Aa
I want to live!
Oh God! I have never posted here so much in my life... I am just at my wits end.... I cant take this c.r.a.p anymore. I am so depressed today! Crying a lot, taking my moods out on my boyfriend and just over all wish I was dead at times (dont worry not sucidial) Just keep saying to God to put me out of my misery...
I took my bad ood out on my b/f today and he totally did not deserve it! I feel so bad about that now aswel! I am so frecking annoyed that Im going through and that its so unfair. Jez like theres murderers and abusers out there living the life of luxary and then theres people who try to lead good law abiding lives like us and WE suffer...... Im sick of it! I feel like screaming!
AAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!
I took my bad ood out on my b/f today and he totally did not deserve it! I feel so bad about that now aswel! I am so frecking annoyed that Im going through and that its so unfair. Jez like theres murderers and abusers out there living the life of luxary and then theres people who try to lead good law abiding lives like us and WE suffer...... Im sick of it! I feel like screaming!
AAAAAAAHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHHH!!!!!!!!!!!
I was so angry I couldn question him. He said he never heard of the new ranges! Im feeling ok now, calmed and clear headed!
A lot going on right now thats causing so much stress so Im trying to keep cool headed!
A lot going on right now thats causing so much stress so Im trying to keep cool headed!
Sorry...ultrasound...don't know if they are the same thing or not. Ha...My daughter is an x-ray tech...wouldn't she be so proud.... LOL
My antibodies were at like 336 or something when my General sent me for a sonogram. He wanted to see what my thyroid looked like. He knew then that I had Hashi's.
Sorry I haven't got back...Crazy week here.
Yes, since my thyroid is gone, I am totally hypo now...I get really minor, short lived anxiety attacks and only had heart palps once or twice. This usually happens when I first crawl into bed and it is only minutes now. Before I would have 4 to 6 hour panic attacks. Felt like I was running around like a crazed person....could not get a coherent thought in my head. Could not breath. Hated that.
On the other hand. I had my TT end of march...Now it's end of June and I'm still to the point where...if I sit down and I am not mentally engaged somehow...I go to sleep. I'll wait a week to watch a tv show and then sleep thru it. That is so annoying. So I still have some work to do in getting my meds right...I'd think....
Yes, since my thyroid is gone, I am totally hypo now...I get really minor, short lived anxiety attacks and only had heart palps once or twice. This usually happens when I first crawl into bed and it is only minutes now. Before I would have 4 to 6 hour panic attacks. Felt like I was running around like a crazed person....could not get a coherent thought in my head. Could not breath. Hated that.
On the other hand. I had my TT end of march...Now it's end of June and I'm still to the point where...if I sit down and I am not mentally engaged somehow...I go to sleep. I'll wait a week to watch a tv show and then sleep thru it. That is so annoying. So I still have some work to do in getting my meds right...I'd think....
You should had questioned him. If below 1.0 is dangerous, WHY then is the lab ranges .3-3.5...
When is your appt. with Endo?
When is your appt. with Endo?
Well ok: I explained to my doc about my headaches and sore throat and he told me that they are all stress points and will hurt if I am stress/depressed... If only ye saw me, I was bulling, Told him then i felt I needed an increase, nope he said I do't I quote " Its very dangerous getting your TSH down to 1" "your thyroid is working perfectly at the levels now"... I TOLD HIM I FELT THAT I WAS GETTING NO WHERE AND THAT AN INCREASE BY 25 CANT HURT! Oh but yes it can bla bla bla bla bla! Thats all I heard after that!
Told me not to rely on internet as its not always right and bla bla bla bla bla....
Antibosies were 339 or something like that! Not to high, just over the pos. mark!
I went for a few drinks last night with co workers and boy did it relax me!
Told me not to rely on internet as its not always right and bla bla bla bla bla....
Antibosies were 339 or something like that! Not to high, just over the pos. mark!
I went for a few drinks last night with co workers and boy did it relax me!
Be firm with the Endo...dont rush in like a wounded bull as this tends to intimidate them lol.
Write EVERYTHING down and also state you are not leaving the consulting room until you have answers.
Most Endos/Docs are quite willing to discuss everything and are open to suggestions.....so my advice is ..
