Desperately in need of help and info...please.

[pinkwings]

Hello Doctor, please help.  I am a 45 yr old female, diagnosed with Hashimoto’s about 6 years ago.  Thyroidectomy about 3 years ago (multi-nodular goiters, thyroid 5x the size) no cancer detected, and hysterectomy 3 months after the thyroidectomy.  As the years have passed, feeling generally ill has turned into a total disabling condition of which, no doc can seem to figure out.  My symptoms are: Internal “shaking”  24/7 (worsens at night and upon awaking) ; constant fatigue; high blood pressure; high triglyceride levels; taste change (used to LOVE sweets, now I hate them); excessive weight gain in middle; abnormal hair growth; acne; take deep breathes often; sensitive to light; skin is very thin; bruise easily; left eye pain,with headache; “episodes” where I lose coordination and all symptoms worsen; tiny red dots over torso, chest, and top of thighs (not raised); mood swings; get VERY dizzy, woozy feeling with weakness, sensitive to any sounds; occasional external shakes; any emotion, good or bad worsens symptoms; exhaustion and fatigue (mostly bedridden); extreme weakness; quick muscle twitches at various parts of body; voice hoarse off and on; low/no libido; incessant appetite; puff up like a marshmallow ; heart  racing most often; often wake up sweating at night; hands and feet lose circulation many nights; I also urinate very little, despite liquid intake changes.  I am on Klonopin for the internal shaking which does nothing to help except help me sleep or calm me some during the shaking.   My tsh levels are normal and I am on Levothyroxine. The only other meds I take are BP (2 kinds), cholesterol, and estrogen.  I use Dramamine regularly for dizziness.  
Vitamin D deficiency six years ago, treated with high prescribed doses of Vitamin D for a few weeks.  I am finally going to a neuro next week, at Stanford Univ.  Please help me with possibilities, things to ask, or tests that should be considered.  

[Mark Lupo, M.D.]

I meant that there is likely nothing more to do from a THYROID standpoint, not that you should give up on the ongoing evaluation into other causes.

[Mark Lupo, M.D.]

Good luck with the ongoing evaluation. If the TSH is normal on levothyroxine, there is not much more to offer from a thyroid standpoint in most cases.