Hashimoto and Chronic Urticaria (hives)

[kdcdcd2]

In 1994 I was diagnosed with Hashimotos Thyroidits...then I was told that the Hashimotos turned into Hypothyroid...now for the last 9 months I have been diagnosed with Chronic Urticaria or hives. I will wake up with hives head to toe and am miserable but then by midafternoon the hives go away and come back around 8pm. I have seen a Dermatologist who says I need to accept the fact that I will not know what is causing the hives and to treat the hives (allegra and zantac) I have seen the Allergist who wants to check for an autoimmune disease which I don't understand because Hashimotos is an autoimmune disease or problem I thought. My thyroid doctor says there is no link between the thyroid and the hives and has taken a leave of abscence from his practice. I am now very frustrated and feel like I have to settle with no answers. Does anyone else have these issues?? or does anyone have any thoughts about this??

[juliebell2014]

i have hashimto's hypothyroidism with chronic uticaria, it is definitely tied to your thyroid. my endo does bloodwork every 3 mnths, prescribes me a specific cream for my hands and body, and one for my face, i take hydroxyzine which really helps with the hives. my pcp treated me for scabies, i said no way i have scabies, i was downright miserable, but my allergist is the one who found that my uticaria was caused by hypothyroid, my body was attacking itself. my endo says its pretty rare, i am only 1 of 2 patients in our state known to have this.

[Barb135]

This is a very old post and most of the previous posters are no longer active on the forum.  

Your doctor should be testing Free T3 and Free T4.  TSH is a pituitary hormone and does not correlate with symptoms.  Free T3 and Free T4 are the actual thyroid hormones, with Free T3 being the one that's actually used by individual cells.

[bsunshine]

Check my post

[bsunshine]

Many weeks ago I started to get hives.  I've had Hashimoto's disease for many years.  I'm 56.  They would itch and many of them would get rather big.  It was horrible because I would go to Immediate Care and my doctor.  NOTHING would work very long and I was getting rather scared.  One time I went into Immediate Care and it looked like my husband gave me a fat lip but it was a hive.  

At any rate the doctor sent me to an allergist doctor and BOY am I glad.  I hope I get this right but there are 3 levels when dealing with hives... skin, tummy and brain.  When I was put on Zyrtec, Albuterol, and  Ranitidine the hives started to go away.

The doctor increased my Levothyroxine by 50%.  He said when we get my TSH levels where they should be for ME... then we'll wait many more weeks and then he will try titrating me off the meds. for the hives.  I'm on 10 pills a day but not having the hives to deal with is well worth it.  

[kimeyrae]

go to thyroid dr. now. I started with reg md didn't help went to endo felt way better within a couple weekswent back to normal dr  after 10 yrs of not knowing what was wrong depression hair loss moody and being put on anti depressants and they lowered my levoxyl still thought I was going crazy went back to endo he put me back on original dose and felt good again.

[CAR1168]

Hi Christy9296!
On your last post you said you were on the waiting list for the Mayo Clinic. Were you able to be seen at the Mayo Clinic and if so what were the results? I have had chronic hives since 1999 and just this year was diagnosed was Hashi. I get hives from the sun, heat, cold, anytime my adrenaline is raised, any NSAID, for no reason at all and now when I take steroids orally. Do you realize how hard it is to be treated after back surgery without NSAIDs, yeah, not well. I had back surgery in November, the recovery time was estimated at 6-8 weeks and I am still recovering. I am 44 years old and I have to use a cane to get around my house, I am no longer able to drive, cook, get in/out of the bathtub by myself and on and on and on.

I totally understand all of the comments here on this site. I have experienced them all!! One of the first times I broke out in hives from head to toe I was at work. I decided to have a potty brake, which is normal, I walked into the ladies room and there was several women talking and laughing, they saw me and cleared the ladies room. I didn't understand what had happened until I looked in the mirror...I was MORTIFIED! To say the least, I left work early.

These days I take 10-12 benedryl a day. If I miss more than two doses of the benedryl I will get the hives. If I miss one dose I start itching and swelling. Needless to say, I carry benedryl everywhere I go. My husband and I joke that we should have bought benedryl stock...LOL The benedryl medication is in conjunction with all the others I take.

I hope we all get some type of help and soon!