May have to go to ER

[juliva]

Well.. After all this hypo pain (3 mons) now I'm hyper having to decrease my dosage so pain goes on! My stomach seems to have given way to the 1600 mgs of motrin I've been taking seeking relief from all this pain. "JOKE" Every time I eat my stomach begins cramping servely. I thought maybe it was just a hyper thing?? (never been hyper before) Stopped the motrin well over a week ago and began taking Prescription Pantoprzole 40 mgs, Extra Strength Maalox, Gas X, Rolands, Baking Soda and yes, all at once trying to get my stomach to heal and stop the pain.

Doctor said if I am having to take that much to control the stomach pain then I need to go to ER. I know better as a EMT-Specialist then to take all these meds at once that I can become Alkalitic but at this point I'll do anything to stop the pain. I'll probably wait until my next attack and just go :( This thyroid has overtaken my life... I never knew what hypo/hyper pain was until now. I can only hope that someday I'll have my life back as I once lived well with thyroid disease for the past 10 years.

[Smilerdeb]

I always said from day one of joining this site that even when I found that 'light at the end of the tunnel' ....that I would 'give back' what others had given me.
Not everyone is sick here...there are a lot who have found their perfect levels and are stable and I have always felt that if there was one person I could help then I had returned what I got from this site and my Thyroid "Family".

Please dont leave this forum once you find your levels good as there is always one thing to remember........
There are newbies here that are scared as hell.......just as we were when we first joined.
By staying here, you can help others and let them know that they arent 'alone'.
I always thought that I was 'crazy' with Graves ....this site and the members here made me realise that I wasnt crazy......that I was unwell.

I hope that many of you will take a leaf out of this posting and post yr own experiences to others who are newbies here ...as we all know how scary and how debilitating thyroid issues can be.

I dont think I will ever leave this site.
After all...my Family is here, my Medhelp Family.

Hugs to you all xxx

[Galsal59]

It's forums like this that gave me the knowledge to push at getting FT3 and that the levels just weren't right.  Took some time but a Dr listened.  

[kenneltech]

That is a big consolation to me!  I don't like to even be on this forum because it means that there are so many people suffering!  I am really glad that you are feeling better and it is an inspiration to me, I just have to find the right doctor and I know I will get help. I have seen on these forums that sometimes it just takes a lot of time, and a lot of prayer, and a lot of support.

[Smilerdeb]

I am doing great now if thats any consolation to you!
There IS light at the end of the tunnel..believe me!
Hugs xx

[kenneltech]

Yes, I have gotten so much help from this forum.  It's just sad that we all have to meet on here under these circumstances.  I pray that we are all healed!!!  Wouldn't that be a gift!

I am using every single post on here, as I copy them to take to the next doctor, and I want them to know that I know they need to be doing these tests.  Unfortunately, this doctor isn't going to be the one, but I do have an appointment with another doctor (who is supposed to be really good) next week, and all these posts are invaluable!

And, I appreciate you all and this forum so much, it brings a little bit of hope into this sickly life of mine.  I pray that you are all doing well, too.  I know we all have our good days and bad days, but overall, I pray you are doing better than the day before!

[juliva]

Yes, it is scary out there! I'm glad your new doctor is helping but sometimes with do have to push them and educate ourselves to make sure we are getting the right treatment and tests.

My hubby was DX'ed with Hasti's in the fall and it was I that read the TSH lab report that showed he was hypo when his doctor told him he was fine. I also requested many other tests because of the knowledge I gained from this forum and found his B 12 was low also.

There are some very knowledgeable persons on this forum and Smilerdeb is one of them.. I see she is commenting on your situation :)

Good Luck!

[kenneltech]

Oh, it happened all right!  I was stunned!  But, enough of this because the problem seems to be my thyroid of something of that nature and it's been going on for 3 years!  I really am going to have to see a different doctor about all these tests you guys tell me I need because my doctor just isn't going to do them, and I don't know why.

I was told by her that a diagnosis of Hashimoto's was just a "scholarly" diagnosis because everyone that has hypothyriodism usually has some type of Hashimoto's, and there is no sense in testing for it.  So, I doubt she'll test for Grave's.

Unbelieveable the doctors out there, scary.....

[Smilerdeb]

Your Vit, G could come up a bit more by taking a Vitamin D capsule each day.
I dont know if the ranges are the same here but my Vit. D ranges are over 50) and optimal levels are over 75.

Mine is 63 as I stopped mine a while ago so I have gone back on the Vit,D/Calcium combined.

