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Avatar universal

I think I have Hishos

Two years ago my TSH was 4.59, then I got off Gluten and it went to 1.7. I got some blood work back yesterday and so I wonder if I have it, or if I can resolve it on my own. Let me state some numbers. What do you think?

Chol is 217             last yr it was 192
TSH  is 3.56,          last yr it was 2.76
Free T-4 is 1.09,      last yr it was 0.91
Ferrit is 20.0  
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Avatar universal
Thank you for your wonderful response.  I agree with you on the testing. last night I thought I should go to the hospital as my heart was racing, since years ago I was on a med that did that to me and I survived, I decided to wait it out and this morning I took  30 mg instead of the 60. I am questioning this doctor since he wanted me on 120- so glad I did not listen.  I will have to pull out my labs later to find the information. The Gluten sensitivity test was one that was for gene testing, In that test it showed that I have a gene from each side of my family that makes me very sensitive to Gluten. Since I have learned how studies are done via way of who is paying for the study, I along with others who have that same gene type feel that it is only a matter of time before it is realized that it to shows Celiac. If I ingest even a small amount, I am sick for days and my stomach hurts like you would not believe. I was so shocked how my TSH went from 4.59 to 1.7 shortly after I got off gluten- even though it was not the cure all that I had hoped for, I will never eat gluten again, what is sad it it is so hard to know if it is in medications & vitamin's. The celiac community is working on that.        
You asked the other day about what iron I am taking,  I am taking 325 mg Ferrous sulfate ( say's 65 mg) and teh b is a quick dissolve  Super B complex it has 6 mcg of B-12 ... a nurse told me to take this type, said it was better absorbed .
I will see about getting new  labs done, what you mentioned is very helpful for me to know what to order.
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Avatar universal
What is the Free Thyrox 201 that you listed?  Also, without the reference ranges I cannot tell if that T4 of 7.2 was Total T4 or Free T4.  I expect it is Total since there is a T4 listed at 1.18, which is evidently Free T4.   The T3 you show is total T3 which is not nearly as useful as Free T3.  If your Free T3 is anywhere near as low then both your Free T4 and Free T3 are too low.  

Should you even be on it?  By it I take it you mean the Armour.  I'd say yes, and that you need to test for Free T3 to see where you are with that.  Also important to test for Vitamin D and supplement as needed to optimize at about 55.  Your ferritin level is terribly low.  You need to supplement with   a good form of iron with a target of 70 for ferritin.  B12 should be in the very upper end of its range.

What tests did the doctor say showed gluten sensitivity?  

The answer to your last question is no.
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Avatar universal
There is only one definitive test for celiac that I know of and that requires a biopsy so not sure how he decided you have Celiac Disease.  I am glad to hear that the doctor stressed D, B12 and iron.  Have you been tested yet for D and B12?  What amount of daily iron supplement was suggested by the doctor?  You need to get someone to test for Free T3 and then make sure they always test for both.  How can you be started on a desiccated thyroid med like Armour, with both T4 and T3, without even being tested for Free T3?
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2 Comments
Good question, he should have tested. He took my values I had from a year ago...  July 2015..Then the TSH was 3.12, T4 7.2, T3 uptake 29, Free Thyrox 201, T4 1.18, Reverse T3 16.7, T3 94, B12 482, TPO 8. This year  TSH was 3.56, Freet-4 1.09, Ferritin 20, Vit B12 338... this is all my reg doctor looked at.
Do you all think I should even be on it?
    
Oh, and on  the celiac, he said that due to the low iron and low B12. But I did get tested for gluten sensitivity and I am very sensitive.
So, then I was thinking later today , if having low iron and low B12 are a part of Hypo, and we eat more fiber which then binds to iron  furthering the iron and B12 levels, .. if we upped these two things would that get our  ( or mine) body to make the needed hormones?      
Avatar universal
That "1/2 each day" is what?   Will this doctor test you properly for Free T4 and Free T3 both?
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2 Comments
the pill was 120 , so I am taking 60, I had those test done prior. He said I had enough lab work done recently that he would test more later, the next time I came in. There is a website where I can get my own lab work done at the same labs where the doctors do, I did that one time because I knew something was going on.  I will say that the pains in my feet and hands are gone.
      
