Aa
TSH playing ping pong
First i am glad to see your responses "Graveslady"..Hope you will add your comments in my response
I have been struggling back and forth Hyper/Hypo systoms. In Feb my TSH was 1.3 ,FT4 1.68 and FT3 2.49.Due to lack of energy even my TSH as per doctor within range , he started Cytomel 10mcg 5mcgx2/day wthlevothyroxine 75mcg x1 , for about two weeks i felt good energy before i got tired even at 2:00PM but after taking Cytomel i have energy till even 7:00PM or some time till i got to bed. But in March last week i had high heart rate above 110 /sweating /muscles cramp/joints pain/insnomia even taking sleeping pills /eye floaters /blury vision and peripheral neuropathy which includes tingling and numbess in feet/hands.
We did another test of thyroid. TSH 0.02, Thyroid Anti TPO went down from 285 to 44 but still high . Doctor stopped cytomel and continue have Levoxyl 50 mcg , we did test again on May 1st , TSH 0.004/FT3 3.49/FT4 2.19 . He changed levoxyl to 75mcg but did make any difference , doc said we have to wait for 6 weeks to do test again but condition did not improve . I forced him to do something because i feeling so tired and too much muscles and joint pain. We completely stopped Levoxy for last 6 days but no improvement test again Yestarday found FT4 1.28 /TSH 0.002 and this time Thyroglobin Antibody which shows less than 20 so within limits .
I am so tired back and forth going to doctor since 8 months , changed 2 Endo so far but not going any where . Please give some advise . One last thing is it common to have Hives and itchy skin in thyroid and also is it commmon to have Hypothyroid in male ?.
Any help is highly appreciate it
I have been struggling back and forth Hyper/Hypo systoms. In Feb my TSH was 1.3 ,FT4 1.68 and FT3 2.49.Due to lack of energy even my TSH as per doctor within range , he started Cytomel 10mcg 5mcgx2/day wthlevothyroxine 75mcg x1 , for about two weeks i felt good energy before i got tired even at 2:00PM but after taking Cytomel i have energy till even 7:00PM or some time till i got to bed. But in March last week i had high heart rate above 110 /sweating /muscles cramp/joints pain/insnomia even taking sleeping pills /eye floaters /blury vision and peripheral neuropathy which includes tingling and numbess in feet/hands.
We did another test of thyroid. TSH 0.02, Thyroid Anti TPO went down from 285 to 44 but still high . Doctor stopped cytomel and continue have Levoxyl 50 mcg , we did test again on May 1st , TSH 0.004/FT3 3.49/FT4 2.19 . He changed levoxyl to 75mcg but did make any difference , doc said we have to wait for 6 weeks to do test again but condition did not improve . I forced him to do something because i feeling so tired and too much muscles and joint pain. We completely stopped Levoxy for last 6 days but no improvement test again Yestarday found FT4 1.28 /TSH 0.002 and this time Thyroglobin Antibody which shows less than 20 so within limits .
I am so tired back and forth going to doctor since 8 months , changed 2 Endo so far but not going any where . Please give some advise . One last thing is it common to have Hives and itchy skin in thyroid and also is it commmon to have Hypothyroid in male ?.
Any help is highly appreciate it
Sorry to hear about the awful time your having...
I'm not proposing a cure all to your problems but I'm wondering if you have heard of trying Selenium supplements to help with reducing antibody levels and support conversion of T4 to T3.
Here are a couple of articles from Mary Shomon's site on the topic...
http://thyroid.about.com/library/weekly/aa072000a.htm
http://thyroid.about.com/cs/newsinfo/l/blselenium.htm
Search it for yourself - there is lots of info out there about it.
I've read all thyroid problems are more common in women but that's not to say that men don't suffer from thyroid problems.
Many people suffer from hives and itchy skin when they are dehydrated and get warm like when keeping indoors with the heater on etc. Simple solution = drink more water. Coffee and cola dont count towards hydration - they are actually fluid depleters because they are diuretics. So for every coffee or cola you drink you should have two glasses of water. This kind of problem is becomming more and more common. Especially in people who suffer from fatigue and tiredness because we think that the caffiene in coffee and cola will help us, in fact it is not doing your liver and kidneys any favours.
