Hyperparathyroidism and HypoT

[sophie50]

I have positive TPO and TGab.  I take Synthroid 62.5 and Cytomel 5mcg daily.  My latest TSH was 0.02 but my FT4 fell to .84 (.58-1.64) and my FT3 is 3.5 (2.3-4.2).  I still feel SO tired and my moods are awful.  My Endo has already tweaked my Synthroid down due to the low TSH even though I am taking Cytomel (which I THOUGHT?? negated the TSH reading).  My PTH is normal at 27 but my serum calcium has been in the 10-10.2 range and my ionized calcium came back high at 1.35 (1.17-1.32).  My Vitamin D is also low between 20-35.  I do not take any Calcium supplements. I am really suffering from hip and thigh bone/muscle pain and feel old before my time.    Any idea what could be causing this?  Thank you.

[val1198]

Sophie, I understand you're juat about out of your mind with this.  I suggest you go to www.pharathyroid.com and send a message to Dr. Norman.  I was going to go to him for the surgery but in the end, they had fooled around with me so much that I was too weak to travel.  Good luck.

[sophie50]

Val, Can you tell me where your calcium and PTH levels were?  My highest calcium is 10.3 (a few times) but PTH only 27.  I wish I could find the literature saying PTH should be down below 10? when calcium is high.  Any info you could give me, to help my cause, would be great!  I know there is a problem....I am just having such a hard time trying to identify it!

Also the massive amounts of ibuprofen I am taking for the hip pain are not helping.  There is nothing showing on the MRI or xrays so I don't have much of an argument to try and ask for some stronger pain relief!  I am just at a loss and so tired of being tired!  I am just not sure which way to turn anymore.  I am always waiting from one month to the next it seems!  And now to wait two more months until the calcium/PTH is tested again just means two more months of misery for me (and my family).  As much as I try to ignore it, it just won't go away!  Sophie

[val1198]

Sounds like what I went through - for 14 years, and 14 years lost with my young children.  I am very angry about what hapened to me.

[sophie50]

I saw the specialist.  My calcium and PTH were checked again.  Calcium 9.9 and PTH 27.  Since they are normal, I was told a sestimibi scan could not be done at this time.  The doctor agreed that since levels fluctuate, they would be tested again....but not for 2 months.  So like I thought, a dead end again.  Just live with whatever it is!  Thank you for all your help! Sophie

[val1198]

Your next step should be a sestimibi scan.

[sophie50]

Well the calcium is still at 10.3.  I had the DXA scan done and all is normal in the hips and even the spine. T score -0.5  I will see this week what the parathyroid doctor has to say although I will probably hit a dead end.

Since my doctor says a lot of people live quite happily with their calcium level in the 10's and not to believe everything I read about humans being happier in the 9's (parathyroid.com).  Would you, Dr. Lupo, be able to tell me approx. what percentage of people have a high calcium level and feel great?  I would leave this alone but I just feel awful and can't find a reason for it...........Thank you.