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Total Thyoidectomy for Substernal Goiter
My TT for substernal goiter is quickly approaching (next Tues, May 16th) and would appreciate any information from those who have gone through this surgery re length of surgery, pain, recuperation period, and any other general information to calm my "frazzled" nerves !!!
Thanks so much!
Thanks so much!
I just spoke with the doctors office. I am so glad you suggested I call because I feel so much better (emtionally).
They said that they don't have blood levels taken earlier then 6 weeks because it is not accurate thryoid levels at this point. They told me it was very common to be so tired. That is it a big adjustment to our bodies. The hormone thing is playing havoc with our bodies, that is why I don't feel like myself. I told them about the unenthusiasm and they said that was common and IT WOULD GET BETTER and that I would be back to my old self again. I told them about the anxiety and they said that can be a side effect of the synthroid. That my body should get used to that. It is adjusting.WOoow, all a big deal. She said it was a big deal what we went threw and people aren't patient with the time it takes to heal. That our bodies need to adjust and we would feel good again.
I feel better knowing this. I knew it all, but it was good to hear it since my friends all ask how I feel and I say "tired" and they say, "still"!!! My appointment to go back it June 5th.
I have a million more questions then!
I took a Relpax and my headache feels a bit better. I am going to work for 2 hours. Hope you are feeling OK today!
They said that they don't have blood levels taken earlier then 6 weeks because it is not accurate thryoid levels at this point. They told me it was very common to be so tired. That is it a big adjustment to our bodies. The hormone thing is playing havoc with our bodies, that is why I don't feel like myself. I told them about the unenthusiasm and they said that was common and IT WOULD GET BETTER and that I would be back to my old self again. I told them about the anxiety and they said that can be a side effect of the synthroid. That my body should get used to that. It is adjusting.WOoow, all a big deal. She said it was a big deal what we went threw and people aren't patient with the time it takes to heal. That our bodies need to adjust and we would feel good again.
I feel better knowing this. I knew it all, but it was good to hear it since my friends all ask how I feel and I say "tired" and they say, "still"!!! My appointment to go back it June 5th.
I have a million more questions then!
I took a Relpax and my headache feels a bit better. I am going to work for 2 hours. Hope you are feeling OK today!
I'm home too! Ditto for just about everything you wrote. I'm a little loopy from the liquid pain medicine, but I just wanted to tell you guys I'm here and sooooooo happy you're ok Carole and I appear to be cancer free as well!! XOXO and big hugs to you three and I will write more soon!
Hi Kamike! It's just you and me here. Those poor girls are in the hospital. I feel bad for them, most likely feeling pretty rotten right now. Hopefully they are doing OK.
I feel so, so. Better I think, just not so good. Do you have alot of energy? I wonder where my energy went. My neck feels a bit better after my massage and I put heat on it last night and took 2 muscle relaxers. It feels like I have a flu in it, all achey and sore, but better then yesterday.
How's your headache? Mine is medium. Worse then mild but not terrible. I am only working a little bit this afternoon.
I could use something fun to do to get me a bit more chipper.
I hope you have a good day and your headache is better.
M
I feel so, so. Better I think, just not so good. Do you have alot of energy? I wonder where my energy went. My neck feels a bit better after my massage and I put heat on it last night and took 2 muscle relaxers. It feels like I have a flu in it, all achey and sore, but better then yesterday.
How's your headache? Mine is medium. Worse then mild but not terrible. I am only working a little bit this afternoon.
I could use something fun to do to get me a bit more chipper.
I hope you have a good day and your headache is better.
M
Hey Maccie - I'm feeling sorry for the other two girls right now too! I hope Carole is home by now and Tia's surgery is over and that she's doing well too!
Sorry to hear you still have the headache, guess what, me too!!!!! Mine is about medium too. I wear the migraine ice patches and that really really helps soothe it for me. When I go out in public I put a bandana around my head and people think I'm trying to start the 80's trend all over again, but you do what you have to do to feel better. I do recommend these ice patches though. How often were you having headaches before the surgery? Mine were completely gone!! It is wonderful that your fusion surgery helped the paralysis in your arm!!!!!! Thank G-d for that!!!!!!!