This may not be the cause of your hives and itchy skin but it is worth experimenting to see if you find any improvement. The recommended daily intake is between 1500 and 2500mls per day. Our bodies are 70% water - you change the oil in the car, it goes to say that your body appreciates a flush with fresh water every day too!!!
If you find plain water a little hard to swallow try a splash of lemon or lime juice! You can buy it bottled in the supermarket if you haven't got access to fresh or just want convenience.
Sending you good thoughts of health and wellness!!!
~Jen
I'm not proposing a cure all to your problems but I'm wondering if you have heard of trying Selenium supplements to help with reducing antibody levels and support conversion of T4 to T3.
Here are a couple of articles from Mary Shomon's site on the topic...
http://thyroid.about.com/library/weekly/aa072000a.htm
http://thyroid.about.com/cs/newsinfo/l/blselenium.htm
Search it for yourself - there is lots of info out there about it.
I've read all thyroid problems are more common in women but that's not to say that men don't suffer from thyroid problems.
Many people suffer from hives and itchy skin when they are dehydrated and get warm like when keeping indoors with the heater on etc. Simple solution = drink more water. Coffee and cola dont count towards hydration - they are actually fluid depleters because they are diuretics. So for every coffee or cola you drink you should have two glasses of water. This kind of problem is becomming more and more common. Especially in people who suffer from fatigue and tiredness because we think that the caffiene in coffee and cola will help us, in fact it is not doing your liver and kidneys any favours.
This may not be the cause of your hives and itchy skin but it is worth experimenting to see if you find any improvement. The recommended daily intake is between 1500 and 2500mls per day. Our bodies are 70% water - you change the oil in the car, it goes to say that your body appreciates a flush with fresh water every day too!!!
If you find plain water a little hard to swallow try a splash of lemon or lime juice! You can buy it bottled in the supermarket if you haven't got access to fresh or just want convenience.
Sending you good thoughts of health and wellness!!!
~Jen
Thank you for your confidence!
A few things might be going on and for myself not being a doctor or in the medical field, it is not correct for me to, nor am I, diagnose or treat. However I will give you information that I have gathered through the years. You can take the info to the doctors for both of you to decide what is the best route for you to go.
One possibility is that you are med./drug induced hyperthyroid. I mistakenly did this and it has taken me at least 5 years to correct the situation, however, I am still dealing with the after effect and level stability.
If this is the case, it might take 6-8 months before TSH will increase since it tends to stay depressed after over replacement for a long time-at least 2-3 months.
When meds. are stopped you might experience problems in about 3 weeks-fatigue, depression etc.
Another possibility could be Hashitoxicosis where one can swing back and forth between hypo and hyperthyroid conditions.
Individuals with Hashimoto's thyroiditis (HT), experience intermittent or sporadic periods where they also have symptoms of hyperthyrodism. Described as having both HT and Graves' disease if the antibodies associated with both diseases are present. If medication is cut, symptoms of hypothyroidism appear.
According to some researchers, Hashitoxicosis is most likely to be encountered in the early stages of autoimmune hypothyroidism.
Another consideration is that you might not have waited long enough between med. dose changes and test. TSH lags behind the FTs, that is to say, TSH is slow to re-equilibrate to a new dose change. Six to 8 weeks is needed before retesting TSH after changing the L-T4 dose or brand of thyroid medication. My personal opinion and practice is that if I have an erroneous TSH levels and before changing med. dose, I redo test in another 6 to 8 weeks to verify the test/level. There can be many reason to cause erroneous levels such as, Lab discrepancy, possibly your blood samples have been tested at different labs, or some other lab mix up, changes in potency from batch to batch of your thyroid pills, Other prescription medications you may be taking ..antidepressants, cholesterol-lowering drugs, some herbal supplements, Stress and Illness can affect thyroid levels .. including chronic lack of sleep, etc.
