Could I be turning hypo or.....?

[danie17075rm]

Of course with the my surgery date looming ahead I have felt better than I have felt in 10 months.  I hit a breaking period.  I had a few days in which I felt great.  I had no panic, I shopped at stores like I used to, spent the whole day running around and playing with my son and had NO issues (other than the horrible pain and swollen mouth from oral lichen planus, but that's a whole different issue sigh).  My heart rate has decreased significantly.  I am taking less than half of my 25mg beta blocker a day, and even that is too much.  My heart rate goes way too low.  My body temp went up from 96-97- to normal.  It was a great feeling.  Gradually I started becoming tired though.  I am really tired.  I had some shortness of breath return and a few mild heart palps.  I feel a little dizzy at times, but I don't know if that is caused from the beta blocker (since I only needed it while hyper).  I also have had a return of all the slow digestive thyroid symptoms.  I had a headache during this too.  The body temp went back down to 97.5 .  I went to a natural doc who swore to me I don't need my thyroid out.  She says she can help me.  She wants me to start this HCG diet to supposedly reset the hormones in my body.  I'm wondering if it is possible I had the toxicosis for the last 10 months and my thyroid has burned itself out a bit and finally made me hypo OR this is just part of the hashimoto's and I will inevitably fluctuate to the toxicosis part again.  It just makes me nervous to have my thyroid removed when I am not hyper.  I hate to make a fast decision because it is possible it will just flip to hyper again at any minute.  I'm confused.  I just wondered how likely is it that I've burned the hyper part out of my system as I have heard is common with hashi's?  As I mentioned above, in the mean time I have developed another autoimmune disease in my mouth, oral lichen planus.  It is a nightmare.  This is on top of me becoming gluten intolerant in the last 10 months.  Who knows what else is wrong with me.  It's pretty bad when my great days include not being able to eat because of mouth pain and other issues, but such is my life.

[danie17075rm]

Totie- Thank you!  I've been thinking long and hard about it.  I don't think I'm ready to let go just yet.  Before the lichen planus in my mouth, I was okay with it, but now I want to try to deal with one thing at a time!  My thyroid is still annoying, but it's cooperating better.  I can deal with the hypo spells.

Bruce- Sorry to hear that your fam vacation is coming up and you might not be able to enjoy it.  I DO understand.  Hopefully you will have some kind of break in the next 4 days.

[Brucergoldberg]

Im back to possibly sharing a room with you during the TT.   Flipping back and forth again@!   4 days before our week in disney world.  Ears ringing, out of it, shaky, palps, weight loss.  

[Totie]

Please make sure you are okay with your decision. I think you will make the right choice. If time is what you need to decide on surgery then take the extra time to think about it.

I really can't say I know how you feel because I never bounced between hypo/hyper. I know having the TT did not alter my life in anyway. I still lead a fairly normal life. I stay on my medication and get it checked regularly.

Just make the best decision in the best interest of your health.

[danie17075rm]

I'm still on no meds.  I know the hyper feeling.  It's TERRIBLE.  It lingers in your body forever too.  I hope yours dies down and you can find the right amount of meds.  It seems like you are close to getting there.... closer anyway.  I'm going to see the endo on Friday and I'm gonna ask for more tests.  I'll see what it says and let you know.  I might just postpone surgery.  

[Brucergoldberg]

NoOooo  maam.  You said you were getting your thyroid out, so you owe it to me to follow through. You were suppose to be my test...   Im far away from my sweet spot.  I dont have the fatigue as much anymore, but i still feel like cr@p.   Current symptoms are ear ringing, anxiety, lots of hanging out in the bathroom.  

Are you taking anything at all?     Or are you just flying thryroidless?

[danie17075rm]

I have read that you are feeling a little bit better, that is awesome.  Maybe you are close to finding your sweet spot.  I have had this happening longer, BUT when I started I had a few bad months and then some good years.  Those months were nothing compared to now, I just couldn't sleep.  The last 10 months have been the major obstacle.  I definitely feel hypo.  I see my endo on Fri and I'm gonna make him give me one more set of tests.  If I shows I am normal or hypo I think I am going to postpone the surgery at least for a little while longer.  I can always get it out if things continue.  My blood work has shown normal labs since Feb, but since the hyper is going away, I am wondering if I have finally moved back to a hypo state.  

I don't want to be your guinea pig any longer lol.  I am resigning from the position.

[Brucergoldberg]

Maybe you are cycling through.  Of course this is another myth in our land of kookyness and wizardry.   You have been going through this longer than i have, however i have passed you in symptoms. Mine have progressed beyond where you are now.  seems easier to treat when the tsh is allowed to move up and down the dial depending on the dose of your thyroid.

One thing I have learned through all of this, is that i do not need a large amount of thryoid to feel better.  IM only on .25  plus a drop of t3 and feel much better.  Had a Wonderful day at the pool on saturday.  Played from 9 til 1, got hungry, ate lunch and played more.

I had an appointment weds this week but after i spoke to that lady, i canceled my appointment.  She is having a very very hard time getting balanced.  Worse than before...

you are suppose to be my guinea pig!

[danie17075rm]

I'm strongly considering it Bruce.  I might need some more time to be "okay" with it.  I feel kind of rushed.  What if I go hypo and stay hypo.  I feel like it now.  Maybe I could be on meds again... I dunno, that might be wishful thinking, but... what if????

[Brucergoldberg]

There was a lady that posted on this board a year ago.   She had the same problems as us.   I wrote her 9 months ago and she finally responded to me.  I asked her "what ever happened to you?".  Her response was that she had a TT 10 mos ago and she has been struggling ever since.   Worse decision she ever made.   She wishes she would of waited it out!

[danie17075rm]

Totie- I have thought about this decision for nearly a year.  I was very comfortable with it and then I started feeling better the last week (it figures right).  I still feel bad, and it's likely I am just in one of my "swings", but I see the endo Friday and I am going to have a long discussion about my concerns.  

[Totie]

Having a TT is not something to be taken lightly. I mean, you are removing something that controls a lot in your body & replacing it with a pill instead.

Please make sure you are okay with your choice, because they can't put it back once it's out...

[danie17075rm]

It was actually just a vitamin consultation, and the natural doc just happened to be the one doing it.  It's at local health shop that my mom always goes to and they had a special to have all the testing done really cheap.  I didn't go there for advice on the thyroid, but I got it anyway lol.  I really didn't place much emphasis on what she said though.  Mainly the good days just made me question my decision.  I guess I'm getting cold feet lol.  My added mouth problem makes me scared as well to face a major surgery when they don't know fully what is causing that.  I wish i could get it under control and understand more about it before surgery.  It makes me afraid of complications.  OF course, maybe my mouth problems have all stemmed from the thyroid fluctuations.  I probably let myself think about this too much..... thinking is bad!  

[Barb135]

There is no basis to starting the HCG; this will not "reset" the hormones in your body.  HCG is Human Chondroitin Gonadotrophin..... it's a hormone produced by pregnant women, often touted as a weight loss hormone........

I'd not be willing to go down that road.

You may be swinging from hyper to hypo -- this is pretty normal with Hashi's; if *I* were you, I'd keep on track with plans already made.  

I *am* curious as to why you went to another doctor, when your plans were already made.