Parathyroid issues 3 years POST TT?

[LLV123]

parathyroid failure after 3 years post TT?
by LLV123, 4 minutes ago
Hi, I had TT 3 years ago, had 1 para removed accidentally, 1 re implanted, 2 were "fine" Had low Ca post TT for a few weeks, then ok. Now, 3 years later, had some muscle twitching, had  low ionized Ca {1.09, 1.10, 1.14 after I had infusions for 3 days of IV CA. Serum was ok, not high but low 8's. My endo put me on Calcitriol and said para's are failing. NO WAY!! I showed blood work "pre"  TT and Ca was 8.4 so run lowish. Took Calcitriol for 3 days, asked endo if I could try OTC to raise it, didn't like the Calcitriol, made my eyes even drier, mouth drier, flushed, and nauseated,...he let me try. Ca levels now last 3 weeks, 9.1, 8.5, 8.8. This is on 3,000 oscal, and 2,000 D. he agreed doing good.
Now, my question....IF I had HPT, would I be able to keep my Ca levels in this normal range by myself with OTC Ca and D? OR IF I had HPT, my levels would go down and not stay stable? OR is is "artificially raised" due to so much CA? I am looking for some reassurance here, that I DO NOT have HPT, and that IF I did, my levels would not be this good....so I don't have it. PTH in hospital was 16, but I was on IV Ca, for 3 1/2  days, and saline fluids non stop.
I just don't get all of this....am I way off base here? I am hoping for answer that my para's seem to be working, of course!!  Why would damage occur 3 years later? I have been fine. Saw neuro for EMG which was fine, too. Neuro suggested possibly just benign fasiculations causing twitching.....One more thing, I do not want another 10mm kidney stone, which I had before. And last concern, is all this ca and D SUPPRESSING my para's NOT TO WORK? THAT REALLY CONCERNS ME!!! I want to lower the ca amount SOON hopefully!!
Thank you for your time, I am scared, and have been worried since they admitted me to hospital.
Sincerely,
Lori

[Mark Lupo, M.D.]

The recent calcium levels look ok - would repeat PTH on the OTC oral calcium/vit D and check 25-OH-D as well as kidney function.  This gives good idea of how the treatment is working.  Sounds like you have at least reasonably intact parathyroid function if you are able to keep levels normal with OTC meds only.

[LLV123]

One last concern, does taking the high dose Ca and high dose of D SUPPRESS the para's from working. I have read that it does, that they don't neeed to... and my endo thought no. I still believe it does. I want them to work.
Thank you so much for your invaluable time, and for responding to me. I truly appreciate it.
Lori