Hashimoto's Encephalopathy

[chigirl29]

AR-10, I am going to be tested for HASH BRAIN.  So I think its germane--okay.

I'm okay at answering questions and things, but I am not as good as you or Stella, or Grave's Lady who can put all their med info out there.  I have done so--but in bits and pieces.

AR-10, if you think I'm a smarta$$ now, you should have met me before my brain became a Turtle Brain.

Anyway--that is all I wanted to say.  I'm new to where I live so I'm going to see about referrals.


In my case, regarding the symptoms, I hope it is nothing but HASH BRAIN or BRAIN FOG.

[chigirl29]

Thanks Stella, I hope your 6pm appointment goes much better.

It is amazing how slowly the med community moves for anything that is not a code.

I hope you are ok--keep us updated.

[stella5349]

Absolutely --- be positive. We all need you to here

Listen chee chee -waaa waaa  (chigirl29) you bring something to this forum as much as anyone else does --- Opinion!!!! and History. Don't question yourself there.  

I like what you said - I guess there is always something positive - Apparently my so called appt today was not so positive - but I have to go back at 6 pm tonite.

Man - the medical field really doesn't move quick on suspecious nodules either.

Positive..positive ....positive.

LUV U people     - me

[chigirl29]

It could have been caused by the thryoid dying because it happened then.  I still have muscle jerks and speech slurring though.

I kind of hope it is HE or related to the death of my thyroid--

Rather have that than a serious mental illness--mental illness is something that is very hard to live with--and carries HUGE stigma--already been affected by that regarding my family anyway--so I guess I could deal with it if I had to.

I understand about being angry about a medical condition....

I wish I never had a psychosis...but it did help to change my life--closer to my husband and children.

I guess there is always something positive.

[chigirl29]

Don't worry about it.  It was harder for me to be open, but I'm getting a little more used to it.

Check--no spelling picking:)

If you weren't a guy--I'd add you as a friend...

Sound sexist don't I???

Sorry--don't mean to.

[AR-10]

Well, I know you prefer I not PM you. I want to express again that I am deeply sorry for the way I have spoken to you on several occasions regarding this subject.

I did not know your complete medical history and made assumptions that were inappropriate.

I've also had a very difficult time coming to terms with my own illness, and the anger and frustration seems to leak out at all the wrong times.

I wish you the best, and I really do wish I could take back a lot of the things I have said.

Just try to ignore my spelling. :)

[chigirl29]

I don't PM men so I just wrote openly to make up:)

Thanks for last post.

[AR-10]

I apologize for the tone of that last post, chigirl29.

I am overly sensative right now, and tend to take things the wrong way.

If I thought I had Hashimoto's Encephalopathy, I would be sensative about that, and very concerned, as well. So I understand your frustration with me.

I did not realize you were truly concerned that it may be a problem for you.

Good luck with the tests, and keep in mind it is treatable if caught early, and perhaps if it is the root of some of symptoms that are bothering you, those symptoms will abate with treatment.  

[AR-10]

you go for it,dear.

I really don't know why you are dragging my name into this thread.

I was told when I was diagnosed it was a significant worry down the line for me. That's when I started reading about it. My wife is aware of the symptoms, and the day may come I will be tested for it. But the risk is miniscule.

Do what you feel is best.

The only umbrage I took yesterday was your telling a patient that it was a real concern for her. That was not for you to say.

There are very, very, very, few people who come down with it.

If you feel better ruling it out for this month, get tested.

[chigirl29]

You're right about the name, Hash. Enceph.  I was kind of picking on AR with Hash Brain--not in a mean way.

When my thryoid quit working, I had a very bad experience.  It was in August.  I'm doing fine on my meds and all, but after the event, I had a drop in cognition and have had muscle jerks at night.  Also, I tend to slur words.

I just want to rule it out.  I've ruled out a few other things.

I was just letting AR know that even though Hash. E. is rare, someone could have it, and some might need testing for it.

Thanks for asking, Jessi

[Jessi63]

Hash brain being hashimotos encephalopathy, right? If not what is hash brain?   Why you gonna be tested for that?