My T4 levels were down in the teens for about a week then shot up to 45 once again sending me to the ER with borderline arythmia !
They said I'd have to get a new scan ASAP and probably be treated with RAI . But I just got back from my scan and my thyroid is normal !
After 30 years of Betadine use , IU guess its will take a while for my thyroid to get back to normal ! I'll give it another try with Tapazole !
I've been feeling pretty decent since my ER visit last Tuesday even though I've been off the tapazole because of the scan ! But It still feels like my hormone levels are swinging up and down as some days I feel fine and others I feel like I'll get palpitations and I end up getting them !
Other than Graves , what else could be causing my thyroid to act up !
I have no lumps , no trouble swallowing and no pain .
Peter
I'll be seeing my Endo tomorrow , so I'll let you know where my T4 is landed after 2 weeks of 45Mgs! Hopefully the Tapazole can get me back to normal while any remaining excess Iodine disipates !
Thank you very much for the reply Dr. Lupo !
Pete
Not sure about the L-carnitine -- no definite benefit to thyroid.
Iodine overload can cause thyroid dysfunction -- but interestingly, excess iodine is sometimes used to slow the thyroid down -- it's a tricky balance.
sounds like you may have Graves disease or an over-active nodule and the thyroid is over-utilizing all the iodine -- may take a few months to get past that. You did not mention if you are on amiodarone for the heart (that also has a huge amount of iodine and is notorious for causing thyroid troubles).
Our first choice is to try to control this with tapazole (or sometimes PTU) - if that is not working then definitive treatment is needed. Often I-131 cannot be given b/c the thyroid will not take up the additional iodine; in these cases, thyroid removal is needed.
Checking thyroid ultrasound and looking at Graves antibodies (TSH-Receptor antibodies) may help determine the underlying thyroid condition that is over-utilizing the iodine. I-123 uptake would only be helpful if it's normal / elevated. If low, then cannot exclude a transient thyroiditis, but the time-course of 3-4 months is longer than usual for this.
As far as supplements go , the one I would seem to benefit most from is L-Carnitine !
Would you agree ?
Thanks
Peter Groves
Forgot to add that I'm 56 and in general good health and I believe I've been using Betadine
for closer to 30 years than 20 ! It was my doctor who told me to use it because I had several bad bouts with Strep throat ! Althogh he might have mentioned not to use it constantly and that little tidbit was forgotten over time !
The 45Mg dose was for the last 2 weeks !
Thanks
Pete