I did RAI as surgery was too dangerous at the time with uncontrollable high levels for a year with anti-thyroid meds.
I had thyroid storm (atrial fib.) 3 times in 2 weeks which prompted the Doc to want RAI done. 2 days before RAI, it was found I had the whole of the thyroid cancerous so 3 months after RAI, I had keyhole TT done from under the armpit.
Your TSH will never budge much while you have a thyroid and Graves.
My TSH never budged until I had RAI and went hypo 5 weeks later when it was over 7.0.
Do I regret RAI? NO
If I didnt have it done...I wouldnt be here, I would be dead.
Now I lead a near to normal life....have got my levels pretty good with thyroxine and am back at work doing nursing.
I still get the odd ocassion where I go med induced hyper or hypo but believe me...the symptoms are no way near as bad as before RAI.
I lead a happy life now and the only regret I have is.......I didnt have RAI sooner.
I was a total mess....and even threatened the Doc to get the butcher to take the thyroid out if he didnt help me lol.
Graves Rage! lol
Hyperthyroidism is very hard to control with Graves and can be very dangerous.
Learn all you can about the condition as you will most probably HAVE to have RAI or TT.
Once the thyroid is gone...the antibodies cannot attack the thyroid.
Graves usually goes into remission.
Prior to RAI my antibody level was over 4000 (yes four thousand) ....at last testing, it was under <30 (normal).
Look at the pic in my profile of me in the pink top then look of the pic of me now (2 years later)
BIG DIFFERENCE.
Prior to RAI,,,,, I EXISTED.
Now I LIVE :)
I hope that helps you.
I was diagnosed with Graves Disease in Oct. 2009. I have been on varying
amounts of Methimazole with my T3 and T4 levels in the normal range, but my TSH is .005 and hasn't changed in many months. My doctor wants to do RAI. I have been resisting. Why did you do both RAI and
thyroidectomy?
Graves Disease is never cured BUT it is managed better without a thyroid or after RAI.
You still have the antibodies but no thyroid for it to attack.
As for meds, you swap one lot for another.
You go from anti-thyroid meds to a T4 medication so basically you are on meds for life.
The thyroid regulates every organ in your body and if no thyroid, meds have to do the job.
Hyperthyroidism is a lot easier to manage without a thyroid.
I had RAI and thyroidectomy in June and September 2008 and have never regretted it.
As I understand it, having your thyroid removed makes you immediately hypo, and you have to take synthroids to supply your hormones. I can't say for sure, as I had the RAI treatment done instead of surgery.