Good thing you only asked for my *thyroid* issues :-)
08/03: found thyroid nodule on unrelated CT scan
09/03: ultrasound showed complex nodule with irregular margins
11/03: Rt thyroidectomy (papillary carcinoma 5mm)
Three sisters with papillary carcinoma, one with precancer and daughter with precancer all diagnosed between 12/03 and 12/04
12/04: Left thyroidectomy (benign)
11/06: 100mCi of RAI (TSH and Tg stable for years then began to climb.) "significant" uptake in thyroid bed.
11/07: I-131 uptake scan showed small amount of uptake in thyroid bed and some in my head.
11/07: MRI showed "nothing significant" in my head (yeah, sounds about right) - will have to have another I-131 scan next year to see if still having uptake in head
Synthroid: .15 TSH 0.9 Tg <.4
Good thing - scar looks good. (hey, looking for *some* bright spot out there other than the ones on my uptake scan)
Lets see: Had my first blood panel done in May 2007 thinking maybe I was heading into perimenopause. Nope!
August 2007: 2nd blood panel: Official dx of Grave's disease by my pcp. Referral given for thyroid ultrasound
Sept. 2007: 1st Ultrasound: my thyroid is enlarged and have 2 nodules, multiple cystic and solid lesions. (Sorry, can't find report for measurements."
Oct. 2007: Radioactive Iodine uptake scan. Of course, it showed my thyroid taking up TOO much thyroid. Referral to endocrinologist.
Nov. 2007: Appt. with endo, scheduled f/u ultrasound.
12/4/07: 2nd ultrasound. My thyroid is now: left lobe, 5.2 x 2.0 x 2.3 cm; right lobe, 5.3 x 1.9 x 2.1 cm. Isthmus is 0.6 (was 0.5 on last u/s) I know my left lobe has grown.
Now: waiting for my endo to get back from winter vacation and refer me to an ENT surgeon for TT...hopefully the end of Jan/early Feb.
My last labs were Thyroid Peroxidase Antibodies 167 (Ref <35) HIGH
Free T4: 3.0 (Ref. 0.81-8 mg/dl) HIGH
TSH <0.01 LOW
Free T3: 793 (Ref. 230-420) HIGH.
The endo did tell me med. tx was NOT for me, that I needed to decide on TT or RAI to kill off my thyroid. I'm going with TT cause of the nodules and how the RAI won't kill those off.
Oh, I did forget to mention my PCP put me on Tapazole until I can see the endo again due to the palpitations getting worse. He did tell me it was "only temporary until surgery is scheduled"...and thats what the pharmacist told me, too.
I was put on Tapazole when I went into thyroid storm following my RAI. Good stuff 'cause those palpitations and my out of control BP were getting frightening. I was only on it for about 2 months until my TSH came back under control.
Tapazole helped your BP?? My BP just seems to get higher and higher...and it SCARES me. I'm usually in the 115-120/72 range...my last BP reading was 145/87. Nice to know it will help with that, too. WHEW!
Yeah, my BP was something/111 when I went to the ER. Scary! I've never been taken from triage to a treatment room so quickly! Being hyper can really mess with your BP. Do you have a BP cuff at home??
Was diagnosed with Hurthle cell follicular cancer 3.5 cm when I had a partial thyroidectomy on 11/30/07. Just had the completion thyroidectomy on 12/21/07. Still waiting for that pathology report. I am on Cytomel 25 mg twice per day waiting for scheduled RAI in mid February. I'm still trying to recover from the shock.
I understand about the shock. "Cancer" didn't really sink in for me until about a year later. Hang in there and lean on us!!
Do you have a BP cuff at home??
Somewhere...LOL. I was an EMT volunteer at Dixie Regional (another IHC) MAAAANY moons ago....HAHA. I found my cuff the other day but I"m not sure if its still good or not: its been in the garage and the summer temps here get 110+ EVERY DAY. I can't use the bp machines in the stores either due to the arterial graft done on my left arm and they all sit you using your left arm.
When I had my thyroid storm I ran to Walgreens and plunked down about $50 for one - works on either right or left arm (none of that sissy wrist stuff). Yeah, with 110+ heat I'm sure the rubber on your BP bulb is trashed. Dixie Regional - wow, you do know about IHC! Some of us call IHC the Utah Healthcare Mafia (no offense to the mafia intended). They *are* getting better though. Hey, they even covered my thyrogen shots this year.
Oh, if they are listening: Love you IHC. :-)
I'm new to all of this, so I'm not sure of all the correct terms yet. However, I will throw in my two pennies.
9-21-07 wen't to my pcp for my complete physical- TSH 0.07 which started the ball rolling. PCP called me back for 2nd set of testing.
10-2-07 T-4 Free 1.5
T-3 Free419............referred to endo dr.
Endo Dr. wanted another set of blood work and U/S & 24 hour uptake and scan
11-21-07 24 hour uptake and scan results: 24hour uptake measure 36.7%.
11-27-07 Thyrodlbulin antibodies <20
Thyroid Peroxidase <10
T-3 Total 185
T-3 Uptake 34
T-4 Total 10.1
Free T-4 Index 3.4
TSH 0.06...............next step U/S
12-5-07 Can't find complete reading: this is partial
0.6 cm right thyroid nodule
0.8 cm hypoechoic nodule left of isthmus
Left lobe no nodule
12-12-07 back to Endo Dr. for follow up. Give prescription for atenelol and RAI. advise that once the cells are killed. I will be on meds (probably) for the rest of my life.
12-27-07 18mci (millicures) RAI I-131
1-23-08 to Endo Dr. for follow up.
ok to start with i feel heaps sorry for those of you who have or have had cancer, i hope you are all better and on your way to getting better!
i just have hashimotos thyroiditis.
no idea what my tsh is - i think its round 1 (and i feel great-ish), and my dosage is 12.5mcg (small i know - but i sure go hypo if i dont take it - and way too hyper if it take more!)
im trying to increase awareness for people who only need a small amount of medication (i started on four times what im on and was really sick) because there are probably people out there whose lives would be much better with a little bit of meds but who cant take the higher dosage (so probably dont take any at all)!