreness on top of my head. That has been 7,8,9 or so years ago. Since then, it has engulfed my head. It feels like a bruise on top of my head. My hair has thinned and it only feels better when pressure is put on both sides of my head like a vice. It has moved to around my ears. The muscles or ligaments are sore to touch. My jaw has become sore and hurts to try and hold it open. It cracks when I open it slightly. There are bones right under my earlobe on each side, right next to my jaw (they feel roundish) that hurt to touch. I sometimes have like a flare up when it will be terribly painful (like a headache but more in my jaw and around ears) and the next day it feels like a giant bruise all around jaw, ears, and to almost corner of my eyes. If you bite down and feel where jaw comes together near ear, it is incredibly sore. And one last thing, it feels like my top vertabre in my neck is really out. The bones hurt. Thanks for any help!