Please help my mom! Part 2

[mindersmomof2]

I'm continuing on from my previous post, not enough room. She will not go to any new docs for me or my dad because she thinks she will never find what is wrong. She has been tested for lupus, Aids, autoimmune diseases,
mono, lymes disease, parkinsons, MS, allergies and many more. She has had EEGs, EKGs, MRIs, cat scans, lots of blood work, 24 hour cortisol levels. Alot of her blood tests come back normal high. Some are off but not enough to diagnose. We are helpless, don't know what to do. I really hope someone out there has similar symptoms or a doctor can help us. I wonder if it is chronic fatigue but that is a diagnosis when docs don't know what else it could be! My Dad asked me not to do anymore so we can enjoy her while we have her, he started crying!!  Sorry this is long but please help my mom, someone!

[val1198]

Gather all her medical records and take her to Mayo Clinic.

[Mark Lupo, M.D.]

This is a lot of information -- beyond the scope of this forum.  Would consider a university or mayo-clinic setting for evaluation.   Most pituitary "tumors" are incidental and not likely to contribute and I imagine pituitary hormones have been tested.  Thyroid levels should be stabilized to address that variable.