Help! I have felt miserable for months

[Rasta15]

I am 40 year old woman and was diag. with graves disease in 2003.  I had my thy. radiated and went into hypo. Three months ago I went off BCP, which I was only on for 1 1/2 mo and it has changed my life.  I got horrible headaches, chest pain, shortness of breath, muscle fatigue, dizziness, vertigo. I have had chest x-ray, ekg, blood test, mri's, and echo, diabetes, lymes.  All normal.Tested my thyroid 3 times in the last two months. I just saw a new endo. who reduced my levoxyl and said I may be a little bit hyperthyroid now.  My heart has been doing a flip flop thing, a few times a day, the last couple days, but I know that can be related to thyroid.   Also, been getting some twitching over my left ear.  The new endo. said going off birth control could have thrown my thyroid on a rollercoaster.  I am still having a hard time breathing. Breathing test improvement with albtetrul 12%.  Inhaler, but sure that is the cause. Never had asth.   I am a little concerned the echo. is not enough.  Although, my chol. level,ldl, and hdls are great.  I have felt horrible for the last three months.  I am normally working out 4-5 times a week.   I know that certain people feel better in diff. ranges of normal.    I have started the new dose two days ago,  I am anxious for the month to pass so I know if that is it.  I am at my wits end and don't know why I feel so tired, achy, and have muscle weakness.  All the doctors are at a loss too.  
9/20/09    TSH 2.74
10/1         TSH 2.21    T4 free 1.3
11/3         TSH .64       T4 Free 1.0         and T3 Uptake 37%  
Range      .34-3.5           .5-1.6                     32-48%

I also had a cortisol test which came back at 16.8, Normal.  My new endo. reduce my lev. from .112 to .100 and took me off generic.  I also failed to mention my feet are also always freezing.  It could be that I am underweight by about 10 pounds.  Another symptom of Hyper...Thanks for any imput you have....

[HyperT77]

Have your doctor check your Vitamin D levels.  My Endocrinologist did this for me about 6 months ago.  The D level was very low.  She rechecks my labs every 2-3 months and the D level is coming up.  Feeling so much better.

[jennyrett]

I was not sure how to post a question directly to you, so I am doing it here.  I am a 36 year old female.  In Sept '09 I was feeling fatigued, had insomnia, was not gaining any weight no matter how much I ate, bruising easily and had back pain.  When to general doc for blood work.  Results showd Free T4 1.97 and TSH <.005.  Doc suggested see an endo.  Made appt for end of Oct (earliest I could ge).  3rd week of Oct went on vacation with my husband, cruise...Had one hour seaweed wrap, eat a ton of shell fish and just felt great when we got back.  Saw Endo, she ordered more blood and uptake and scan. Went that day for blood and two days later for uptake and scan.  This would be exactly 1 1/2 weeks from my vacation.  Results:  Free T4 2.04, TSH <.005, T3 246. Uptake and scan showed 27% thyroid uptake at 4 hrs and 53% uptake at 24 hrs.  No nodules and thyroid was normal size.  begin 10mgs methimazole, she diagnoised me with Grave's disease based on those tests.  1 week later blood work again.  Free T4 1.36, TSH <.006, T3 116. 3 days later I broke out in Hives from neck to my feet, and severe pain in feet and ankles.  Endo took me off methimazole and stated to schedule RAI.  I refused the RAI.  After being off meds for 1 week, blood again, results were Free T4 1.60 TSH <.006 ,but now I also have IgG p41 AB present and IgM P41 Ab present and Antichromatin Antibodies 3.1 (high) and Anti Centromere B Antibodies 1.9 (high).  1 1/2 weeks off of meds, developed severe pain in my wrists, hands and shoulders.  Hives finally disappeared.  2 weeks off of all meds, but eating very healthy, I have no pain, no hives and I feel great!  i have not had another blood work done yet.  

i am seeking another Endo.  

i was wondering what those results would indicate to you as a Doctor.

thank you
Jeannette

[Redboy6969]

Just had blood chemistry from Primary Care. TSH was a little out of range:4.84. T4 a normal 1.2. This is first time I have had an abnormal TSH. I have been taking for past 6 mos. 1 mg. melatonin at night for sleep assistance. Could this account for out of range TSH? Should I consult an endocrinologist?  I am a 75 year old male in excellent health.

[Nian]

I have been diagnosed with Graves Disease..my blood test showed am Hyperthyroid...and took thyroid scan.. Hyperthyorid... My Dr says I am hyperthyroid with Graves disease. yet I don't have problem losing a lot of weight.. I seem to maintain my weight...have trouble losing any weight...my hands tremble..and have racing heart beat..I am being prescribed Methimazole 10mg...is it possible that I am Hypothyorid since I dont have problem with weight loss....just confused... I am concerned in taking the medicine... I might end up gaining more weight...very hopeful for you answer...Take Care...

[Rasta15]

I have had my Vit. D check.  It was done in the first month.  Normal..I actually wish that was it bc it would be an easier fix.  I think I am getting a handle on my breathing tho.  probably seasonal ast. for the first time.  That is better than a heart condition.  Thanks for the input.  Take care...

[sassy12345]

Hi I am a 47 year old female and just had some thyroid testing done. The tsh was 2.59,  FT4 was 0.86, and FT3 if i read it right was eithr 4.1 or 410. but i have extreme symptoms. Hair has thinned extensivly eyes especially on edges extremly cold tired ect. I also use a spray estrogen could you please help was told these were normal i also have a IgA deficiency

[Rasta15]

Yes, my endo. mention a t3 addition if the lower dose does not work.  I am giving it 4 weeks before I consider another dr.  My next visit will be with a rheumatologist.  Thanks for the input.  What is your thoughts on Nutri-West Total thyroid and Nutri West DSF formula?   I have  a friend who says it has helped her a lot.  Thanks..

[Mark Lupo, M.D.]

The TSH levels look okay.
Would consider non-thyroid causes - perhaps a rheumatology evaluation
Thyroid consideration would be combo T4/T3 treatment (ie, add cytomel) but this only helps 10-15% of patients in our experience.