From what I am hearing and seeing, this is never going to come with a sure fire owners manual. Everyone reacts differently. I have never been told by my Doctor what to expect if and when the Thyroid is done in completely. That's a good question. I never really thought that far down the road. Unconsciously perhaps I was too scared to ask.
Perhaps someone else here might know. I've never met anyone else with Hashimoto's until I found this group this past weekend, so only had what the Dr. was telling me (and not telling me) to go by. Now that I've switched Doctors perhaps I will get more information.
LOL
I gotta read this more in depth to deficer the way this is all being put out there.
Right now I gotta go to work
Vaaaaa ruuuuuoooom...................
Thank you so much for your helpful inputs; it is all a steeply pitched Experience Curve in the early days....a marathon nearly getting all the facts and info straight and yeah ---more than scholarly!! And definitely a Tomb seemingly written in Greek!! (some versions of course helpfully in Japanese!!)
One question ---- once Hashi's (or indeed ANY thyroid autoimmune agent) has taken the thyroid for it's (joyeous death) 'ride',
is there a likely NEXT rider waiting in the cue?
......ie.......
Does the autoimmune agent, happy to have joy-rided one organ, burrow in elsewhere into the body and re-express itself again?
Are there organ vunerabilities that statistically crop up, post-first ride after thryoid?
The question ultimately asks about the mechanism to TURN OFF the autoimmune response, which am more and more coming to the view is highly individualistic. It nearly sounds like a --how to end cancer---question; apologies for sounding naive and unrealistic! But am just happy to learn if there is indeed a correlation anybody is aware of?
Any thoughts on this Marshall Protocol I saw mentioned here recently?
Yeah---so right----can't sweat the small stuff-----but why is important print always printed in small sized print!!! When will owner's manuals be easy to read and understand! lol
: )
Higher risk of cancer???? How on earth did I miss that one? I never had a doctor tell me that that might be a concern. That's a little nerve racking. It's bad enough my mom died of breast cancer, I don't need anything else that puts me at risk.....oh well....
As they say, these days anything and everything can cause cancer right? "You can't sweat the small stuff and it's all small stuff"....etc...etc...etc... Gotta look on the bright side, no one's found any on me as of yet. Knock on wood. :-)
The amount of information to understand the thyroid and its many variants of disease will take Pythagoras and all the scholars of Alexandria to figure out.
Pretty much each individual is different. There are no hard and fast rules when it comes to the thyroid. You will find that any information is based on a GENERAL result, usually having involved a study of selected people with the particular disease...then it is averaged out and; Voila! How to maintain a thyroid.
This is of course a total waste of time and energy, both for us as patients and for the printing companies as the information can change within months.
Your generalisation of how to deal with it is pretty right....although for some taking selenium does nothing, taking something else works better or finding yoga to stand on their head works for them too! Again do what it takes to make YOU feel better...read what you can and then experiment.
I personally went to a Naturopath and felt marginally better, only to discover my immune system is totally shot and the treatment he gave for the exhaustion was conuter productive (Not his fault, I kept getting massive abscesses in the teeth and never mentioned it to him, till the last one caused me to be totally non-compes for few days! No wonder I wasn't getting better! That is now being dealt with differently..and yes, I feel a lot better..not well but better)
There are many research papers which do and don't support the fact that Hashimoto's has a higher risk of cancer.
Also did you know that, the higher the anti-bodies for thyroid disorder, does not necessarily mean you will be ill....many on lower numbers actually feel worse! Go figure that one out!
Anyway, educate yourself, listen to your own body, take what you want to make yourself feel better and enjoy the long and winding ride of my friend Mr Hashimoto.
Cheers
I did my best to follow your way of thinking. It is my understanding that Hashi's is a genetic disease that causes the body to slowly (or quickly), depending on the person, kill off the Thyroid because it sees it as something that should not be there.
As time goes on and there is less and less of your own natural Thyroid hormone, you need to continually increase your outside source of hormone to keep the motor running so to speak. Outside sources can be synthetic (such as Levothyroxine and Synthroid) or Natural (Armour Thyroid, taken from cows).
I hear there are ways to slow down the process and that is what I am working on figuring out. If your medication amount is correct at the time then your levels should show normal, but with Hashi's they will increase again at some point and medication will need another increase. This will continually happen over time until at some point your Thyroid is no longer producing any hormone and you are put on Full external hormone treatment. I think of it as my Roller Coaster. Levels bad/increase meds/levels good/levels bad/increase meds/levels good.....
This is how I have had it explained to me. I hope this helps. Anyone, please jump in if I am incorrect in any way. I joined because I don't think I had all the facts I may have needed.
.............lol..... but tell me you at least have hot looking biker boots!!
But am wondering if everybody here is now riding Kawosaki???? Brand buddies pls help.
No answers sorry, but so good to see a sense of humour in this horrible hopeless hypothyroid hell. Keep it up...laughter is a good medicine!!! Debsxxx