If you experience symptoms from the hyper phrase while waiting for TSH to respond, temporary beta-blocker can be taken in which prevents high blood pressure, angina, controlling irregular heartbeat, prevention of heart attacks or to decrease the likelihood of a second attack, reduction of migraine headache, reduction of certain tremors (essential and action), and as a combination therapy in cancer of the adrenal glands. Overactive thyroid, prescription drug related headaches, control of panic attacks or physical anxiety responses, reducing symptoms of narcotic withdrawal, preventing excess abdominal fluid.
If your TSH persists to suppressed level, have antibodies done again.
TSH Receptor Abs: TSI; stimulating, blocking, and binding, as well as the anti-TPO (thyroid peroxidase) and the anti-thyroglobulin. These include both Graves' and Hashi antibodies.
However keep in mind, Antibodies are not curable or treatable. Its the thyroid that is treated from the damages of the antibodies. Once tested and autoimmune conditions has been confirmed, it is generally not useful to repeatedly measure levels of thyroid antibodies in the blood. Thyroid antibodies wax and wan (fluctuate up and down)and they may remain positive for years, and do not provide an indication of whether the person has normal or abnormal thyroid function. Nothing can be done about them.
They are good to confirm autoimmune thyroid and in some cases TED. They are also used to detect at the moment, possible remission for those on ATDs.
Also, RAIU - Uptake can detect or confirm hyperthyroidism, thyroiditis in conjunction with blood tests, and some other conditions.
When you go back on medication, it is suggested that a L-T4 dose of 1.6 micrograms/kg body weight/day. The initial dose and time to achieve full replacement should be individualized relative to your age, weight and cardiac status. With dose adjustment by 25-50 microgram increments.
If and when your levels are within normal Labs reference range, and you (as well as or anyone) still feeling sub-par, the doctors should look for other reasons.
The symptoms of both hyperthyroidism and hypothyroidism are non-specific and can be mimicked by other conditions. Thus prescribing thyroid treatment on a clinical basis (symptoms) alone without biochemical confirmation carries potential risks. Symptoms that seem like low thyroid actually be a result of another low-energy disease. There are many additional causes for symptoms, each requiring a different treatment. Also a low thyroid can worsen any other illness, and the opposite is also true. To achieve lasting improvement you may have to treat more than one condition at a time. It is important that you obtain a full and complete diagnosis and treat in the appropriate order all conditions that may be contributing to your health issue(s).
There is an autoimmune connection to chronic hives, therefore associated with thyroid disease. Medical studies done many years ago suggested that some allergic disorders seemed to occur with increased frequency among patients with thyroid problems. Some thyroid patients seem to have a greater than normal tendency to develop hives from time to time, however the hives do not necessarily come at times when the thyroid is malfunctioning. Due to rashes showing in a lot of other health conditions, it is impossible to say whether they are thyroid related. I have a lot of issues myself being Autoimmune Graves'.
I don't know if all this info helps you, however I wish you well in you and your doctors endeavors.
GL
A few things might be going on and for myself not being a doctor or in the medical field, it is not correct for me to, nor am I, diagnose or treat. However I will give you information that I have gathered through the years. You can take the info to the doctors for both of you to decide what is the best route for you to go.
One possibility is that you are med./drug induced hyperthyroid. I mistakenly did this and it has taken me at least 5 years to correct the situation, however, I am still dealing with the after effect and level stability.
If this is the case, it might take 6-8 months before TSH will increase since it tends to stay depressed after over replacement for a long time-at least 2-3 months.
When meds. are stopped you might experience problems in about 3 weeks-fatigue, depression etc.
Another possibility could be Hashitoxicosis where one can swing back and forth between hypo and hyperthyroid conditions.
Individuals with Hashimoto's thyroiditis (HT), experience intermittent or sporadic periods where they also have symptoms of hyperthyrodism. Described as having both HT and Graves' disease if the antibodies associated with both diseases are present. If medication is cut, symptoms of hypothyroidism appear.
According to some researchers, Hashitoxicosis is most likely to be encountered in the early stages of autoimmune hypothyroidism.
