In january of 2007 i developed hyperthyroidism, i was 20.
Elite athlete till that hit me. my TSH was .05 i believe when it started.
Iodine uptake came back close to zero, so i was diag with thyroiditis, silent because no pain.
The hyperthryoidism phase lasted a good 5 1/2 months (took propranlol all during that), followed by hypothyroidism that i have had since then, which was june. My TSH was 16 when i initially dipped into hypothyroidism, they started me off on 25mcg and i made my way up to 100.
Okay now the QUESTION:
After almost a year of being on levothyroixine for hypothyroidism, my doc says i can try going off of it to see if my thryoid has recovered. My first doctor said this would never happen, and i have read that 20% do not recover from silent thryoiditis. My doctor said i could go cold turkey off of my meds. I didn't do that out of fear, and started off may first taking 75 mcg, instead of my normal 100, i did that for 2 weeks, Now i have been taking 50 mcg for a week and i'm starting to feel fatigued and tired, could the 3 weeks of tapering down just now start hitting me, or does it take a while for the thyroid to start going on it's own again.
Is it my body adjusting to no meds? will it take a while for my thyroid to realize it needs to produce on it's own? Should i just go straight off the meds now to jumpstart it or what? Is this a sign that indeed i do need the meds?
Kinda feel doomed
by the way, 6 foot 3 inch, 210 lbs 21 years old
Hopefully i can get an MD on this one, i see they answer some times, i would really appreciate it, seeing that silent thyroiditis is one of the more rare thyroid conditions.
Your research is accurate regarding the natural course of silent thyroiditis. I usually cut the dose in half for 6 weeks retest then try to stop the levothyroxine altogether when pulling patients off meds when stable/recovered from a transient thyroiditis. Only 15-20% will need long-term thyroid meds. It does, however, take several weeks to adjust - so your transitional symptoms are normal.
I had the same problem and had my antibodies tested to learn I also now have hashimotos thyroiditis. You would do well to get checked for this. I also have learned recently I have a vitamin d deficiency. My silent thyroiditis hit me in march 07
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