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Chronic thyroidistis and hyperthyroidism
My health has been gradually deteriorating for the last 2 years. A year and half ago I had a thyroid ultra sound which discovered some simple cysts and thyroiditis. I was told this have nothing to do with my general unwellness.
I have recently had some blood test that showed a hyperthyroidism and again a ultrasound which showed thyroiditis a few cysts and an ill-defined hypoechic area in the lower poles of both sides of my thyroid. I am currently takin anti-inflammatories and beta blockers for this.
I'm 30 years old and have maintained an unintended weight loss of 5kgs over the last year.
I have repeated intestinal problems with a bowel obstruction earlier in the year due to nodular adhesions that required emergency surgery.
I also had endometrial hyperplasia which initially I was told I was too young to have, biopsies came back bengin.
I also has a sludgy gallbladder and a 13mm ipmn cyst/tumour on my Pancrease , it was also discovered that I have cervical spondlyosis.
I'm currently taking a combination of beta blockers , anti anxiety and antinflammatories.
I have numbness in my extremities but have been told my spine is not damaged enough to cause this. I'm generally anxious and shaking I have fevers and headaches. My lips often go blue and my hands bright red. I'm extremely tired always.
I'm concerned that not only do I feel terrible but I keep getting diagnosed with symptomatic conditions. No doctor has told me why this is happening or how to stop it. My thyroid hormones were normal up until 2 months ago so Drs kept telling me my thyroid is fine. I've seen 3 endocrinologists now with no real success.
I am young but don't feel it anymore. I don't drink nor do I smoke as both of these make me bed ridden in the smallest dose.
Should I see another endocrinologist? Is the ill-defined area on my thyroid something that should be looked at further? My current endocrinologist doesn't think so.
I have recently had some blood test that showed a hyperthyroidism and again a ultrasound which showed thyroiditis a few cysts and an ill-defined hypoechic area in the lower poles of both sides of my thyroid. I am currently takin anti-inflammatories and beta blockers for this.
I'm 30 years old and have maintained an unintended weight loss of 5kgs over the last year.
I have repeated intestinal problems with a bowel obstruction earlier in the year due to nodular adhesions that required emergency surgery.
I also had endometrial hyperplasia which initially I was told I was too young to have, biopsies came back bengin.
I also has a sludgy gallbladder and a 13mm ipmn cyst/tumour on my Pancrease , it was also discovered that I have cervical spondlyosis.
I'm currently taking a combination of beta blockers , anti anxiety and antinflammatories.
I have numbness in my extremities but have been told my spine is not damaged enough to cause this. I'm generally anxious and shaking I have fevers and headaches. My lips often go blue and my hands bright red. I'm extremely tired always.
I'm concerned that not only do I feel terrible but I keep getting diagnosed with symptomatic conditions. No doctor has told me why this is happening or how to stop it. My thyroid hormones were normal up until 2 months ago so Drs kept telling me my thyroid is fine. I've seen 3 endocrinologists now with no real success.
I am young but don't feel it anymore. I don't drink nor do I smoke as both of these make me bed ridden in the smallest dose.
Should I see another endocrinologist? Is the ill-defined area on my thyroid something that should be looked at further? My current endocrinologist doesn't think so.
Thanks!
I think what has stumped my doctor most is the fact I've had the thyroidistis or so long,
She's said to me, it's rarer to have occurrences. The last longer than a few months and that chronic sufferers would have the thyroid removed in these rare cases...
I think what has stumped my doctor most is the fact I've had the thyroidistis or so long,
She's said to me, it's rarer to have occurrences. The last longer than a few months and that chronic sufferers would have the thyroid removed in these rare cases...
1 Comments
So a few auto correct errors there. The dr said it's rare to have occurrences that last longer than a few months or for reoccurrences to happen
I know little about de Quervain's, but following is some useful info I found about it.
"De Quervain's thyroiditis (also called subacute or granulomatous thyroiditis) was first described in 1904 and is much less common than Hashimoto's thyroiditis. The thyroid gland generally swells rapidly and is very painful and tender.
The gland discharges thyroid hormone into the blood and the patients become hyperthyroid; however, the gland quits taking up iodine (radioactive iodine uptake is very low), and the hyperthyroidism generally resolves over the next several weeks.
