TSH levels

[lorij13]

I was diagnosed with graves in 04. I did the radioactive pill to kill off the thyroid. Since then my numbers are all over the place. I really do not understand what normal numbers are because they will not explain it to me no matter how many times I ask. In Oct. of  09 I was tested and my number was 8.88. Then Dec. I was tested again and my number was 39.5. The end of Jan. I was tested again and my number is 140. I feel horrible, I am always dizzy, don't want to get out of bed, constant migraines, nothing what so ever can touch my throat because it feels like I can't breath. They have me on 200mcg of levothyroxin as of right now. I was on 150. What does this all mean and should I be worried? They told me not to worry because my thyroid is always all over the place but at this time they said I was extremely hypo. Why am I not getting better and keep feeling worse?

[Mark Lupo, M.D.]

you have hypothyroidism due to radioactive ablation of the thyroid.
TSH levels should be 0.5-2.5 on treatment, and if TSH is high, you need more thyroid medication.  A tsh of 140 is very very high and suggests you are not absorbing the medication well.  Would see an endocrinologist to help sort this out as you may need a much higher dose or different type of thyroid medication to help stabilize things.

[lorij13]

Thank you so much for answering my question. I just have one more question for you and that is should I be worried at this time with my numbers being so high? I have an appointment again on the 19th of this month and I am hoping that they do something more this time. I am getting weaker everyday and need more sleep each and everyday.