Since I am tired, I am wondering if I really have thyroid disorder or if it is just the iron and B12 being low is the issue. I will not stop taking the medications, but just wondering.
Avatar universal
I sent you a PM with info to consider.
Helpful - 0
1 Comments
Hi all,
I found a doctor who is more like a functional medical doctor, he said based on my low iron and low B12 and other test that I showed him that I have celiac , and that about 30% of people with that develop Hashi's. He agreed that I need to be upping my iron and B12, and Vit D. He also put me on Armor, he said he gets a better success rate, but has no issue is prescribing something else.
I decided on my own to take 1/2 each day to allow my body to get used to it- I spoke to many pharmacist first and they said either way was fine.  My diet is not great right now, been under stress so carb eating. But I wonder if the medication is making me sleepy?  Should I try to change my diet first or should I call the doctor?
gimel, I will still consider going to one of the doctors you suggested, as I am not totally convened about the guy I am seeing.        
Avatar universal
Please tell us the name of the doctor who wrote the book you mention.  Also, since your current doctor is a problem, please tell us your location and perhaps we can suggest a doctor that has been recommended by other thyroid patients.
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3 Comments
Steven F. Hotze, MD, the name of the book is," Hypothyroidism, Health & Happiness".
my location is close to Dallas TX.
I thought I had posted this, but don't see it.  Dr. Steven Hotze, is the one I think I will see. I live in the Dallas/ Denton Texas are
Oops, sorry I posted this twice.
Avatar universal
Barb gave you good info on how to find out about Hashi's.  I agree with dee900 about the need for adequate Vitamin D and B12.  D should be about 55 minimum and B12 in the very upper end of its range.  Your ferritin level was very low and needs to be supplemented, as much as needed to keep it about 70 minimum.  Your Free T4 levels have been lower than optimal for many people.  You also need to make sure they always test for Free T3 along with Free T4.  Free T3 is used by all the cells in your body, so it is important to optimize it as well since Free T3 levels correlate best with symptoms.  

If tests show that you have Hashi's, then your thyroid gland function will diminish over time as the antibodies attack and destroy the gland.  That will require increasing doses of thyroid med, as needed to relieve hypo symptoms.   If you do not have Hashi's then treatment should be based on whether you have symptoms or not.   Since a person's status is dependent on a large number of variables, some people are fine with lower levels of Free T4 and Free T3.  Decisions to treat, or not, should be based on symptoms first and FT4 and FT3 levels second.  Symptom relief should be all important.  
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1 Comments
Thank you gimel, Barb, and Des900. I came across a book written by a md who seems to understand a lot and is not the typical MD. I plan to travel to see him  soon. The MD I see does very little testing, I often have to beg, I would change MD but I am stuck.
I feel fine most days, just tired and I find it is hard for me to workout.        
Avatar universal
Cholesterol levels are affected by many things, to the point that it should not be a decision criterion for choosing appropriate dosage.   There are more indicative symptoms to use for that purpose.  

I don't understand how you came to the conclusion that T4 to T3 conversion is not working correctly in the circumstance you related, and requiring reduced T4.  I don't see how that could have any useful application for zoe114.  
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649848 tn?1534633700
COMMUNITY LEADER
In order to know if you have Hashimoto's, you have to have the appropriate antibody tests. Those are Thyroid Peroxidase Antibodies (TPOab) and Thyroglobulin Antibodies (TgAb).  
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1 Comments
I had that done, it was low but my TPO was 8
Avatar universal
Your Free T4 is low so taking levothyroxine or upping the existing dose is safe, ask doctor about this.

Also check for vitamin D and B12 levels and supplement if not in optimal range. Concerning ferritin is low so supplementing it for some limited time is beneficial.

Cholesterol level especially LDL is a good marker how well the metabolism is taking place. So it should also be taken into effect when choosing the appropriate levothyroxine dosage. Some people have a high LDL value on certain levothyroxine dose though TSH in normal while their LDL value is low when on certain levothyroxine dose though TSH is high. If that's the case then this means T4 to T3 conversion is not working correctly and need to reduce levothyroxine though TSH can go out of normal values.
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