1. Suggest an ultrasound
2. Suggest an Uptake Scan
3. Suggest an increase of 25mcg stating that if you go Hyper, you will go back down to the former dosage.
4. Ask why you have cancer producing antibodies?
5. Ask if it is possible that you may have nodules..hence the request for an ultrasound.
6. Explain ALL symptoms.
7. Explain that you would like to be treated like a human being rather than a 'fruitcake' and explain that this is what has happened previously.
8. Explain that yes you do have anxiety BUT this only started when the thyroid problems did.
9. Ask the Endo to put himself in your shoes.
10. Thank him for his time and expertise (they love that) and speak calmly and clearly all the way through the consultation.
Research all you can....print out articles to show him and lastly, GOOD LUCK.
If this doesnt work then see another Endo.
Write EVERYTHING down and also state you are not leaving the consulting room until you have answers.
Most Endos/Docs are quite willing to discuss everything and are open to suggestions.....so my advice is ..
1. Suggest an ultrasound
2. Suggest an Uptake Scan
3. Suggest an increase of 25mcg stating that if you go Hyper, you will go back down to the former dosage.
4. Ask why you have cancer producing antibodies?
5. Ask if it is possible that you may have nodules..hence the request for an ultrasound.
6. Explain ALL symptoms.
7. Explain that you would like to be treated like a human being rather than a 'fruitcake' and explain that this is what has happened previously.
8. Explain that yes you do have anxiety BUT this only started when the thyroid problems did.
9. Ask the Endo to put himself in your shoes.
10. Thank him for his time and expertise (they love that) and speak calmly and clearly all the way through the consultation.
Research all you can....print out articles to show him and lastly, GOOD LUCK.
If this doesnt work then see another Endo.
Do you know what your antibody level was? To be honest I don't think it matters how elevated it is, if it's high you have Hashi's...period! My levels are VERY high and from what I heard the higher, the more difficult to treat. Be a little more specific as to what you are feeling. Is it still the anxiety? You are not alone Jennifer, I am struggling really bad today! Maybe we can lean on each other ;-)
Danielle
Danielle
Make sure the endo he sends you too specializes in thyroid...
You do not want one that deals primairly with diabetes, they will treat you by lab numbers.
Why have they not done an ultrasound if your throat is in pain?
I did not have any pain in my throat due to the thyroid mess i was in (graves/hyperthyroidism/goiter), maybe it is something totally different causing your pain, enlarged lymph nodes, salivary glands.
Your dr. said that he had never heard of a level of 1.0??? Change doctors...
My last level was .67, which is good. My primary agrees in keeping it under 1.0, but I don't have a thyroid anymore either.
Too me he should had increased your medication by .25 at least. What would it of hurt??
Get an ultrasound or CT scan of the throat, to me thyroid should not be painful but eveyrone is different.
You do not want one that deals primairly with diabetes, they will treat you by lab numbers.
Why have they not done an ultrasound if your throat is in pain?
I did not have any pain in my throat due to the thyroid mess i was in (graves/hyperthyroidism/goiter), maybe it is something totally different causing your pain, enlarged lymph nodes, salivary glands.
Your dr. said that he had never heard of a level of 1.0??? Change doctors...
My last level was .67, which is good. My primary agrees in keeping it under 1.0, but I don't have a thyroid anymore either.
Too me he should had increased your medication by .25 at least. What would it of hurt??
Get an ultrasound or CT scan of the throat, to me thyroid should not be painful but eveyrone is different.
He is trying to prove me wrong! My antibodies are hign but hes just waiting til they go higher to diagnose me!
Im going for ciounselling aready so I think Im giving all I can to his theory... Im so upset now, things look worse than ever!
Im going for ciounselling aready so I think Im giving all I can to his theory... Im so upset now, things look worse than ever!
What do you mean by "kinda of diagnosed with Hashi" in your first post?
If dr. believes its all depression, then why would he send you to an endo? There has to be something for him to make the referral that he found.
If dr. believes its all depression, then why would he send you to an endo? There has to be something for him to make the referral that he found.
Il get an app. in about a week. To he// with them all, I cant do this **** anymore... None of them give to $hits about me.. Quick fix with anti depressants..
