Hi Barry. Glad to have another male on the Forum. We are badly outnumbered here. Hashi's is just another of those things that the ladies try to keep to themselves, but some of us have to keep on insisting on equal opportunity regarding thyroid problems. LOL They tolerate us pretty well here, so welcome.
I had Hashi's so long ago I don't think it was ever diagnosed. It took me many years of frustration to finally get thyroid meds. Over time I worked myself up to 200 mcg of Synthroid daily, with a resultant TSH of about .05 for over 25 years , and still had lingering hypo symptoms until I learned from these nice ladies the importance of FT3. After getting my FT3 tested and finding it in the low end of the range, indicating poor conversion of T4 to T3, I then got my meds changed to include a source of T3, and now I feel best ever.
Since you have been diagnosed with Hashi's then I'm sure you realize that over time, the Hashi's antibodies will eventually destroy your thyroid function. So, you will require gradually increasing meds to off set the loss of natural thyroid. The key to managing this situation is to regularly test and adjust the biologically active thyroid hormones, free T3 and free T4, as necessary to relieve symptoms, without being constrained by resultant TSH levels. Symptom relief should be all important and should be the main determinant in adjusting your meds. For info, many members report that symptom relief for them required that FT3 was adjusted into the upper part of its range and FT4 adjusted to at least midpoint of its range.
If you haven't yet been tested for FT3 and FT4 (not the same as total T3 and total T4), then that should be a priority for you. If your doctor resists testing for FT3 and FT4, just insist on it and don't take no for an answer. Remember that you are the customer. Also I suggest that you find out if your doctor is going to be willing to treat you clinically by testing and adjusting your FT3 and FT4 levels as necessary to relieve symptoms, without being constrained by resultant TSH levels. If not, then you will eventually need a good thyroid doctor that will do so.
Since hypo patients also frequently have low Vitamin D, B12, magnesium, and selenium, I would suggest finding out about those as well. If you want, when you get all those test results and also reference ranges shown on the lab report, then post all that and members will be happy to help interpret and advise further.
Thanks for the warm welcome! It has been a rough couple of years for me suffering with symptoms. Luckily I was able to narrow down my symptoms and eventually pursue an endocrinologist on my own. I believe it took me between 1.5 and 2 years to be diagnosed. She tested my blood and called me the next day. My TSH was 11 and I tested positive for thyroid antibodies. She prescribed Synthroid at 50 mcg and I waited exactly a month then had my blood tested again. It is now around 4 -5 which is a huge drop. My doctor then requested that I take 75 mcg and I have been taking this dosage for 2 days. She asked that I wait a full 8 weeks before testing again.
Sounds like I should call my doctor and ask for additional test:
- free T4
- free T3
- vitamin D levels
- B12 levels
- Magnesium levels
- Selenium levels
I do take a Magnesium supplement that was recommended due to muscle pain / stiffness. Seems like Synthroid is slowing helping with the muscle symptoms and also with my digestion issues.
Overall I feel much better than before I started Synthroid. I still sleep a lot and lack energy. Digestive problems has greatly reduced, but occasional bloating / discomfort still exists.
I look forward to hearing from you and all the great women that help us guys with this disease.
Hey , im a 26 year old male too with hashimato's. I have had it for a few years now and at one point ended up in the hospital for thyroid storm. Ive been trying to get my thyroid balanced for a year now on armour, but as soon as I get close, I end up needing an increase in medication. Trust me it does get better though! Digestion was the first symptom to improve for me as well. As time goes on eventually that fatigue (in my case extremely unbearable) will get better. If you don't have a complete improvement on t4 there is synthetic t3 and natural dessicated thyroid available as alternatives.
Hey Barry, there is a small handful of us here time to time. They cant get us to leave.
I was D'xed around your age 27, with Hashi, now I'm 43. Been a fun ride. I really think It all started when I was a teenager, so possibly 15 year until I was finally diagnosed.
I know Synthroid works for most who take it, but I was one of the odd balls. Took synthroiod and similar brands for 12 years and got worse every year as Hashi progressed. Was on Cytomel too, but ended up on dessicated pig thyroid early '09, and feel better. Anyone on dessicated knows it was a pain is the arse to get in 09. And the American brands changed - becoming less effective. So I and a few others here get our dessicated from Canada. After being on Canadian Erfa thyroid since May I feel a whole lot better.
Sounds like you are having a positive experience with Synthroid - that's great. A simple solution that works is the best.
As Gimel noted Free T3 levels are essential. Many (myself too) feel best when FT3 is in the upper third of the range, not lower or middle. Most important for muscle pain, digestive, and eliminating heart palps which some get later on with Hashis.