But good to hear that you are finally getting answers.:)

[Galsal59]

glad you found the cause of the pain, although not that it happened of course.  hoping the new doc you're going to see will be more helpful about your thyroid issues.

[kenneltech]

I got one more test result today and it's for VITAMIN D,25  it says it has a reference range of 30.0-80.0 and mine is 45.0.  I believe that it is normal.

As far as getting all the other tests done, I already have another appointment for next week with another doctor because this doctor isn't doing anything.  I was told today that "Hashimoto's disease" is a mere formality and that practically everyone who has hypothyroidism probably has some type of Hashimoto's, so she doesn't test for it at all!  

And, I went to a doctor today who has FINALLY found the problem with my throat and jaw, and all the burning.  I had surgery 4 months ago, and when I woke up, the anesthesiologist told me (in front of my friend) that I would have a sore throat for a few days because she "didn't have a trach tube small enough to put in so she had to use a larger one," and the next day, I was sick with this.  I have gone to more doctors about this and have ASKED THEM about what happened and they ALL told me that even if it did happen, it wouldn't cause lasting problems, and when they scoped me, they went too far in, the damage is at the base of my throat and up by my jawline.

For four months I have been sicker than a dog, and not one doctor could figure this out, and this doctor said it was so plain that he didn't understand it!  He is sending me to a ENT for a different kind of scope, and he said that because it has gone on for so long, the nerve damage may be permanent.  MAN!!!

[Smilerdeb]

Personally I would say you have all the signs of Graves but that can only be ruled out by having TSI test done ( antibody test for Graves). But it could also be Thyroiditis.
You do need the FREES done FT3 & FT4.

[kenneltech]

Ranges for thyroxine free FT4 are 0.58-1.64-so I'm assuming this is normal range.

Can this T3 Toxycosis cause all the symptoms I have?  I will look it up.  Also, what kind of an autoimmue disease would this be called, or which ones should I look at?

Thank you so much.

[Smilerdeb]

ALT & AST rae Liver enzymes.
PROT is protein

Thyroxine Free is FT4 ,,,says normal but what are the ranges.

Liver enzymes can go up with autoimmune diseases but have to be in their 1000's before they are dangerous.

Your T3 is pretty high though and your TSH is rather low in my opinion.
I would say maybe T3 Toxycosis or an autoimmune disease with the thyroid.

[kenneltech]

Checked online at the site the hospital gave me, and actually some results have already come in, although I don't know what they mean.  Some seem to be high, here they are:

TSH ultrasensitive - 0.57  seems to be "normal"
Total T3-200H seems to be "high" according to the reference range that says "90-190"
Thyroxine Free-1.20, seems to be "normal"
NA-139
k-4.1
cl-106
BUN-15
CREAT-.81
CLU R-172
CALCIUM-9.0
AST-87H (says it's high)
ALP-114
PROT TOT-6.1l (says it's low)
BILI T-0.7
CO2-27
ALT-85H (says it's high) what is this?
ALB-3.3L (seems to be low)

[kenneltech]

Four months ago, I started vomiting and had diahhrea (sp?) and burning in my chest so bad that I was admitted in critical condition.  They did every test for gastro problems, and found absolutely nothing.  Since then, I have had this intense burning so bad that I take Lidocaine orally for the pain.

Now, all these other things are happening. I developed osteoporosis, heart problems, diabetes, edema, and about a month ago, I started getting "numb" from my jaw to the middle of my chest.  I still get this incredible burning (100 times worse than any GERD) and nobody knows what is going on. NOBODY!!!

The really sad part about all this is that today when I went to see the endo, I had all this information I have gathered about my hypothyroidism, and all these symptoms match intermittant hypothyroidism and HASHIMOTO'S, but she said she "doesn't check FREE T4's" for some reason I didn't even understand, and that my labs from a YEAR AGO didn't indicate a reason for an MRI, a pituitary test for tumors, or any other testing other than for estrogen levels, my thyroid panel again, and 24 hour urines.  She did say that she will test frequently for intermittant Cushing's, but she (I don't believe) listens, just like a lot of other doctors and I don't know what to do anymore.  I guess, just keep going from doctor to doctor like all you guys on this site have done!

I just feel like I am not going to be around for a diagnosis!  I am getting sicker and sicker and sicker, oh yes, and she WILL NOT treat with Armour or any of those drugs. I just take Synthroid.

I will get labs and post so we can check them, thank you for asking and for your concern.

[alfonsina]

"If you've decided to go gluten free, then you may have hyper stages and will need to reduce thyroid hormone. Happened to me"

I do not have Hashis, however I decided to start a gluten, dairy, eggs and grains free diet due a constant problems in my stomach (IBS and bloating every day).