Patients frequently become ill with fever and prefer to be in bed.
Thyroid antibodies are not present in the blood, but the sedimentation rate (which measures inflammation) is very high.
Although this type of thyroiditis resembles an infection within the thyroid gland, no infectious agent has ever been identified, and antibiotics are of no use.
Treatment is usually bed rest and aspirin to reduce inflammation.
Occasionally cortisone (steroids, which reduce inflammation) and thyroid hormone (to "rest" the thyroid gland) may be used in prolonged cases.
Nearly all patients recover, and the thyroid gland returns to normal after several weeks or months.
A few patients will become hypothyroid once the inflammation settles down and therefore will need to stay on thyroid hormone replacement indefinitely.
Recurrences are uncommon."
This info about thyroid antibodies not being present doesn't seem to fit for you. Also, note that "the hyperthyroid phase usually resolves it self in several weeks or months."
So, if it is de Quervain's, it sounds like you are being treated and the hyper phase should be over soon. If not tested for SED rate, that might be a good idea, along with the TSI test for Graves' Disease. I mention the latter just because of its association with hyperthyroidism.
"De Quervain's thyroiditis (also called subacute or granulomatous thyroiditis) was first described in 1904 and is much less common than Hashimoto's thyroiditis. The thyroid gland generally swells rapidly and is very painful and tender.
The gland discharges thyroid hormone into the blood and the patients become hyperthyroid; however, the gland quits taking up iodine (radioactive iodine uptake is very low), and the hyperthyroidism generally resolves over the next several weeks.
Patients frequently become ill with fever and prefer to be in bed.
Thyroid antibodies are not present in the blood, but the sedimentation rate (which measures inflammation) is very high.
Although this type of thyroiditis resembles an infection within the thyroid gland, no infectious agent has ever been identified, and antibiotics are of no use.
Treatment is usually bed rest and aspirin to reduce inflammation.
Occasionally cortisone (steroids, which reduce inflammation) and thyroid hormone (to "rest" the thyroid gland) may be used in prolonged cases.
Nearly all patients recover, and the thyroid gland returns to normal after several weeks or months.
A few patients will become hypothyroid once the inflammation settles down and therefore will need to stay on thyroid hormone replacement indefinitely.
Recurrences are uncommon."
This info about thyroid antibodies not being present doesn't seem to fit for you. Also, note that "the hyperthyroid phase usually resolves it self in several weeks or months."
So, if it is de Quervain's, it sounds like you are being treated and the hyper phase should be over soon. If not tested for SED rate, that might be a good idea, along with the TSI test for Graves' Disease. I mention the latter just because of its association with hyperthyroidism.
There may well be additional issues, but your test results show hyperthyroidism. Your Free T3 was over the range in the August test results, and your Free T4 is now over the range in latest results. Along with that your TSH is below the range, consistent with having excessive levels of Free T4 and Free T3. As Barb previously suggested, "You should also have been tested for, both Hashimoto's Thyroiditis and Graves Disease. Graves is the most common cause of hyperthyroidism, however, it's quite common to have periods of hyperthyroidism, in the early stages of Hashimoto's, also." I think your doctor is overdue on testing you for both of those. The three tests involved are TSI for the Graves' and TPO ab, and TG ab if the TPO ab test is negative.
2 Comments
Thank you for your help gimel, I have managed to find the following results... I really don't understand what they mean honestly, any help is greatly appreciated
CRP Serum C-reactive Protein
1> ( range 0-10) in January 2016 and march 2015
9mg (range 0-10) as of August 2016
August 23rd 2016
Anti-thyroid Peroxidase TPO:
31 (range <60)
Anti-thyroglobulin :
<20 (range <60)
CRP Serum C-reactive Protein
1> ( range 0-10) in January 2016 and march 2015
9mg (range 0-10) as of August 2016
August 23rd 2016
Anti-thyroid Peroxidase TPO:
31 (range <60)
Anti-thyroglobulin :
<20 (range <60)
I should also mention The investigations happened this August due to a pain in the front of my neck.. I have never had this before despite having thyroiditis detected in Feburary 2015
here are my Ultrasound results
My ultrasound Feburary 2015 concludes: "a couple of cysts are seen in the right, a single on the left between 2mm a to 3mm, present at upper and mid right, mid-to-lower left thyroid, no suspicious thyroid nodules, increased vascularity of the thyroid suggests underlying thyrotoxicosis/ thyroiditis."