Another consideration is that you might not have waited long enough between med. dose changes and test. TSH lags behind the FTs, that is to say, TSH is slow to re-equilibrate to a new dose change. Six to 8 weeks is needed before retesting TSH after changing the L-T4 dose or brand of thyroid medication. My personal opinion and practice is that if I have an erroneous TSH levels and before changing med. dose, I redo test in another 6 to 8 weeks to verify the test/level. There can be many reason to cause erroneous levels such as, Lab discrepancy, possibly your blood samples have been tested at different labs, or some other lab mix up, changes in potency from batch to batch of your thyroid pills, Other prescription medications you may be taking ..antidepressants, cholesterol-lowering drugs, some herbal supplements, Stress and Illness can affect thyroid levels .. including chronic lack of sleep, etc.
If you experience symptoms from the hyper phrase while waiting for TSH to respond, temporary beta-blocker can be taken in which prevents high blood pressure, angina, controlling irregular heartbeat, prevention of heart attacks or to decrease the likelihood of a second attack, reduction of migraine headache, reduction of certain tremors (essential and action), and as a combination therapy in cancer of the adrenal glands. Overactive thyroid, prescription drug related headaches, control of panic attacks or physical anxiety responses, reducing symptoms of narcotic withdrawal, preventing excess abdominal fluid.
If your TSH persists to suppressed level, have antibodies done again.
TSH Receptor Abs: TSI; stimulating, blocking, and binding, as well as the anti-TPO (thyroid peroxidase) and the anti-thyroglobulin. These include both Graves' and Hashi antibodies.
However keep in mind, Antibodies are not curable or treatable. Its the thyroid that is treated from the damages of the antibodies. Once tested and autoimmune conditions has been confirmed, it is generally not useful to repeatedly measure levels of thyroid antibodies in the blood. Thyroid antibodies wax and wan (fluctuate up and down)and they may remain positive for years, and do not provide an indication of whether the person has normal or abnormal thyroid function. Nothing can be done about them.
They are good to confirm autoimmune thyroid and in some cases TED. They are also used to detect at the moment, possible remission for those on ATDs.
Also, RAIU - Uptake can detect or confirm hyperthyroidism, thyroiditis in conjunction with blood tests, and some other conditions.
When you go back on medication, it is suggested that a L-T4 dose of 1.6 micrograms/kg body weight/day. The initial dose and time to achieve full replacement should be individualized relative to your age, weight and cardiac status. With dose adjustment by 25-50 microgram increments.
If and when your levels are within normal Labs reference range, and you (as well as or anyone) still feeling sub-par, the doctors should look for other reasons.
The symptoms of both hyperthyroidism and hypothyroidism are non-specific and can be mimicked by other conditions. Thus prescribing thyroid treatment on a clinical basis (symptoms) alone without biochemical confirmation carries potential risks. Symptoms that seem like low thyroid actually be a result of another low-energy disease. There are many additional causes for symptoms, each requiring a different treatment. Also a low thyroid can worsen any other illness, and the opposite is also true. To achieve lasting improvement you may have to treat more than one condition at a time. It is important that you obtain a full and complete diagnosis and treat in the appropriate order all conditions that may be contributing to your health issue(s).
There is an autoimmune connection to chronic hives, therefore associated with thyroid disease. Medical studies done many years ago suggested that some allergic disorders seemed to occur with increased frequency among patients with thyroid problems. Some thyroid patients seem to have a greater than normal tendency to develop hives from time to time, however the hives do not necessarily come at times when the thyroid is malfunctioning. Due to rashes showing in a lot of other health conditions, it is impossible to say whether they are thyroid related. I have a lot of issues myself being Autoimmune Graves'.
I don't know if all this info helps you, however I wish you well in you and your doctors endeavors.
GL
T4 levels are very tricky. You have to much you feel tired and crappy. You have to little you feel tired and crappy. Get your levels around 2.0 and hopefully you start to feel happy!
I see couple of responses in my thread which include Graveslady response also but unable to see those responses in my thread . Can you guys email me also
rohit456 (at rate ) gamil dot com.
***@****
rohit456 (at rate ) gamil dot com.
***@****
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