So what is the full names?, you have only posted the acronym's of the AACE and ATA. FTB4
AACE is American Association of Clinical Endocrinologists
ATA is American Thyroid Association
Thank you so much for commenting on the AACE Facebook page. Every voice of dissent against their guidelines adds to the momentum for better care for all thyroid patients. I really appreciate you taking the time.
Dear MedHelp members, if you have not added your voice to patient discontent and concern over the AACE focus on TSH as the only appropriate diagnostic tool and T4 as the appropriate treatment for hypothyroidism, please consider doing it if you have a Facebook account. The vigorous protest continues on their page and there are many personal stories of bad or inappropriate care that, if you had any doubt, will confirm your suspicion that your care is substandard, your symptoms real, and that you are not alone in being kept in ill health.
To tell your own story, or simply to protest against AACE guidelines, go to the Facebook page "American Association of Clinical Endocrinologists," "LIKE" the page (which gives you the ability to comment on the public forum) and then choose ANY recent post by the AACE that concerns thyroid issues and comment upon it. You cannot start a separate thread by making your own post, AACE has discontinued this function. But you will find many comments full of personal stories, science links, and general protest underneath each thyroid post. This is also true of the American Thyroid Association's page, to a somewhat lesser extent, since they follow along at the heels of the AACE guidelines like a personal dog, though due to patient protest their Spring Symposium will consider our concerns over alternate treatment beyond Synthroid/T4 only. Normally the AACE page focuses on Diabetes, so this is our moment.
Please consider, during National Thyroid Awareness month, in helping to change the system we all know is not working for us by adding your voice for change.
Have always avoided any connection to Facebook, but after your post, I joined (for now, LOL) and posted my thoughts for the AACE to consider. Thanks for bringing it to our attention.
I posted on it the same day you put this thread up.
I just posted as well- thanks! I hope it helps...
Thanks to all who posted on the AACE Facebook page. For others who wish to participate, please consider contacting the AACE by mail or email. You might contact ATA as well
ThyroidChange.org is now trying to put together a Public Service Announcement (PSA) about reliance on TSH testing and the consequences to patients. You may have seen similar ones on TV about bullying, say no to drugs, other issues. I very much hope this comes to fruition.....we have all suffered from inadequate care for far too long.
Gimel, I sent you a PM.
That's odd, it's marked as sent in my inbox ??? It was a response to your PM, which I didn't know you'd sent on the 13th, until yesterday. Whuttup w/ MedHelp notifications ? Could you check your inbox again ? If it's not there, I'll send it again.
I got it. Thanks. I misunderstood and thought you had sent another PM.