I started a week ago and I have been in the same thyroid medication (dose) for the last three weeks. Yesterday I started to feel pretty bad and today I have a pressure on my chest and feel a little bit hyper, I 'll go for bloodwork on Friday and to see my doctor next week.

Do you think that I have been feeling weird because of the gluten free  diet? it has been only one week! (and I am still bloated.)

I have been thinking about going back to gluten tomorrow, take less medicine tomorrow and ask my doctor for a gluten and dairy intolerance test.

I wanted to wait to see my test results but I do not think I can wait.

[juliva]

Keep us posted! I hope you find the answer to your medical problems very soon. How long have you had the numbness?

[kenneltech]

Just got back from the hospital and the doctor is going to start checking more thoroughly for the Cushing's, got three buckets to do a 24 hour urine test, but it's gonna take some time.  She also gave me a site to go into to check my lab results, so I should see some of those in a couple of days.  She, however, say that to find this is going to take some time, and I have another appointment tomorrow morning to see an internist because she cannot explain the intense pain and numbness on my jaw, down my throat, etc.  She said that is not her area of expertise and she sent me immediately downstairs and they shuffled appointments around to get me in.  THANK HEAVENS!!!

I don't know nor do I want to get excited yet because I've gotten excited before thinking that a doctor finally "hit" on this, and then they told me it was "all in my head," so I will let you know the lab results as soon as I get them and post tomorrow after I see this other doctor.  One good thing is that she was really concerned about this numbness and jumped on it immediately, which made me feel a little better!

[juliva]

Make sure they run your FREE T 3 and FREE T 4 and not just T3 or T4 labs which are useless and many doctor's run just the T's.  

Yes, I found myself on the bathroom floor to many times.. Did you try and stop the  Pantoprzole and use just Maalox or Baking soda for a day or two and see if it quits like it did for me?

My levels were not that far out of wack and yet caused REALLY big problems for me. Some may even do good at my levels but everyone is different and you have to find were you feel your best. It is good you are checking everything out. Good Luck!

[kenneltech]

Am so SICK of this!  Been up since 6am vomiting again!  Can't wait until I see this doctor, and I am NOT leaving until they do something!  Even if they tell me to come back for extensive testing, that will be okay, but I'm not leaving until they alleviate some of these horrible symptoms.

Thanks so much, and I am praying for you, too!  I know I'm not the only one ill on this forum.

[juliva]

I hope you find your answer. The thyroid can cause many of the symptoms you have mentioned above if not regulated correctly. Will look for you labs.  

[kenneltech]

Going in tomorrow for more testing, and will post then.  They are always telling me everything is "normal," including a 24 hour urine catch they just checked for Cortisol.  But, I will get the numbers and post them.  I had no idea that you could be hypo and hyper too!  Thank heavens for this site because I truly feel like I'm dying.  It's affected my heart now, I have edema, osteoporosis, high blood pressure, rapid pulse, numb tingling feet, diabetes, you name it, I've now got it!

Thank you all for your posts to help me in the right direction, at least I know what to ask and about this hypo and hyper thyroidism.  Tamra, I e-mailed that doctor Shane Steadman you recommended and told him my entire story and told him I would call him tomorrow.  THANK YOU.

[juliva]

When I'm speaking of hypo or hyper I saying my thyroid levels are off.. either high( hyper) or low (hypothyroidism). It can effect the gastric tract although I don't know about the numbness. You say you do have hypothyroidism have you had your levels checked lately?

TSH FT3 FT4 labs are very important to monitor with any thyroid patient on a REGULAR basis as far as I'm concerned. Have you had these labs done lately and if so if you can post them it would be helpful along with the reference ranges your lab uses.

Tamara~ Everything is settling for me now including my stomach. Yesterday was the first day I was able to walk without orthotic's and shoes in months! I feel like I'm recovering from my hypo nightmare finally.

[TamraW]

If you've decided to go gluten free, then you may have hyper stages and will need to reduce thyroid hormone. Happened to me.

Or this last bump in your hormone may have been too much.

I know that your stomach is feeling better, but keep an eye on the rapid heart rate and anxiety. Get an endo who actually tests and treats FT3 levels. Your FT4 was good, but your FT3 may be over the mark. T3 is the active thyroid hormone. When I have too much in my body, it feels like a horse kicked me in the stomach. I'm quick to temper with more anxiety, heart palps and unable to sleep. Also, did I mention the gassy, bloated stomach and diarrhea?

:) Tamra