Make sure your magnesium is not the oxide type (all others are better) and that you don't take it within 4 hours of thyroid med.
And get tested more than once a year. You always have to stay ahead of the game with thyroid meds. Once a year makes you fall behind.
Another guy with Hashimotos here. I was diagnosed three years ago when I was 39 after a partial thyroidectomy. It was a rough ride in the beginning as we figured out the right dose of levo. I have ups and downs as to how I feel despite all of my levels being in good shape. I started taking a vitamin D supplement as the symptoms of a deficiency is similar to Hashi's...I have felt alot better since. I think it is important to keep on top of your bloodwork and challenge your Dr on your prescription. I have learned (by this forum) to challenge my Dr to prescribe to the symptoms rather than the bloodwork alone.
Until I had nodules found which lead to surgery and ultimately a Hashi's diagnosis, I had no idea what the thyroid did or how it affects people. I have a new found respect for this gland and what it affects.
I guess 'misery' (for lack of better terms!!!) loves company...it is helpful to hear about other guys who have this!
Yep, I guess add me to this list. I was in denial for quite a bit. Got tons of help from people here, Namely, LazyMoose, Goolara, Barb and Shelley. Lots of good advices.
I am on week three, I think I am getting beter, slowly, but not sure.
I am 49, have been diagnosed with Hashimoto last September, after over a decade of struggling with diffuse symptoms similar to depression, lower back and neck problems, ADHD. Unfortunatelly after two months on 75 mcg of levothyroxine (euthyrox), not much improvement. My concentration has not returned to normal, muscular pains are as bad as ever, and I am not a happy camper.
Just relocated back to the US, I am seeing a doctor tomorrow, hoping that American physicians are better at this. What a hellish experience this has been.
Welcome to the forum, I was diagnosed with Hypo at age 59 and Diagnosed with Hashimoto's at 60, I feel like crap, although thanks to some folks here, finding out that a Free T3 sup. is available I should be able to correct the problem. I too have a problem converting and my MD was trying to make up by increasing my Synthroid dosage instead of adding a supplement. Another Male Good Luck FTB4
The most important thing for you is to find a good thyroid doctor that will treat you clinically, by testing and adjusting FT3 and FT4 as necessary to relieve symptoms, without being constrained by resultant TSH levels. If you need confirmation of this, I can provide you plenty of links to good articles and scientific studies. I wish I could say that American doctors are better at diagnosing and treating thyroid problems than elsewhere, but good thyroid doctors are hard to find.
I suggest you check out the doctor tomorrow by asking if he is willing to test and treat you clinically as I describe above. I also suggest that you ask if he is willing to prescribe any thyroid meds other than T4 types. If the answer to either question is no, then you will need to keep looking for a good thyroid doctor. If you find that you need one, perhaps members can provide a recommendation or help locate one for you.
I saw a terrible GP but he made one good suggestion: to take medication at bedtime, on empty stomach. There is sound evidence that taken this way, levothyroxine is absorbed better, without altering circadian rhythm. I feel better, sleep better and behave like early stages intelligent life form.
Bolk, Nienke MD; et. al. "Effects of Evening vs Morning Levothyroxine Intake: A Randomized Double-blind Crossover Trial." Archives of Internal Medicine. 2010;170(22):1996-2003, Vol. 170 No. 22, Dec 13/27, 2010, Clinical Endocrinology 66 (1), 43-48, Volume 66, Issue 1, pages 43-48, January 2007.
If anybody knows a good endocrinologist in the Seattle area, please let me know.
Check your email for Doc rec.
In May my TSH was still over 3, I felt under the weather, changed doctors, my dose of levothyroxine was increased, gradually, to 125 mcg. After six weeks at that dose, my TSH was 1.3, which theoretically should be fine. However, I was disoriented, confused, fatigued -- I believe more than ever -- and experienced a rare side effect of synthroid (levothroid): terrible thirst. I needed to drink about a half a gallon of water during the night night and at least a gallon during the day, all of it with a terrible sense of urgency. I gained 6 pounds, my Achilles tendons, calves and heels ached more than before. I finally asked my doctor to replace 50 mcg of levothyroxine with half a grain (32.5 mcg) of armour (I believe those who argue that the proportion of exogenous t4 to t3 should be 10:1, otherwise, frequent and unnecessary dose increases might be needed as endogenous thyroid production is suppressed in reaction primarily to t3, not to t4). Three days later, I am better and beginning to notice some rudimentary thought processes resuming in my brain. I am worried though that I may need more and more of armour and that I will have to fight for it. Furthermore, as I switch to armour I am going to be interacting with doctors who will do what I want, not what is clinically proven and sound. But so be it, T4 alone is obviously not for me.