Aa
New test results
Here is a recap about what has been going on the last couple of days,
Last night my B/P and HR was quit elevated, (it is usually pretty low) went to dr. (after hours clinic) today. He said with my numbers he would have not given me any medication and I should stop taking it. He then sent me to the hospital for blood work, still waiting for the results. Anyway what should I do I am so confused. It seems every dr. says the opposite of the other? These are my results before being treated.
TSH 1.71 TSH 0.34-4.82
FREE T4 0.69 FT4 0.77-1.61
FREE T3 4.2 FT3 1.8-4.2
These are my new results from the hospital,(taken Levothyroxine for about 3 weeks)
TSH0.794 0.400-5.300
FT4 1.33 0.80-1.76
FT3 3.4 1.0-4.2
MD doesn't think thyroid would cause my sx's and said if I had nodules my blood work would reflect that? Can I still have nodules? Could they be causing my unsteady HR and B/P?
Last night my B/P and HR was quit elevated, (it is usually pretty low) went to dr. (after hours clinic) today. He said with my numbers he would have not given me any medication and I should stop taking it. He then sent me to the hospital for blood work, still waiting for the results. Anyway what should I do I am so confused. It seems every dr. says the opposite of the other? These are my results before being treated.
TSH 1.71 TSH 0.34-4.82
FREE T4 0.69 FT4 0.77-1.61
FREE T3 4.2 FT3 1.8-4.2
These are my new results from the hospital,(taken Levothyroxine for about 3 weeks)
TSH0.794 0.400-5.300
FT4 1.33 0.80-1.76
FT3 3.4 1.0-4.2
MD doesn't think thyroid would cause my sx's and said if I had nodules my blood work would reflect that? Can I still have nodules? Could they be causing my unsteady HR and B/P?
Thank you I will defiantly ask for the test! Yes this has been a long journey, many dr.'s many test and so far that is all that showed abnormal. I am still suspicious of MS.
To leilajax everyone reacts different maybe I'm the lucky one. I will ask for the test you guys mentioned and see what comes up.
Thank you both
To leilajax everyone reacts different maybe I'm the lucky one. I will ask for the test you guys mentioned and see what comes up.
Thank you both
Well, I do disagree...antibodies, in and of themselves, do not cause any symptoms. It's only their action on the thyroid that gives us symptoms.
These are the symptoms I consider rare:
numbness side of face, tongue
headache, (migraine) facial pain, neck, jaw pain
dizziness (something spinning in me) ***especially the spinning part
constant ringing and pressure in ears, fluid, swooshing, heartbeat sound in ears *** ringing, yes, the rest, no
visual issues, (fuzzy, halo and floaters) lost partial vision in right eye for for most of the day, vibration ***especially vision loss
feelings of floating while walking, balance issue, got stuck, fell backwards twice
depth perception, when walking feeling as if i'm disconnected from my body and, leaning to the right and sometimes feel as though I am being pulled forward
frequent urination
pins and needles arms, hands and top of left foot, electric shock feeling
loss of touch sensation form waist down nausea, vomiting
Some people have each of these when thyroid is off, but few have them all.
RA is autoimmune. Once you have one AI, you are more likely to get a second than the general population is to get its first. So, definitely test antibodies.
As I said, I don't think antibodies themselves cause these issues. However, what they can do is make your levels swing from hypo to hyper. For example, say something happens to you that triggers AI response (stress, illness, trauma, severe weight loss, eating too much iodine-rich food, just to name a few). The antibodies attack the thyroid and kill a whole bunch of cells. The dead cells "dump" thyroid hormone into your blood, making you feel hyper. The trigger goes away, antibodies lay back down, you're hypo again.
You've only had the two tests, so it's hard to establish a pattern. If you've gone to so many doctors who were unable to find anything except thyroid, I think I'd pursue this through antibody testing, further FT3/FT4/TSH testing to see if a pattern of fluctuation can be established and an ultrasound.
