Aa
sarcoid/thyroid/neuropathy
hi.
my uncle has sarcoidosis. he's about 60. in the past several months, he's developed neuropathy down his legs. they've done scans, bloodwork, checked him for diabetes, etc. all have come back neg. however, his tsh has consistently been 5. the neurologist and gp insist thyroid has nothing to do with his neuropathy.
they've ordered all kinds of mri's (head, back, etc), but they say that the mri's probably won't show anything that's causing the neuropathy and that most neuropathy isn't pinpointed to a direct cause. they have him on a medicine, but so far it isn't helping,
they haven't check thyroid antibodies. do you think they should be going down the thyroid path? doesn't it seem like they should at least check for the thyroid antibodies? anytime my aunt asks about thyroid, they are pretty assertive in saying that the neuropathy isn't from thyroid issues, so she doesn't feel like she can insist on them checking for thyroid antibodies. how does a patient try to persuade a doctor to run a test? just ask for it?
my uncle has sarcoidosis. he's about 60. in the past several months, he's developed neuropathy down his legs. they've done scans, bloodwork, checked him for diabetes, etc. all have come back neg. however, his tsh has consistently been 5. the neurologist and gp insist thyroid has nothing to do with his neuropathy.
they've ordered all kinds of mri's (head, back, etc), but they say that the mri's probably won't show anything that's causing the neuropathy and that most neuropathy isn't pinpointed to a direct cause. they have him on a medicine, but so far it isn't helping,
they haven't check thyroid antibodies. do you think they should be going down the thyroid path? doesn't it seem like they should at least check for the thyroid antibodies? anytime my aunt asks about thyroid, they are pretty assertive in saying that the neuropathy isn't from thyroid issues, so she doesn't feel like she can insist on them checking for thyroid antibodies. how does a patient try to persuade a doctor to run a test? just ask for it?
I have Hashimoto's Thyroiditis with chronically high TPO antibodies, and I have neuropathy. It can also be associated with Celiac Disease and/or Gluten Sensitivity, Pernicious Enema and other autoimmune and neurological disorders. It is not uncommon to have Hashimoto's and other co-autoimmune conditions. They can pile on. Neuropathy is also very common with Diabetes.
A TSH of 5 is not "normal" on some labs. The lab that I go to a 5 is above range. Those reference ranges are way too broad. A healthy person will have a TSH between 1 and 2 and that is where "most" people will be optimal.
Good luck getting a "full thyroid panel" with a conventional doctor. You can try searching for a holisitic MDs or Nurse Practitioner or a Doctor of Osteopath or go to a Naturopath. They are much more open minded about running a full range of tests to get to the root causes.
Good luck!!
A TSH of 5 is not "normal" on some labs. The lab that I go to a 5 is above range. Those reference ranges are way too broad. A healthy person will have a TSH between 1 and 2 and that is where "most" people will be optimal.
Good luck getting a "full thyroid panel" with a conventional doctor. You can try searching for a holisitic MDs or Nurse Practitioner or a Doctor of Osteopath or go to a Naturopath. They are much more open minded about running a full range of tests to get to the root causes.
Good luck!!
MEDICAL PROFESSIONAL
Not likely if normal TSH, T4.
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