As for my mom, she can di and say what she likes cause I wont be listening!
As for my mom, she can di and say what she likes cause I wont be listening!
Stay positive. Your doctor is not very knowledgeable about the thyroid but is at least referring you to an endo. Lets hope that will give you some answers. It's hard not to constantly worry about your health when things are not going well. From the time my eyes open in the morning to the time I fall asleep, that is all that is on my mind. As far as your mom, try and not to be too hard on her. She has no idea what is going on with you or how you are feeling. She can only see what is on the outside and of course to everyone we look fine! When is your appointment with the endo?
Well appointment today was a WASTE of time! He barely listened.
I asked him for an increase, told him about the new ranges andthat I wanted my TSH down to 1....
His reply: My thyroid is working perfectly at the levels its at, that getting my tsh down to 1 is very dangerious and he has never heard of it being done.
So he said I have some sort of depression and that I should go on meds. I refused and got really angry with him and my mom as she didn't even back me up! He won't up my meds but he is referring me to an endo..
He as good as said I was a hypocondriact. he said I worry about my health too much! When i left I gave my mom an ear full and said thanks a mill for backing me up..
I now actually feel like I could Kill meself!
I asked him for an increase, told him about the new ranges andthat I wanted my TSH down to 1....
His reply: My thyroid is working perfectly at the levels its at, that getting my tsh down to 1 is very dangerious and he has never heard of it being done.
So he said I have some sort of depression and that I should go on meds. I refused and got really angry with him and my mom as she didn't even back me up! He won't up my meds but he is referring me to an endo..
He as good as said I was a hypocondriact. he said I worry about my health too much! When i left I gave my mom an ear full and said thanks a mill for backing me up..
I now actually feel like I could Kill meself!
Did the symptoms of anxiety and frightening mood swings alleviate after your thyroid was removed? It seems Jennifer1987 and I are having the issues with the anxiety. The physical symptoms are bad but the mental part is WORSE!!!!! My poor kids never know when I am going to blow and it is scary!
Gimel: Thank you for that last post, I think Im begining to understand this a lot more now! I cant wait to fo into my doc. tomorrow and tell all. lol thamks so much!
Hopeforthegoodstuff: I was diagnosed with just hypo last September and I asked my old dc why.. he said just because.. No eplaination to why.
In my opinion there is ALWAYS a reason/cause of hypothyroidism, it just takes a good doc to find out! I was told I had HAshimoto's about 3 weeks ago, so I was relived to know WHY, but disappointed because Im stuck with this for ever!
On a happier not, I went out last night and had a brill night!!!! Glad I can still do that!
Hopeforthegoodstuff: I was diagnosed with just hypo last September and I asked my old dc why.. he said just because.. No eplaination to why.
In my opinion there is ALWAYS a reason/cause of hypothyroidism, it just takes a good doc to find out! I was told I had HAshimoto's about 3 weeks ago, so I was relived to know WHY, but disappointed because Im stuck with this for ever!
On a happier not, I went out last night and had a brill night!!!! Glad I can still do that!
I find it interesting to read so many posts where people say they have actual pain in their throat. I never had pain...I never had trouble swallowing, but when the surgeon took my thyroid he said was was extremley enlarged and very hard in texture due to the hashi's..I do not know how long I had been dealing with it with that without medication. I was not diagnosed with it to start with. My dr just thought I was Hypo. and there was cancer, so it had to go. My symptoms seemed to be more heart palps, anxiety and swift and frightening mood swings...(that from my husband) I really had no clue that I had a thyroid issue. I thought the drs were nuts and I was going to die from mysterious unknown disease.. LOL.
I think I would tell the doctor that you are under medicated, because:
1. you are still suffering from all your hypo symptoms.
2. you are being medicated just to bring your TSH into the reference range, and that is obviously not enough to relieve your symptoms, especially when you have Hashi's. In addition, the old reference range is questionable, because the Amer. Assn. of Clinical Endocrinologists has determined that the data that was used to establish the old range included many people who were suspect as hypothyroid. When these were taken out of the data base the new range was found to be .3 - 3.0. Here is a link you can copy and show the doc.
http://thyroid.about.com/cs/testsforthyroid/a/labs2003.htm
3. that you understand that when patients have Hashi's, their symptoms are relieved best by medicating enough to suppress TSH to the low end of the range, by raising their free T3 and free T4 levels to the upper part of their range.