These are the symptoms I consider rare:
numbness side of face, tongue
headache, (migraine) facial pain, neck, jaw pain
dizziness (something spinning in me) ***especially the spinning part
constant ringing and pressure in ears, fluid, swooshing, heartbeat sound in ears *** ringing, yes, the rest, no
visual issues, (fuzzy, halo and floaters) lost partial vision in right eye for for most of the day, vibration ***especially vision loss
feelings of floating while walking, balance issue, got stuck, fell backwards twice
depth perception, when walking feeling as if i'm disconnected from my body and, leaning to the right and sometimes feel as though I am being pulled forward
frequent urination
pins and needles arms, hands and top of left foot, electric shock feeling
loss of touch sensation form waist down nausea, vomiting
Some people have each of these when thyroid is off, but few have them all.
RA is autoimmune. Once you have one AI, you are more likely to get a second than the general population is to get its first. So, definitely test antibodies.
As I said, I don't think antibodies themselves cause these issues. However, what they can do is make your levels swing from hypo to hyper. For example, say something happens to you that triggers AI response (stress, illness, trauma, severe weight loss, eating too much iodine-rich food, just to name a few). The antibodies attack the thyroid and kill a whole bunch of cells. The dead cells "dump" thyroid hormone into your blood, making you feel hyper. The trigger goes away, antibodies lay back down, you're hypo again.
You've only had the two tests, so it's hard to establish a pattern. If you've gone to so many doctors who were unable to find anything except thyroid, I think I'd pursue this through antibody testing, further FT3/FT4/TSH testing to see if a pattern of fluctuation can be established and an ultrasound.
Most definitely could be the antibodies! Some will disagree, but i swear the autoimmune factor of hashi alone causes symptoms.
we did not know the results prior to my going to the er. he was going off of my other results.
which symptoms are NOT typical? I was told by others on this forum that they all could be related to thyroid.
I go back to my endo at the end of this month, it will be 2 months since I started meds.
Vit D was low, I am on 5000iu and my vit B is fine.
I have seen 3 neuros. 2 PTS, a Physiatrists, 3 psychiatrist, a rheumatologist, ENT, an Orthopedic Surgeon, cardiologist, oodles and oodles of blood work, 3 head MRI's, 1 of the c-spine, 2 Chiropractors, ct scan (head,sinuses). spent a week at the diamond headache clinic in Chicago. so far the only thing that showed up was thyroid. I was born with arthritis (JRA) however seemed to have outgrown it.
My MD is sending me to the Mayo clinic. should find out when I go be the end of the week.
I have not had the antibodies test yet. could that cause all of this?
which symptoms are NOT typical? I was told by others on this forum that they all could be related to thyroid.
I go back to my endo at the end of this month, it will be 2 months since I started meds.
Vit D was low, I am on 5000iu and my vit B is fine.
I have seen 3 neuros. 2 PTS, a Physiatrists, 3 psychiatrist, a rheumatologist, ENT, an Orthopedic Surgeon, cardiologist, oodles and oodles of blood work, 3 head MRI's, 1 of the c-spine, 2 Chiropractors, ct scan (head,sinuses). spent a week at the diamond headache clinic in Chicago. so far the only thing that showed up was thyroid. I was born with arthritis (JRA) however seemed to have outgrown it.
My MD is sending me to the Mayo clinic. should find out when I go be the end of the week.
I have not had the antibodies test yet. could that cause all of this?
It takes thyroid meds about 4-6 weeks to reach their full potential in your blood. So, your current dose hasn't quite leveled out yet. What usually happens is that you retest after 4-5 weeks and re-evaluate symptoms to see if an adjustment is needed.
Some of your symptoms are classic thyroid symptoms (but can be symptoms of any number of other things as well), most are not typical thyroid symptoms, however.
Given your second set of labs, I can see where the ER doctor said you didn't need to be on meds. Although these are medicated labs, your dose (25 mcg) is very low, and you'd only been on it for 3 weeks, so we wouldn't have expected it to have done a lot.
