I need the advice of this group.
My insurance has been so bad, I have no endocrinologist, in network that is anything other then a diabetes doctor. My out of network has been good, but expensive. In a recent primary visit, and a lab draw to avoid the high cost of out of network discussion of labs, he fixated on a low TSH and a low T4.
He dismissed that I had been diagnosed having Hashimoto's and super high TPO's 10 years ago, and questioned the credibility of a surgeon that did not remove the entire thyroid (2013), even though I relayed that his concern was damaging my vocal chords.
He asked extensive questions of my birthing experience, which was when I began thyroid meds (Hypo). It was a breach birth, very complicated, with only a midwife, through the health department 27 years ago.
He ran other blood work, and ordered an CTof the brain, mentioning something called Sheehan Syndrome. When the original order for a CT returned denied, it mentioned brain tumor.
Monday, we discussed the numbers, provided below. He hopes for a missing pituitary gland, as he says its the simplest way to treat. However, he mentioned he is not the one that should be doing this. I explained there will be no competent specialist in Tampa Bay, that will accept my insurance, should it be something worse. An MRI is on order, and has been approved.
Part of me wonders that this isn't just a way to run up tests and things, to garner more money. I have no symptoms of a brain tumor whatsoever. I am tired, stressed out, and can't lose weight. SOS.
I do know, that I would never consider any surgery on my brain, so the thought to even proceed seems pointless.
Here are the labs:
3 OCTOBER 2018 2 OCTOBER 2018
FSH: 69.0. Normal
LH: 21.3. Normal
TSH: 0.02. Range: 0.40-4.50 TSH: 0.01
T4, Free: 0.07. Range: 0.8-1.8 T4, Free: 0.9
T3, Free. 4.8. Range: 2.3-4.2. H T3, Free: 4.8. H
Ferritin: 38. Range: 10-232
Iron, total: 54. Range: 45-160
The TSH and T4, Free are always low. I am currently on 50 mcg Levoxly 5 days, 75 Levoxyl 2, and 25 mcg Cytomel 7 days a week. I am 10 lbs heavier, at 145, then last October, at 135
So, thoughts anyone? Thanks in advance.