Yep, sounds like hypo hell. I had the same, after my two surgeries, I had to wait for 7 weeks til the RAI without thyroid hormone, my TSH was 186! My face was so swollen, my eyes puffy, I snored like a bull moose! I gained 20 pounds (then I stopped getting on the scale). IT took me over a year to take it all off, then my doctor at the time thought I was taking too much meds, so he lowered my dose, and I have gained back 10 again...grrrr! Well after three months of experimentation I am back on the dose I felt best on, and now I must again lose that 10. You will probably start on a low dose, but keep trying to find the right dose, once you do you will feel normal. Even if the levels look good to the Endo, if you don't feel like your ole self, as they say, keep asking for what makes you feel good.
But were your levels and weight fine before the RAI?
Hi! I had my thyroid removed in Sept. 10, and had RAI 6 weeks later. Ive had no problems except my neck is constantly sore. Also, my thyroid levels were low last time I went to my Endocrinologist. He increased my Synthroid to 175, but I still feel very tired all the time, and gaining weight! I had bloodwork today, so will find out next week if my levels are ok. My neck on the sides, just ache.
Sounds like hypo to me. I'm also 5'3 and before TT in december I weighed 110 lbs. 5 weeks later I weigh 121lbs (as of yesterday)and it's all fluid. My doc says this is normal. I have the same...puffy eyes and face, hands and the newest is my ankles. I get to start synthroid on tuesday, so I'm hoping and praying that helps. Best of luck to you and keeping my fingers crossed your cancer didn't spread
All my levels were fine prior to surgery, I had totally normal thyroid function despite having cancer, although I did have Hashimotos. My weight had been 140 lbs since the birth of my last son and he is now 14 years old...Then I lost weight before diagnosis and surgery and went up to 160 during hypo hell. I got back down to 140 a year after surgery, then my doctor was deployed (military hospital) and my new doctor took away some of my meds...he thought I was too high, I promptly gained back 10 pounds and am now trying to work it back off. I am now back on the dose I felt best at and am feeling great.
OMG.....I Had RAI yesterday. My face is SO swollen. So I of course turn to the internet to read horror stories. I must say when I read what you wrote, Hypo Hell, I couldn't agree more. Then I read "snored like a bull moose" and fell off my bed laughing. SO true. I was crying a minute ago....now I have laughed so hard....it is some how comforting knowing Im not alone.