I talked to my endo. on the phone today. He called with my blood test results. My calcium was fine and my thyroid level was a little on the low side. He said there should be no reason why Armour Thyroid will give me headaches when my levels are low, so he told me to slowly go back up to the 90mg that I should be on w/in a couple of days time instead of 1/2 a dose. So I called the neurologist and left a message with her as to why I'm having headaches. It really makes me think it's our necks though since you're having headaches too!!!!! I go back to the chiro tomorrow.
My energy level isn't so good either. Yesterday was the first time I felt lethargic! Today I'm a little better, but not great - so hopefully increasing the dose will help me with that. When do you go back for blood work? You should call your Dr. and tell him your symptoms b/c it does sound to me like you need more synthroid if your so tired. I also read somewhere yesterday, that a hoarse voice could be a sign of a low thyroid levels. I was searching sights for Armour Thyroid and headaches and I can't remember where I read that, so just a little bit of FYI.
My steri strips came off yesterdy - well 3 of them did so I pulled off the rest. My incision looks great! My surgeon told me to wear Curad Scar Therapy band-aids for 3 weeks. I wore one yesterday, but this morning my neck was so sore! Tight just like you described and very tender, so I'm letting the air get to it. I put some polysporin on it, and will try another Curad later today. What did the surgeon tell you to do for yours?
Well I'm a rambling - hope you feel better - you do need to do something fun! It's my husbands birthday - so I'll be going out to dinner tonight and then right back home to watch the Red Sox game. Being from Vermont, are you a Red Sox fan? I will always be loyal to my Boston teams now matter where I live.
Well I hope your day goes well for you maccie. I hope both our headaches are miraculously gone tomorrow!
I'm looking forward to hearing from Carole and Tia when they feel up to writing!
-Ka
Sorry to hear you still have the headache, guess what, me too!!!!! Mine is about medium too. I wear the migraine ice patches and that really really helps soothe it for me. When I go out in public I put a bandana around my head and people think I'm trying to start the 80's trend all over again, but you do what you have to do to feel better. I do recommend these ice patches though. How often were you having headaches before the surgery? Mine were completely gone!! It is wonderful that your fusion surgery helped the paralysis in your arm!!!!!! Thank G-d for that!!!!!!!
I talked to my endo. on the phone today. He called with my blood test results. My calcium was fine and my thyroid level was a little on the low side. He said there should be no reason why Armour Thyroid will give me headaches when my levels are low, so he told me to slowly go back up to the 90mg that I should be on w/in a couple of days time instead of 1/2 a dose. So I called the neurologist and left a message with her as to why I'm having headaches. It really makes me think it's our necks though since you're having headaches too!!!!! I go back to the chiro tomorrow.
My energy level isn't so good either. Yesterday was the first time I felt lethargic! Today I'm a little better, but not great - so hopefully increasing the dose will help me with that. When do you go back for blood work? You should call your Dr. and tell him your symptoms b/c it does sound to me like you need more synthroid if your so tired. I also read somewhere yesterday, that a hoarse voice could be a sign of a low thyroid levels. I was searching sights for Armour Thyroid and headaches and I can't remember where I read that, so just a little bit of FYI.
My steri strips came off yesterdy - well 3 of them did so I pulled off the rest. My incision looks great! My surgeon told me to wear Curad Scar Therapy band-aids for 3 weeks. I wore one yesterday, but this morning my neck was so sore! Tight just like you described and very tender, so I'm letting the air get to it. I put some polysporin on it, and will try another Curad later today. What did the surgeon tell you to do for yours?
Well I'm a rambling - hope you feel better - you do need to do something fun! It's my husbands birthday - so I'll be going out to dinner tonight and then right back home to watch the Red Sox game. Being from Vermont, are you a Red Sox fan? I will always be loyal to my Boston teams now matter where I live.
