thyroiditis-sweating

[Buggymama]

I have posted pretty much the same message on the fibromyalgia board.  But, I'm wondering if anyone here has this sweating problem that has a thyroid problem.  I will add this to this post.  I have a goiter with a large nodule on my right lobe, also with a small cluster of nodules on my right side, with the larger side of my thyroid actually being the left side.  My bloodwork came back positive on two antibody thyroid tests, I don't remember what the first one was, but it was only about 60, the second test thought was a TPO and that number was 1000 I believe.  I am scheduled to have the right lobe of my thyroid removed in a couple of weeks, with the possibility of my left lobe also.  I tend to have hypo and hyper symptoms.  AND, if this will give me some relief, I will gladly take the scar to get rid of some of the symptoms-mainly the food getting stuck, the night time choking, the swelling in my neck, etc.  Here is the post I have asked for help for on the other board.  I love cut and paste.

My worst pain, pain to just have is about an inch above my wrists, about an inch above my ankles, above my elbows and I have swelling on the inside of my legs across from my knees. I woke up several times last night with cold sweats, sheets wet, but the water just pours from the back of my legs from the bends of my knees up. Pretty much where the swelling is. And my neck had some sweating last night also. And, this is not hot flashes. THis all started after mono last spring. Actually mono/thyroiditis-now fibro. I know several people in my area with fibro, but no one has pain where i do. And I have severe pain/tenderness when you touch the fibro points, even if its just to brush against them, but they don't hurt like these other places. These places just ache without touching. My hips have started getting this way too. Sometimes I almost can't walk. I'm always afraid I'm being misdiagnosed. Recent bloodwork came back with a deficiency in vitamin d, they put me on 1200mg a day of vit d and calcium, and really i have felt very good up until 4 days ago. and now it is worse than ever. i do hope someone else tells me that they have the sweating also. NOT that I want someone else to be going through it, i just want to think that this is a fibro symptom and not something else. Any help is appreciated.

[raerae123944]

Hi, I have the same exact problems with my thyroid, i have had a hypro since 16 but recently my test levels say I am hyper. there has been no med level change. I also have nodules on my goiter but unlike you nothing is being done about it. My pain is some what different though, my right foot is always in pain my hips and it seems more apparent when i lay on my left side especially i start to crazy sweat and as well when i get up from bed i am freezing. But i was also recently around the same time as my TSH levels changing i have a left axis deviation in my heart with a possible enlargement. I would easily have my thyroid removed to elevated some of these on going symptoms i would still be on medications either way.

[MikeJC]

I had all the symtoms of hyperthyroid including the sweating, turned out to be thyroid cancer. My ENT still says my symptoms should have only been hypothyoid, good docs are difficult to find. I had a thyroidectemy and the sweating has stopped, i still get the tingling though, but it has leveled off

[bncrump]

Are you taking meds? Could it be an allergic reaction to the meds if so?

[lenise]

I have a thyroid problem and I am just terrified.  I have night sweats a rash on my chest and I have not been eating that much.  I am tired my hand feels tingling.  I am so scared.  Do anyone else share the same systoms???

[JanetPlanet]

I am new on this community but found it researching information on sweating. I feel like I am going mad. I had a total thyroidectomy last August (cancer) and then surgery again last week (more cancer cells). My TSH level presurgery was 8.6 so my surgeon increased my synthroid to 200 mg. (Prior to that my TSH was 35 after months of being on a dose of 125 mg, so was upped to 175 two months ago.) Only in the past week have I started to have these bizarre sweat moments. I am drenched and hot in seconds and then freeze later. Happens mainly at night and in the morning. Is this related to the synthetic hormones I'm taking? Will it go away when I get "normal"?

Janet

[4savages]

Hi,

I wanted to put in a little bit of feedback.  After all I have been through, my faith in doctors is very little.  While I would love to have one doctor see me and also have them quit passing me off to one another.  And stop making me out to be a "all in your head case," that doesn't appear to be happening.

Here is my suggestion:

1) Try to find a good endo, preferably one who has been around awhile, check his/her record, or if you can get a name from someone who knows a good one, go there.  Do not tell your primary care doctor you saw a doctor unless you are sure you are going to keep the doctor (if you don't have an HMO or lack a referral).  Look at it as an interview or date.

2) You might need to call in a neurologist, rheumotologist, and/or travel to find a good doctor.  Sometimes, one doctor is all you need.  Often, an OB will surprise you and help.

3)  I am down on docs right now, because quit frankly, I am tired of their cr##.

I hope this helps.

Cheryl

[mattie3456]

I also developed thyroiditis after a severe case of mono and have felt bad since.  Roller coaster like symptoms  hyper to hypo   so sporadic dr. does not seem to know how to treat. Positive thyroid antibodies. Right now I hurt all over, severe joint pain, food not emptying from stomach, constipation, acne, itchy red eyes and skin etc. etc.  Cholesterol continues to get high.  Tired all the time.  Don't know what dr. to go to. Wish there was one who could treat all of me.  Any suggestions as to where or who to go to first, endo or rhematologist.  Already had upper and lower scopes and GI work.  