4. that you have read that hypothyoidism symptoms correlate best with the most active thyroid hormone, which is free T3. Symptoms do not correlate well at all with the pituitary hormone,TSH, so why use that as the diagnostic. It is far better to base treatment on the active thyroid hormones, free T3 and free T4.
After a lively discussion about all this, no doubt, I would then ask that your meds be gradually increased, and that your free T3 and free T4 and TSH be tested every 6 weeks until your symptoms are relieved. I don't think I would bring up the question of T3 meds at this point because you really don't even know if that is part of the problem or not, since you don't have free T3 testing yet. A T4 med, in the right amount, might be just fine for you. You can handle the T3 question in the future.
1. you are still suffering from all your hypo symptoms.
2. you are being medicated just to bring your TSH into the reference range, and that is obviously not enough to relieve your symptoms, especially when you have Hashi's. In addition, the old reference range is questionable, because the Amer. Assn. of Clinical Endocrinologists has determined that the data that was used to establish the old range included many people who were suspect as hypothyroid. When these were taken out of the data base the new range was found to be .3 - 3.0. Here is a link you can copy and show the doc.
http://thyroid.about.com/cs/testsforthyroid/a/labs2003.htm
3. that you understand that when patients have Hashi's, their symptoms are relieved best by medicating enough to suppress TSH to the low end of the range, by raising their free T3 and free T4 levels to the upper part of their range.
4. that you have read that hypothyoidism symptoms correlate best with the most active thyroid hormone, which is free T3. Symptoms do not correlate well at all with the pituitary hormone,TSH, so why use that as the diagnostic. It is far better to base treatment on the active thyroid hormones, free T3 and free T4.
After a lively discussion about all this, no doubt, I would then ask that your meds be gradually increased, and that your free T3 and free T4 and TSH be tested every 6 weeks until your symptoms are relieved. I don't think I would bring up the question of T3 meds at this point because you really don't even know if that is part of the problem or not, since you don't have free T3 testing yet. A T4 med, in the right amount, might be just fine for you. You can handle the T3 question in the future.
I am so confused at all this.... There is so much involved. ya I saw that post, its true my TSH is 4.33 and they do go by the old ranges which is annoying. but given the fact they don't use the new ranges I dont know how I will convince him!
Do you think I could benifit from a T3 med too???
I have an app. Monday and I want to get it all out then!
Im thinking of using this approach:
Il Ask him for an increase in my meds and if he says no, then Il explain that the new ranges are .3-3.0 and that its not going to hurt to increase my meds. if I go hyper I can cut down again.. 25mcg will do the job I think!
I think I will suggest an ultrasound too as my throat is really sore an it cant hurt to see... But if I get an increase I will leave happy!
Do you think I could benifit from a T3 med too???
I have an app. Monday and I want to get it all out then!
Im thinking of using this approach:
Il Ask him for an increase in my meds and if he says no, then Il explain that the new ranges are .3-3.0 and that its not going to hurt to increase my meds. if I go hyper I can cut down again.. 25mcg will do the job I think!
I think I will suggest an ultrasound too as my throat is really sore an it cant hurt to see... But if I get an increase I will leave happy!
I've been telling you that you are undermedicated. Please read this previous post.
I really think that you are wasting whatever energy you have by chasing the idea that surgery for your thyroid will solve your problem. Likewise for getting an ultrasound.
The problem is that you have Hashi's. Your TSH is still too high, indicating that you are not getting enough meds to get your free T3 and free t4 to the upper part of their range and suppress the TSH to the low end of its range and relieve your symptoms. Clearly you are running into the UK Health Service stone wall on thyroid issues. From what I read they are adamant that patients only need medication to bring their TSH into the reference range (the old range, by the way). This frequently results in patients with lingering hypo symptoms. Getting more blood testing done in a few months isn't going to help either.
Within your health system do you have the freedom to go to any other doctor? If so, can you possibly find one that is not so rigid about TSH being the determining factor for medication? That's what you really need, a doctor that will treat you based on your symptoms, by testing and adjusting your free T3 and free T4 as required to relieve those symptoms, without being shackled by TSH.
