Aa
A
A
A
Close
Thyroid Disorders Community
26k Members
Avatar universal

RAI treatment expectations??

Hi, I'm not having my thyroid out. The surgeon refused saying that in "My condition, there is a 99% chance I would die on the table."  EEK!!

So, now I see the endocrinologist on Friday to go over lab results and schedule the RAI treatment.  My lab results weren't as good as he wanted so he doubled my methimazole to 10 mg twice a day.

What should I expect besides "quarantine"...ha ha!
2 Responses
213044 tn?1236531060
Are you having a partial ablation or a full ablation?

Do you have to be off Methimazole for several weeks before RAI?
158939 tn?1274918797
Your experience with RAI is going to be different from many of us on this forum so just keep that in mind.  Most of us posting on here right now have gone through RAI for cancer so when you hear about people going through hypohell, realize that is something that you aren't going to have to do because you aren't naturally hypothyroid without meds.  (LUCKY YOU!!)

I'm just saying that so when you read about some of the RAI experiences some have had with RAI (severe muscle aches, arthritis, depression, a horrible diet, etc.) is for those who have had to go through RAI for cancer and most of those effects come from extremely high TSH levels.  Also realize that the levels of radiation given to us cancer patients is much, much higher than the dose given for hyperthyroidism.

Here are a few links about the RAI treatment you will be undergoing:
http://www.endocrineweb.com/hyper4.html
http://www.thyroidcancer.com/hyperthyroidism_graves.htm

There are a few on this forum who have been through what you will be going through.

Sounds like it sure beats the option that your surgeon gave you!  (Eeeek!)

Hang in there
Utahmomma
papillary carcinoma '03  RAI '06
Have an Answer?
Top Thyroid Answerers
649848 tn?1534637300
FL
Avatar universal
MI
1756321 tn?1547098925
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.