Aa
1 hour north of syracuse ny, in need if a highly recommended endocrinologist
45 years old, total thyroidectomy.
My thyroid treatment /status is really taking control of my entire life. Im struggling with MOODS, headaches, fatigue, body aches, just to name a few.
I feel like i no longer am in control, need help.
My thyroid treatment /status is really taking control of my entire life. Im struggling with MOODS, headaches, fatigue, body aches, just to name a few.
I feel like i no longer am in control, need help.
I'd like to start by re-emphasizing that hypothyroidism involves much more than just T4. Hypothyroidism results from insufficient T3 effect in tissues throughout the body, due to inadequate supply of, or response to, thyroid hormone. With only a Total T4 and a TSH test you and your doctor cannot adequately determine what is causing your lack of tissue T3 effect. Total T4 is a measure of all T4 in your blood. Most of that is bound to protein and thus biologically inactive. Only the very small portion that is free of protein, called Free T4 is active. So you need to always test for Free T4 (and Free T3), not Total T4 and Total T3 whenever you go for tests.
Many hypo patients taking T4 med find that their body is not adequately converting T4 to T3. Since we need to assess Tissue T3 Effect, you have to know Free T3 level. For Free T3 to be used in tissues throughout the body, it also has to be transported into cells. There are a number of variables that can affect transport. The best test to assess for adequate tissue thyorid is the Reverse T3 test (RT3). An RT3 test should always be done in conjunction with with a Free T3 test to enable calculation of a FT3 to RT3 ratio.
In addition cortisol should be tested due to its effect on thyroid hormone. As well, Vitamin D, B12 and ferritin are very important. So all of these need to be tested in order for us to really understand what is going on with you.
If you are at an age where you are starting to have hormonal changes, then you should also get the doctor to test for estradiol and Free Testosterone.
If you want ot confirm what I say and also be able to persuade your doctor, I highly recommend reading at least the first two pages of the following link, and more if you want to get into the discussion and scientific evidence for all that is recommended.
http://www.thyroiduk.org/tuk/TUK_PDFs/The%20Diagnosis%20and%20Treatment%20of%20Hypothyroidism%20%20August%202017%20%20Update.pdf
When you have additional test results, please post them along with reference ranges shown on the lab report and we will be happy to help interpret and advise further.
Many hypo patients taking T4 med find that their body is not adequately converting T4 to T3. Since we need to assess Tissue T3 Effect, you have to know Free T3 level. For Free T3 to be used in tissues throughout the body, it also has to be transported into cells. There are a number of variables that can affect transport. The best test to assess for adequate tissue thyorid is the Reverse T3 test (RT3). An RT3 test should always be done in conjunction with with a Free T3 test to enable calculation of a FT3 to RT3 ratio.
In addition cortisol should be tested due to its effect on thyroid hormone. As well, Vitamin D, B12 and ferritin are very important. So all of these need to be tested in order for us to really understand what is going on with you.
If you are at an age where you are starting to have hormonal changes, then you should also get the doctor to test for estradiol and Free Testosterone.
If you want ot confirm what I say and also be able to persuade your doctor, I highly recommend reading at least the first two pages of the following link, and more if you want to get into the discussion and scientific evidence for all that is recommended.
http://www.thyroiduk.org/tuk/TUK_PDFs/The%20Diagnosis%20and%20Treatment%20of%20Hypothyroidism%20%20August%202017%20%20Update.pdf
When you have additional test results, please post them along with reference ranges shown on the lab report and we will be happy to help interpret and advise further.
Gimel,
Till i can get my most recent lab results this is what i have available. T4 10.3 and tsh 0.052 prior to that one t4 3.5 and tsh 95.130
That's while taking 175mcg levothyroxine daily.
TT was done 8/2013 and i have not (my opinion) been regulated correctly since.
I was dx hyperthyroid (very hyper) when i was 14. Never medicated, dr said i would out grow it, (ha ha, not).
As i aged, now an adult, new dr my thyroid kept growing causing the dr to ask questions. It was normal to me, that was all i knew my whole life, i thought that is what everyone felt, ya know, this hugh lump in my neck. Well that was not normal. After years of countless needle biopsys all insufficient specimens i felt like a pin cushion and my endocrinologist said, your young dont worry about it. So i went on like i was told, dont worry about it.10 years later i went back to my endo, another needle biopsy a goiter so massave it was closing off my esophagus, (she said my espohagus looked like a camels back),now my endo wanted to show concern.
