Question re I-131 prep

[nothryro]

I have had the two surgeries to remove thyroid completely.  Am now on low iodine diet and no thyroid meds for just over 2 weeks after 1 month on Cytomel (and a lifetime before that on Synthroid .125).

I have had the WORST migraine headaches during the last week of this prep time and the docs don't seem overly concerned.  Endo said she doesn't really see that as a typical side effect.  Headaches are non-responsive to all but Darvocet and sometimes not even that and are constant.  Can this be a toxicity of some sort?  My TSH was taken Monday and was 68.  Help!!

[utahmomma]

I had two surgeries for thyroid too.  Not much fun.  I didn't have migraines with the LID or RAI but did have massive ones when I had my ovary removed.  Hormone related is what the docs said.  It would make perfect sense to me that such a sudden change in thyroid hormones could give someone a migraine.  Imitrex and Lortab is the only thing that worked on mine.

[nothryro]

Thank you soooo much!  You start to wonder if you'll ever feel normal again -- truly before the cancer diagnosis, even though I was on thyroid hormone for a very very long time, I felt great!  Yes, you are also right, I do feel like c r a p all the time and the nausea has been terrible too so tomorrow I get the anti-nausea and the RAI at end of week so there is a light, be it faint, at the end of this tunnel.

Thank you again for the info and I am glad you seem to be fine now too!

[kipland]

I didn't have migraines during that time, but had a headache every day.  I had to take tylenol around the clock, and it didn't always take it completely away.  The worst part for me was the nausea.  Ugh.  It was SO bad for weeks!!  I ended up calling and getting a prescription for an anti-nausea medication, which I also took around the clock.  My TSH was 131 the Thursday before my RAI, then by Monday it had risen to 145.  You'll be fine, you just feel like c r a p for a while until you get back on the meds.

Lori