Hi, I posted once before a couple months ago. This question isn't directly thyroid related, however I would certainly be grateful if you could comment to the best of your ability. 3 years ago I began having a constant headache and a bone tumor was found in the frontal bone of my head. I had a nuclear bone scan and I was diagnosed with monostotic fibrous dysplasia of the skull. The head and neck surgeon who follows my case has always shunned the idea of surgery, eventually though he realized my quality of life is poor due to my constant headache and he told me that he had an idea, to send me to an endocrinologist to be put on bisphosphonate because there was literature to suggest major improvement in symptoms of people with intractable headache/fibrous dysplasia. So, the endo doctor is currently checking my vitamin D and many other things to be sure I'm a candidate for Reclast. I am kind of nervous about it, I mean I trust the doctor however some questions go through my mind.
One specific thing that I had wondered, and I'm sure if I understood the science behind this fully that I wouldn't be worried, but what if the tumor happens to be something else besides fibrous dysplasia and in the small chance the radiologist got it wrong, could for example a calified meningioma become even worse from bisphosphonates? Etc...
Can you comment generally/informally on my case please, if possible?
Thanks