My ultrasound from August 2016 concludes:
" Mildly heterogenous thyroid parenchyma with norma vacularity, Ill-defined areas of hypoechogenicity present in the lower poles on both sides, the appearances may be consistent with that of subacute de quervain's thyroiditis"
"left lobe of the thyroid measures 50x 17.5 x 15mm and is heterogenous with normal vascularity. Ill-defined area of hyoechogenicity is demonstrated in the loer pole measuring 19x 10x 11mm. The isthmnus measures 4.9mm in thickness with a small colloid cyst measuring 3mm. lymph nodes norma"
here are my Ultrasound results
My ultrasound Feburary 2015 concludes: "a couple of cysts are seen in the right, a single on the left between 2mm a to 3mm, present at upper and mid right, mid-to-lower left thyroid, no suspicious thyroid nodules, increased vascularity of the thyroid suggests underlying thyrotoxicosis/ thyroiditis."
My ultrasound from August 2016 concludes:
" Mildly heterogenous thyroid parenchyma with norma vacularity, Ill-defined areas of hypoechogenicity present in the lower poles on both sides, the appearances may be consistent with that of subacute de quervain's thyroiditis"
"left lobe of the thyroid measures 50x 17.5 x 15mm and is heterogenous with normal vascularity. Ill-defined area of hyoechogenicity is demonstrated in the loer pole measuring 19x 10x 11mm. The isthmnus measures 4.9mm in thickness with a small colloid cyst measuring 3mm. lymph nodes norma"
Were those T3 and T4 test Total T4 and T3, or Free T4 and T3? Also, what were the ranges shown on the lab report?
1 Comments
Yes the results are for free t3 and free t4
Tsh range 0.50 - 4.0
Free t4 10.0- 19.0
Free t3 3.5 - 6.5
Tsh range 0.50 - 4.0
Free t4 10.0- 19.0
Free t3 3.5 - 6.5
Thanks I haven't had b12, vit d or cortisol tested to the best of my knowledge.
In August my
tsh was 0.07 , t3 7.3 t4 17.2
this change the following week to
tsh 0.02 and t4 22.3
I havent been given further results but have had tests fortnightly since and have been told stayed at the same level
In August my
tsh was 0.07 , t3 7.3 t4 17.2
this change the following week to
tsh 0.02 and t4 22.3
I havent been given further results but have had tests fortnightly since and have been told stayed at the same level
COMMUNITY LEADER
What are your actual thyroid hormone levels? Your doctor should have tested you for Free T3, Free T4 and TSH. You should also have been tested for, both Hashimoto's Thyroiditis and Graves Disease. Graves is the most common cause of hyperthyroidism, however, it's quite common to have periods of hyperthyroidism, in the early stages of Hashimoto's, also.
If you have actual results for any of those tests, please post them, along with reference ranges, which vary from lab to lab and have to come from your own reports. Once we see those, we'll be able to tell you more.
If you have actual results for any of those tests, please post them, along with reference ranges, which vary from lab to lab and have to come from your own reports. Once we see those, we'll be able to tell you more.
Not sure how much help we can be, but at least please post your thyroid related test results and reference ranges shown on the lab report. Also, if tested for Vitamin D, B12 and cortisol, please post those as well.
2 Comments
Thanks I haven't had b12, vit d or cortisol tested to the best of my knowledge.
In August my
tsh was 0.07 , t3 7.3 t4 17.2
this change the following week to
tsh 0.02 and t4 22.3
I havent been given further results but have had tests fortnightly since and have been told stayed at the same level
In August my
tsh was 0.07 , t3 7.3 t4 17.2
this change the following week to
tsh 0.02 and t4 22.3
I havent been given further results but have had tests fortnightly since and have been told stayed at the same level
Also, since I was 16 years old my TSH has been intermittently low, but T4 and T3 have remained in normal ranges
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