low TPO and Antithyroglobulin

[hpygrl]

I had RDI several years ago and have been fighting with meds since then.  If my T3 gets too high, then so do I.  I have extreme leg pain with some meds.  I just got test results back today that show TPO at less than 10 normal is 0-34, and my Antithyroglobulin is less than 20, normal being 0-40.  Is this a good thing or a bad thing.  My doctor only wants to look at my TSH level which is more than 150.0 normal being 0.350-5.500.  Can anyone shed any light on this. I've been looking online but can't find anything about low readings where these two tests are concerned.

[Free Bird82]

Hello!  I'm also glad to hear that you are seeing a doctor you feel comfortable with.  The doctors sometimes do not tell people anything, & we have to "research" on our own.  I actually was NEVER told what the symptoms of hypothyroidism were.  I even told my Endocrinologist of my "lightheadedness" symptoms that came on at the same time my TSH was rising.  I asked him if it was related, & he said he doesn't have a clue what that's from.  Now, eveywhere I read, & nurses, etc. have ALL said this is a very common symptom (brain fog....).

Anyway, just a thought:  Is it possible that your cramps are not due to the meds, but due to the thyroid issue?  That, too is a symptom that I had to read on the thyroid websites to find out about.  I thought mine were from working out too much and not properly stretching!  I got very bad leg cramps for a while before I was on meds, also for only a short while (5 days at most) when increasing doses, however, thankfully the leg cramps subside.

Good Luck to you....I hope & pray that you find the help you need to live a good & healthy life.

[hpygrl]

Thank you for the kind words.  I have been struggling with this for 2 years.  I have strong reactions to the regular thyroid medications.  I have tried them all, I have extreme leg cramps, cramps in my toes, just plain aches in my thighs, and a large amount of saliva when I take the regular meds.  I have gone to compounded formulas which were working very well until my T3 got too high and that causes me to feel like I'm on speed, then I back off too far, and as you see my test results go bad.  It's been such a struggle but I think I finally have a handle on what to do.  I have been to 4 or 5 specialists in my area and none believe that I have these horrible reactions to the meds.  I am now working with a doctor who is willing to work with me and the compounded meds.  I have no adverse reactions with the compounds with the exception of the T3 issue, but I think that can be controlled with closer monitoring. 3 years into this and still working it out.  I will keep you posted.  Thanks again.

[EspritLibre]

How on earth do you function with a TSH of 150?  You poor thing.  Is your hair breaking?  Are you tired? Overweight? Wow!!  I feel so bad for you.  Please listen to the forum doctor & see a specialist ASAP!  Keep us posted & good luck to you!!

[Mark Lupo, M.D.]

The low antibodies are probably a good thing.  Why is your TSH so high -- sounds like you are not on enough (?any) thyroid medication.  I would see a thyroid specialist to get this straightened out.