Hashimoto's Toxicosis and going hypo and hyper

[terri thyroid]

This is kind of a survey/question to those of you diagnosed hypothyroid Hashimotos but who feel or actually are cycling into a hyper (not hypo) state. Do you seem to have symptoms of hyper like red in the face, hi b.p., shakiness, depression, hot all the time not hot flashes, hot tempered, double vision or poor vision etc etc but yet you feel run down, tired, fuzzy mentally, slow gastro processes so you go to the doctor and he/she says you are right in target range for tsh below 3.0 or thereabouts and great free t4 free t3 levels and all else looks good so maybe they raise your thyroid med dose thinking you're still a little hypo (not hyper) or have you lower dose in case you are actually hyper and for a short while you feel better or feel worse right away so now you don't know if you're up or down ? Yes, that is a run on sentence but hopefully I'm clear - here is my theory - maybe you have gone so hyper your body is shutting down or slowing down to protect itself or it's just breaking  down altogether - Has anyone had this experience and if so what do you do about it or what does your doctor do or say to help you? And if our thyroid gland worked normally would pituitary and other supporting systems output consistently same amounts ? I know this is a good question for Dr. Lupo as he actually believes there is a phenomena as Hashitoxicosis unlike my past 3 endos. I'm curious what you folks think about this and what your experiences have been.

[magbeacher]

I was diagnosed with Hashimotos Thyroididus in 2010, then was told it was Graves disease.. I took beta blockers and anti-thyroid meds for 2 yrs then was told to take a radio-active iodine treatment.. which I did, and now my endo says I am now hypo insteadd of  hyper.. I am currently taking Levothyroxine 100mg.. within 4 days of taking this i had a complete loss of vision for 2 hrs, and since my vision is always blurred, ive started having constant migraines, never have an appetite and have to force myself to eat( which is not much at all) all in all I feel like I did before I eever took the treatment except no heart palpitations.. I feel wired, cant sleep.. has any one else had anything similar? my endo acts like none of it is a big deal, but i have two small children at home and this really scares me.  

[kim767]

my tsh was .04 now .01  I feel fine & vitals are great

[LarknessMonster]

Yes, I have some hyper symptoms (intermittent double vision, getting hot and sweaty, getting the shakes in my hands, depression, etc.) and many hypo symptoms (diagnosed with Hashimoto's in November 2010). My blood work comes back fantastic. I asked to have my anti-TPO Ab levels checked, but last time I went in the lab didn't draw it because it was on the last page or something stupid, so now I have to go back in. Grrr. My hypothesis is that if my Ab levels are high it could explain the hyper symptoms - the antibodies could be attacking my thyroid, causing follicles to burst and dumping thyroid hormone into my system and making me hyper (called "thyroid dump"). But it would have been helpful to have the levels measured when I was experiencing the worst of those (things have since gotten somewhat better). We'll see.

[ettevyva]

I am on several facebook forums (5 different ones with amazing information) for Hashimoto and have learned so very much.  I am taking a natural thyroid compound from a compound pharmacy since I had so many allergic reactions to fillers in the drug companies.  I've recently started Low Dose Naltrexone as autoimmune treatment for Hashi. (Look up Low Dose naltrexone Homepage).  I quit eating ALL GRAINS, Dairy or soy. (because of the USA putting extra proteins in the grain seeds to mass produce the crops (that our bodies don't know how to digest. (See Robyn O'Brien on Youtube).  The USA puts chemicals in the grain seeds so the crops produce their own pesticides.  I eat caveman foods (organic natural meats with no hormones, fresh and frozen vegetables and fruits, Penta water without fluoride toxins, BPA or chemicals.  I found a D.O. doctor for the Hashimoto since 3 endos, 3 primary care doctors, and 5 specialists did not know enough about autoimmune diseases.  This is what Dr. Noel Rose says about most medical doctors: "Most physicians went through medical school at a time when we didn't understand much about autoimmune disease," says Noel Rose, M.D., Ph.D., director of the Johns Hopkins Autoimmune Disease Research Center in Baltimore. "It's not prominent on their mental radar screen."
Unfortunately, this delay to diagnose has huge costs. The longer a patient goes untreated, the greater her risk for irreparable damage.”
One you have one autoimmune disease, you are likely to develop more than one autoimmune disease.  Hashimoto is NOT a thyroid disease.  It is an autoimmune disease.  You do not cure an autoimmune disease by having the thyroid removed.  A good resource for autoimmune diseases information is from AARDA -(American Autoimmune Related Diseases Association, Inc.)   Just info.  I'm doing so much better with all the changes I've made.  It's true, you are what you eat.  

[wantapreg]

" I actually was freaked b/c it reminded me of when I was pregnant and the baby would kick--it's like a quick little jerk or something--calves, abdomen (sometimes).  It comes and goes---some days I don't have it at all.  I did have the weakness and sluggish feeling "

Yes i have that feeling too sometimes.  This is all started after my miscarriage, then i was on the rollercoaster of hypo and hyper symptoms.  My Dr don't really believe that small dosage can cause hyper symtoms, but i feel every bit of it.  At this point, i don't know if i should or should not take the meds anymore.  

[gimel]

This thread is very old and many prior posters are no longer involved with us.  You will get lots more response if you will click on the orange Post a Question button at top of page and re-post this under your own name.