Well I hope your day goes well for you maccie. I hope both our headaches are miraculously gone tomorrow!
I'm looking forward to hearing from Carole and Tia when they feel up to writing!
-Ka
I sure hope Carole is doing OK! The nurses are so great, I am sure the drugs are kicking in and hopefully she is comfortable.
Tia, I was the most nervous the night before, but the next morning, I, too, had a calm come over me. I ate real healthy for dinner so I wouldn't feel crummy in the morning with nothing to eat. Nice for you to have the surgery at 7am. I live 1 1/2 hours from the hospital so it is a trip there.
Karmike, so sorry you have that darn headache. Mine is a moderate one. My neck is got really sore yesterday, too. ANd still was this morning . I got a massage today and it feels alot better but it is so stiff. I wonder if it is late effect of the position...who knows. You had asked about my cervical fusion. I had a ruptured disc years ago that was causing paralysis down my arm. That's all gone now, just headaches and neck pain. I had to refill my perscription today. The pharmasists suggested I get the real thing, Synthroid, instead of the generic. I told him about the nausea (which comes and goes) and that I feel lousy. He felt the dr. started me on a low dose, 125, so perhaps that's why I am so tired. So is this what hypo feels like? It's like a don't have any get-up- and -go. People are really complaining about the weather here with all the rain in VT so that probably isn't helping.
I emailed the med-line site and asked about us giving our emails and they said they don't allow that for privacy.
It would be good if we could get to a site that we could do that! I have a ton of questions I could ask the site doctor to start a new thread. Tia, I am sending you a huge hug and lot's of blessings for an easy surgery. Those go out to Carole, too, and Karmike, here's some for your headache to go away!
Tia, I was the most nervous the night before, but the next morning, I, too, had a calm come over me. I ate real healthy for dinner so I wouldn't feel crummy in the morning with nothing to eat. Nice for you to have the surgery at 7am. I live 1 1/2 hours from the hospital so it is a trip there.
Karmike, so sorry you have that darn headache. Mine is a moderate one. My neck is got really sore yesterday, too. ANd still was this morning . I got a massage today and it feels alot better but it is so stiff. I wonder if it is late effect of the position...who knows. You had asked about my cervical fusion. I had a ruptured disc years ago that was causing paralysis down my arm. That's all gone now, just headaches and neck pain. I had to refill my perscription today. The pharmasists suggested I get the real thing, Synthroid, instead of the generic. I told him about the nausea (which comes and goes) and that I feel lousy. He felt the dr. started me on a low dose, 125, so perhaps that's why I am so tired. So is this what hypo feels like? It's like a don't have any get-up- and -go. People are really complaining about the weather here with all the rain in VT so that probably isn't helping.
I emailed the med-line site and asked about us giving our emails and they said they don't allow that for privacy.
It would be good if we could get to a site that we could do that! I have a ton of questions I could ask the site doctor to start a new thread. Tia, I am sending you a huge hug and lot's of blessings for an easy surgery. Those go out to Carole, too, and Karmike, here's some for your headache to go away!
Ok...so Carole is hopefully done with her surgery right now and comfortable and resting. I said prayers for her and I know you ladies did too. I just came on to say thank you to the two of you for helping me this week. It really means a lot to have experienced people let you know first hand what it's going to be like. I can't wait to be able to tell you both all about it. I also can't wait to hear from Carole and see how she's making out. I got my time for surgery...7am. So I need to be there an hour before. I'm glad it's early. I don't want to sit around waiting tomorrow. Hopefully I'll still be so sleepy I won't notice what's happening...lol.
Thanks again to the two of you. Having this discussion going this week was perfect and I would love to continue to chat and stay in touch. Hugs to you all!!! XOXO Tia
Thanks again to the two of you. Having this discussion going this week was perfect and I would love to continue to chat and stay in touch. Hugs to you all!!! XOXO Tia
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