Went back for results, my endo didnt even deliver the news but rather sent in her assistant, just to say, you need to see a surgon right away, it looks like you may have cancer. From there, i quickly was scheduled, thyroid removed. Surgeon said he could not tell me with a clean conscience that it was not cancer because the cells were undergoing changes, but he tried to assure me that i would never have thyroid cancer from here on out because he removed it all. I was numb, still am.
And here i am now, feeling like crap every day. Heaver than i have ever been in my life, migraines now, wjicj i never used to get, cold, hot flashes, tired all the time. If i get sick it takes forever to recover. Moods, im a raging mean, crying basket case. My list just goes on and on. I dont feel like i am in my own skin.
I have a hard time wrapping my head around it. Its starting to take its toll on my partner. I dont want to push him away and yet i see i am. Please help
Till i can get my most recent lab results this is what i have available. T4 10.3 and tsh 0.052 prior to that one t4 3.5 and tsh 95.130
That's while taking 175mcg levothyroxine daily.
TT was done 8/2013 and i have not (my opinion) been regulated correctly since.
I was dx hyperthyroid (very hyper) when i was 14. Never medicated, dr said i would out grow it, (ha ha, not).
As i aged, now an adult, new dr my thyroid kept growing causing the dr to ask questions. It was normal to me, that was all i knew my whole life, i thought that is what everyone felt, ya know, this hugh lump in my neck. Well that was not normal. After years of countless needle biopsys all insufficient specimens i felt like a pin cushion and my endocrinologist said, your young dont worry about it. So i went on like i was told, dont worry about it.10 years later i went back to my endo, another needle biopsy a goiter so massave it was closing off my esophagus, (she said my espohagus looked like a camels back),now my endo wanted to show concern.
Went back for results, my endo didnt even deliver the news but rather sent in her assistant, just to say, you need to see a surgon right away, it looks like you may have cancer. From there, i quickly was scheduled, thyroid removed. Surgeon said he could not tell me with a clean conscience that it was not cancer because the cells were undergoing changes, but he tried to assure me that i would never have thyroid cancer from here on out because he removed it all. I was numb, still am.
And here i am now, feeling like crap every day. Heaver than i have ever been in my life, migraines now, wjicj i never used to get, cold, hot flashes, tired all the time. If i get sick it takes forever to recover. Moods, im a raging mean, crying basket case. My list just goes on and on. I dont feel like i am in my own skin.
I have a hard time wrapping my head around it. Its starting to take its toll on my partner. I dont want to push him away and yet i see i am. Please help
Absolutely. Thank you for you speedy responses.
I will update when i have the lab reports.
Again thank you
I will update when i have the lab reports.
Again thank you
4 Comments
Denyrae
Hi! I am an 11/2 hours north of Syracuse, NY, maybe I can help. PM me.
Hi! I am an 11/2 hours north of Syracuse, NY, maybe I can help. PM me.
I am sorry for all you are going through, been there done that! We need to see your labs. This group has been extremely helpful to me through the years, Barb and Gimel especially! This is the first time here for me in 2 years, had problems signing in. I really need to give an update!
Don't lose hope, it can and will get better! You need a competent DR.
Please do update us on your status.
Just because your test results are within the "normal' range does not mean they are optimal for you. Even without more information I would be suspicious that you are not adequately converting all that T4 to T3. Since hypothyroidism is due to "insufficient T3 effect in tissue throughout the body, due to inadequate supply of, or response to, thyroid hormone" you can see that having adequate T3 is very important.
The first thing I suggest is to get a copy of your lab results and post results and reference ranges shown on the lab report, so we can help interpret and advise further. If you have any trouble with that, if you are in the U.S. you can remind the doctor's office that there is legislation requiring that you be given a copy upon request. Can you get that done?
The first thing I suggest is to get a copy of your lab results and post results and reference ranges shown on the lab report, so we can help interpret and advise further. If you have any trouble with that, if you are in the U.S. you can remind the doctor's office that there is legislation requiring that you be given a copy upon request. Can you get that done?
TT August 2013, Currently taking 175mcg levothyroxine. Started on 125mcg directly after surgery and has increased since then.have been on 175mcg mow for over a year.
I do not have my levels, my dr does not give them to me, she just tells me if they are normal or not. She is my gp, i do not have a specialist. Long story.
This emotional roller coaster is torture, and taking its toll on my relationship now.
I do not have my levels, my dr does not give them to me, she just tells me if they are normal or not. She is my gp, i do not have a specialist. Long story.
This emotional roller coaster is torture, and taking its toll on my relationship now.
1 Comments
My levels have all come back within normal rage, when i bring up my concerns, they are not addressed, im just told rhis is all normal. This cant be normal..
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