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158939 tn?1274915197

TSH ping-pong 75.9 to 0.17 in six weeks

Having been extremely hypo with at TSH of 75.9 then having my labs run today and having a 0.17 I have to say I'll take hyper over hypo any day.  :-)

The coldness, exhaustion, cramping, and (most of) brain fog are gone and are now replaced with heat intolerance, insomnia, and agitation.  I'm watching for the heart palpitations and fast heart rates.  Made an urgent appointment with the endo for next week - thinking the meds may need to be adjusted a wee bit.  
:-)  Oh, the weight loss thing never did kick in - I've put on 8 lbs since coming off the LID at Thanksgiving.  Leave it to me, the one good side effect is the one I DON'T get.  :-)

This is the lowest my TSH has been and I know what to watch for with thyroid storm.   I dropped from 2.1 to 75.9 in just three weeks then back to 0.17 six weeks later so I know that my levels can move quickly.  I have another week until I see the endo so I'm afraid it may drop a bit lower.

My question is; how low can the TSH levels go before I really have to worry?


Bad time to stop HRT - I'm having double hot flashes!!  If you see a warm glow coming from somewhere in the Western half of the U.S. it's me.  :-)

18 Responses
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Avatar universal
duh I tell you! I will be normal soon and hopefully back to normal. Thanks for listening and helping. This chat room is helping me keep my mind off everything and you know how the whole depression thing and everything else can get you
Helpful - 0
Avatar universal
ok Utahmomma remember I am still slow cause I haven't been on meds. If I have no thyroid how can it be hyper would't it be hypo. Sorry if its a dumb question jus wondering
Helpful - 0
158939 tn?1274915197
You posted two different things.  98 is way above the recommended levels and would be hypo (since you had RAI a few days ago I'm betting that's your reading).  You also posted .98 which would be exactly what your doctor would want and, by the TSH standards, would make you hyper.  Hyper is good - within limits.

Don't worry, you'll be there in about six weeks or so.
Helpful - 0
158939 tn?1274915197
You're bored out of your mind being isolated following RAI, aren't you.  Been there, thank heavens for computers!!

When you've been through thyroid cancer most endos want to keep the TSH level somewhere around 1.0 so your .98 is *perfect* (and is hyper, not hypo).  Your levels will probably change after your levels balance out on your thyroid medication following our RAI.

Here's the new TSH level recommendations (stolen from Ask.com)
***************************************************
(June, 2006)  Even though recommended changes to clinical laboratory standards were announced last year, the American Association of Clinical Endocrinologists (AACE) identified changes early this year, and journals are publishing information about the findings, your doctor probably is still unaware that a major revamping has been done to the so-called "normal range" for Thyroid Stimulating Hormone (TSH) tests -- the primary blood test used by conventional doctors to diagnose thyroid disorders.
    Until recently, the standard was that the normal range for TSH at most laboratories has fallen in the 0.5 to 5.0 range, with hyperthyroidism being below .5, and hypothyroidism above 5.0.
    The new guidelines, however, the range for acceptable thyroid function, and thyroid treatment should be considered for patients who test between the target TSH levels of 0.3 to 3.0, a far narrower range.
*******************************************************

Your doctor will want to keep your TSH level low and watch it closely because a climb in your TSH *could* indicate a growth of thryoid tissue and require another dose of RAI (this is how they found my cancer was regrowing - my labs jumped 3x higher in 6 months)
Helpful - 0
158939 tn?1274915197
I know - my depression during RAI was the worst I've experienced.  Hang in there!  You are going through so much right now but you have this board to keep you afloat!!  You'll be okay.  Circle Valentine's Day on your calendar and shoot for that.  Use it as a goal.  By then you should be feeling much better and what a great day for you and your boyfriend to celebrate being there for each other!!!
Helpful - 0
Avatar universal
Great idea!!!!!
Helpful - 0
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