This will be long but I really hope someone can help me with this. It includes thyroid cancer history, overmedicated, to heart medication, now hypothyroid and still heart problems. And Im only 22 (I know this can happen to anyone any age but this is tolling).
So a little background. I found out i had thyroid cancer at the beginning on 2011, got surgery for a total thyroidectomy and 1 parathyroid to be taken out because it was cancerous. I was going to the 11th grade that year and we had found out luckily during a normal check up at he doctors. I had been sleeping a lot and suffered from anxiety attacks and shortness of breath. So got the surgery, went great, beautiful scar. Did radioactive iodine treatment. Started meds pretty soon after. First endocrinologist i got started my synthroid off too high. Literally got high heart rate 15 minutes after taking it. After convincing my mom this was happening we saw her and she wanted to start anti depressants. We left her.. Found another that I stayed with until about 6 months ago. From that point out, I was perfect. They cleared me of being cancer free. I started seeing endo every 6 months felt great. Went off to college, not one problem. I gained weight was stressed but no problems at all. Got back home around June 2015 from college. Was doing good in the winter my weight was up to 164, they upped my synthroid dose. This is where I think my body started losing it. I begin taking it. After realizing i had gained so much weight i lost about 10 lbs by the summer of 2016. I began having heart palpitations. They were bothersome so i did set up an appointment with my endo (still pediatric endo) in Aug. She told me if anything my levels were near hyper but we wanted my tsh suppressed and she told me maybe i was becoming allergic to the fillers and we'd switch brands. OK. We hadn't looked at my weight change or anything. I finished off the last of my synthroid and started Levoxyl 112. Palpitations ceased for a little then would come back. I was referred to a cardiologist. Did EKG, echogram, perfect heart. Then in January i went to a episode of tachycardia. By time i got to the hospital it slowed down. They told me nothing was wrong. A month later it happens again. Got to the hospital, it slowed, nothing. They gave me a heart monitor for 24 hr. Ok, Soon as i took the monitor off the next morning, tachycardia. We speeded to the hospital, luckily they caught it this time. They took my blood levels for tsh. TSH 0.001 @ the ER. This was 2 months ago, they prescribed a beta blocker, metoprolol. In the middle of this, i truly can't remember but I did have a appointment with my new endo. He just wanted to take my levels first then figure some things out. My tachycardia episodes were happening before he could even get back to me. Over the month while i was on the beta blocker i was told to stop the thyroid meds for about a week and a half cause i was obviously being overmedicated earn i started them back up i'd have breakthroughs of tachycardia. I told him to take me off of the levoxyl, put me back on synthroid. It was like pulling teeth. We wanted to get off this heart med because i felt horrible. Finally he listened after i requested they take bloodwork to see where my TSH was. It was at 20. I told the heart doctors and they told me wean off the heart meds. And i started Synthroid 50mcg. This was a month ago. So the withdrawal from the heart meds was hell. And I know they say its nothing to come off of but uhm, they lied. Well coming up to a week ago I've been feeling off. Short of breath, spacey, tired, insomnia, lost of appetite (caused by heart meds, i was barely eating for almost 3 weeks), low blood sugar (I'm pretty sure from other symptoms), low blood pressure when i take a shower (could be from heart meds also), Acid reflux (could be from heart meds). I went to the er for short of breath to make sure the heart meds didn't damage anything. They said i was all clear. Well, two days ago, in the middle of the day, i had a severe anxiety attack along with tachycardia and heart palpitations. Went to the ER. Nothing again. They did check my TSH. 57 and T4 was "in range". Ive been in bed these last two days because I'm scared. This morning i had a short episode of tachycardia. I do have blood work on Tuesday but its almost pointless as i will be going to a new Endo because this one only looks at antibodies, TSH & T4.
Im lost and i feel like I'm where i was b4 they found out i had cancer. Im hopeless and scared. I don't want to die. The heart is nothing to mess with. When they put me on beta blockers they were going to give me medicine to stop and restart my heart because it was up at 180.The heart doctors did say it was only sinus tachycardia but I know if my heart is "healthy" which I've been told since this situation, then i do not have a heart problem. So what in the heavens is going on?
I know i need to be looking at T3, my appointment with the new doctor isn't until June 22... i don't feel like Im going to make it.
Any words of encouragement will help. Anything suggestions, similar experiences. Anything. Thank you.
Sorry for any typos.