I really think that you are wasting whatever energy you have by chasing the idea that surgery for your thyroid will solve your problem. Likewise for getting an ultrasound.
The problem is that you have Hashi's. Your TSH is still too high, indicating that you are not getting enough meds to get your free T3 and free t4 to the upper part of their range and suppress the TSH to the low end of its range and relieve your symptoms. Clearly you are running into the UK Health Service stone wall on thyroid issues. From what I read they are adamant that patients only need medication to bring their TSH into the reference range (the old range, by the way). This frequently results in patients with lingering hypo symptoms. Getting more blood testing done in a few months isn't going to help either.
Within your health system do you have the freedom to go to any other doctor? If so, can you possibly find one that is not so rigid about TSH being the determining factor for medication? That's what you really need, a doctor that will treat you based on your symptoms, by testing and adjusting your free T3 and free T4 as required to relieve those symptoms, without being shackled by TSH.
Nope, GoldShield is written on the box!Its Levothyroxine Sodium! I don't understand the whole medication side of things. Maybe Im just under medicated and meed an increase! Oh Jez I don't know!
Who makes your ELTROXIN?
Here is some interesting reading for you.....
June 7 -- Folks in New Zealand are up in arms, because a reformulation of the drug Eltroxin (a brand name of levothyroxine manufactured by GlaxoSmithKline) appears to be causing problems in thyroid patients. Patients taking Eltroxin (which is government funded in New Zealand) are reporting all sorts of side effects and symptoms since the drug was recently reformulated.
According to a company spokesperson, the reformulation was necessary due to changes in the manufacturing operation, moving the production of the Eltroxin from Canada to Germany. While GlaxoSmithKline is saying that levothyroxine in Eltroxin is the same, there are new filler and binders in the reformulated product.
Goldshield brand levothyroxine has sold out in New Zealand, and frustrated thyroid patients will have to wait for more shipments to arrive, as well as possible shipments of Abbott Laboratories' brand Synthroid. The demand for thyroid drugs is due to nationwide reports from patients of significant side effects due to the reformulation of government-approved thyroid medication, Eltroxin (made by GlaxoSmithKline).
Eltroxin has had a lot of controversy here in Australia and New Zealand.......although I dont know about the Uk or anywhere else.
Check the manufacturer on the box and if GlaxoSmithKline, then ask for another brand.
Here is some interesting reading for you.....
June 7 -- Folks in New Zealand are up in arms, because a reformulation of the drug Eltroxin (a brand name of levothyroxine manufactured by GlaxoSmithKline) appears to be causing problems in thyroid patients. Patients taking Eltroxin (which is government funded in New Zealand) are reporting all sorts of side effects and symptoms since the drug was recently reformulated.
According to a company spokesperson, the reformulation was necessary due to changes in the manufacturing operation, moving the production of the Eltroxin from Canada to Germany. While GlaxoSmithKline is saying that levothyroxine in Eltroxin is the same, there are new filler and binders in the reformulated product.
Goldshield brand levothyroxine has sold out in New Zealand, and frustrated thyroid patients will have to wait for more shipments to arrive, as well as possible shipments of Abbott Laboratories' brand Synthroid. The demand for thyroid drugs is due to nationwide reports from patients of significant side effects due to the reformulation of government-approved thyroid medication, Eltroxin (made by GlaxoSmithKline).
Eltroxin has had a lot of controversy here in Australia and New Zealand.......although I dont know about the Uk or anywhere else.
Check the manufacturer on the box and if GlaxoSmithKline, then ask for another brand.
I have made an app. today for Monday and will explain all to him.. I will ask for an ultrasound and ask for the option to remove it or up my eltroxin!
Its getting to the point now where I feel I will literally shout at him... Im to polite for my own good.... I promise I will stand up for myself and if that doesn't work Il set all ye on him lol...
In agony today with throat so it has to stop!
Its getting to the point now where I feel I will literally shout at him... Im to polite for my own good.... I promise I will stand up for myself and if that doesn't work Il set all ye on him lol...
In agony today with throat so it has to stop!
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