[4savages]

I don't know if it me or what, but I am having trouble finding the link that gives the info on thyroid and fibromyalgia.  I hate to ask, but if you could find it and post it, that would be great.  I have so much problems with my doc that I need info.  I actually need to find a doctor as well.  But it is challenging from where I am right now.

Thanks for any help.

Cheryl

[idesofmarch]

Look up fibromyalgia and thyroid(just like you see it here) It will give you the proof you need that thyroid and fibro do seem to go hand in hand. I don't know the proper name for the expensive test but most doctors know which test is more expensive when doing bloodwork up for thyroid disease.  Maybe the site I gave will name the test and you will have something to bring to your doctor.  RA doctors are good for your fibro. and Endo doctors are good for thyroid. Good luck to all of you.

[4savages]

That is exactly what I have gone through off and on since RAI.  Today, I started with the sweats again.  I always have to go to bed dressed lightly, often waking to dry myself off, and I am freezing.  I am not in menopause.  It has been over 3 years since I had RAI.  How long must this persist?  I think it has something to do with being precisely regulated.  But I don't know. I feel helpless.  I put a post up tonight to see what others thought about a switch to Thyrolar.  I don't want to repost the whole thing.  I feel awful tonight.  I am just at tears.  Between the sweating and movement, I feel like I am going to lose my mind.  

Sorry to hear of others experiencing the same symptoms, but I also wonder.  There must be a connection.

Cheryl

[utahmomma]

Had total thyroidectomy a few years ago - major "hot flashes" and sweats after the 2nd half was removed.  Had RAI two months ago, sweating worse and still going through it.  

I will go from freezing (hey, it's Utah and it's COLD) to drenched in sweat in a flash.  Night is crazy, shivering under three blankets then laying on top of the sheets drenched in sweat 5 minutes later.  Hot coffee will make me have a hot flash, a warm bath will do the same thing.  It's insane.  I've been sweating through hypothyroidism (TSH over 70) to my now hyperthyroidism (TSH .17)

I'm also taking myself off HRT but this doesn't feel like menopause hot flashes (had them bad after my ovarian surgery) - it feels thyroid.  I'm seeing my endo this week and it's on my list of things to discuss.  I'll see if I can get us all some answers.

[idesofmarch]

Sorry other way around, (Thyroid and fibromyalgia )will give you the site that gives some proof that they go hand in hand

[4savages]

One more thing.  I found that if I wear very little clothing to bed and use a sheet, it helps control the sweating.  Also, keep a towel near the bed.  I feel for you.

Cheryl

[4savages]

Please elaborate on the expensive blood work, because I have fibromyalgia and my bloodwork always came back normal even when I was sicker than heck with Graves'.  Doctors didn't believe me.

With regard to sweating, I am only going to state my opinion and experience.  After RAI, I had extreme sweating that is exact to what you describe.  In fact, I couldn't dry my body off some nights.  I wasn't on replacement meds, but my thyroid was throwing massive amount of thyroxine into my body.  The doctors said that it was normal.  It did taper off.  I do have a tendency to still sweat, and it seems related to my thyroid levels or increased illnesses.  But it has gotten better.  The only difference in my sweating was that when I sweat, still, I become freezing and have goosebumps.  I think I saw that RAI is scheduled.  Good luck and I hope this helped.

Cheryl

[idesofmarch]

I think that I responded to your other site post. But I need to add that most people with fibromyalgia are also found tro have hypothyroid disease.  Also get the expensive blood work up done because "our" blood work usually comes back as normal.

[MJ13]

I had a TT on 13 Dec.  Since surgery I have woke up in the middle of night drenched with sweat numerous nights but not every night.  I even have to change all my clothing.  I keep my house around 60 - 62 degrees at night and sleep with a fan blowing on me even in winter. I'm currently off all thyroid meds awaiting RAI.  These night sweats occurred while I was on thryroid hormone and since I've been off them for the last 5 days.

[4savages]

I didn't have thyroiditis, but I had thyroid disease.  It was believed to be Graves', but I had symptoms of both.  The docs disagree on this one.  However, I had severe sweating problems with thyroid dysfunction.  I also had pain in my joints, and I didn't have to touch them to experience this pain.  My FMS was not like this, and the nurse practitioner at OHSU caught onto it as unusual for FMS.  I believe there is some sort of connection between thyroid function, FMS, and several other things, but I can't prove it.

I still have spells of sweating and I am freezing when I wake to them at night.  I too can hardly wear anything to bed nor can I have a lot of covers, while my husband has them piled on and is still cold.  I am 95 pounds and supposed euthyroid.  But my heart pounds, the sweats are off and on, and temperature regulation is a problem.

Hope this helps.  I feel for you.

[Spyder9]

I've been diagnosed with thyroiditis and I sweat every night.  I wear practically nothing and I'm dying while the husband is under thick covers.  I turn on the fan and it bothers him.  For the longest time I thought I was going through early menopause because i couldn't figure out why I felt this way.  I'm only 35.  For me, I get hot, then I'm normal, and then I'm hot again....and only at night.