Did your doctor do lots of blood work and test for a lot of things when you saw him for your symptoms? Is he still pursuing other possibilities? Did you have thyroid antibody tests? Has he palpated your neck to see if your thyroid is enlarged or if he can feel nodules?
I'd suggest a vitamin D and B-12 test. Deficiencies of each of those can have symptoms similar to thyroid.
Have you had a neurological workup?
Some of your symptoms are classic thyroid symptoms (but can be symptoms of any number of other things as well), most are not typical thyroid symptoms, however.
Given your second set of labs, I can see where the ER doctor said you didn't need to be on meds. Although these are medicated labs, your dose (25 mcg) is very low, and you'd only been on it for 3 weeks, so we wouldn't have expected it to have done a lot.
Did your doctor do lots of blood work and test for a lot of things when you saw him for your symptoms? Is he still pursuing other possibilities? Did you have thyroid antibody tests? Has he palpated your neck to see if your thyroid is enlarged or if he can feel nodules?
I'd suggest a vitamin D and B-12 test. Deficiencies of each of those can have symptoms similar to thyroid.
Have you had a neurological workup?
neck pain and pressure
numbness side of face, tongue
headache, (migraine) facial pain, neck, jaw pain
dizziness (something spinning in me)
constant ringing and pressure in ears, fluid, swooshing, heartbeat sound in ears
visual issues, (fuzzy, halo and floaters) lost partial vision in right eye for most of the day, vibration
feelings of floating while walking, balance issue, got stuck, fell backwards twice
depth perception, when walking feeling as if i'm disconnected from my body and, leaning to the right and sometimes feel as though I am being pulled forward
fatigue
tremors throughout body (has woke me from a sound sleep)
legs and arms feel heavy, muscle twitching-spasms, dropping things, weakness
memory loss, brain fog, difficulty concentrating
frequent urination
pins and needles arms, hands and top of left foot, electric shock feeling
skipped heartbeat, palpations
loss of touch sensation form waist down
swelling of face, around eyes
one itchy spot on my back
depression
nausea, vomiting
So I am thinking it's probably not my thyroid causing all of this or does it take longer to get feeling well again? When should I start to feel well again?
numbness side of face, tongue
headache, (migraine) facial pain, neck, jaw pain
dizziness (something spinning in me)
constant ringing and pressure in ears, fluid, swooshing, heartbeat sound in ears
visual issues, (fuzzy, halo and floaters) lost partial vision in right eye for most of the day, vibration
feelings of floating while walking, balance issue, got stuck, fell backwards twice
depth perception, when walking feeling as if i'm disconnected from my body and, leaning to the right and sometimes feel as though I am being pulled forward
fatigue
tremors throughout body (has woke me from a sound sleep)
legs and arms feel heavy, muscle twitching-spasms, dropping things, weakness
memory loss, brain fog, difficulty concentrating
frequent urination
pins and needles arms, hands and top of left foot, electric shock feeling
skipped heartbeat, palpations
loss of touch sensation form waist down
swelling of face, around eyes
one itchy spot on my back
depression
nausea, vomiting
So I am thinking it's probably not my thyroid causing all of this or does it take longer to get feeling well again? When should I start to feel well again?
Your blood work has changed significantly. Your first FT4 was below range, and the second is just above midrange, which is perfect. FT3 that was at the top of range has leveled out to a nice upper third.
You can have nodules which aren't reflected in blood work, but they're by and large the kind of nodules you don't have to worry about. A toxic nodule, which we were discussing in your other thread, would show up in your blood work. The blood work could look like your first set, with low FT4 and high FT3.
What symptoms originally caused your doctor to test thyroid and put you on levo?
You can have nodules which aren't reflected in blood work, but they're by and large the kind of nodules you don't have to worry about. A toxic nodule, which we were discussing in your other thread, would show up in your blood work. The blood work could look like your first set, with low FT4 and high FT3.
What symptoms originally caused your doctor to test thyroid and put you on levo?
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