Hi there, I am so sorry for what you are experiencing. With such a low tsh I can see why they do not want to try medication.
Mine was that low when I was on medication and I was told to reduce the meds.
I do understand all about having symptoms while it it is not showing up on blood work. Blood work is not the only thing they are supposed to go by. They are supposed to go by your symptoms.
I had hypothyroid though instead of being cold I was hot like you.
Have you thought of going to an endocrinologist? Have you been checked for Haishimoto disease? My Aunt was diagnosed with both Haishimoto and Graves disease a very dangerous illness.
I hope you can find some answers.
Thank you so much for the response. I have actually gone to my PCP and to an Endo Specialty Center - which is where they did all the blood work. That's part of why I'm so frustrated because they simply said, well, we don't know what it is but your thyroid is fine. Interesting what you said about not taking meds when your TSH is that low. I guess I figured if it was that low (or really high), that meds were the answer. I am going to look up Haishimotos and Graves. Those do not run in my family, but, you never know.
I really appreciate you taking time out of your life to provide me support. It means a lot...
There are a couple of things I'd like to comment on. First off, your thyroid levels are "in range", but your FT4 is very low. Your FT3 is at 58% of its range, which isn't so bad, considering that you aren't on medication.
One thing I noticed was that the only antibody you were tested for was Thyroid Peroxidase Antibodies (TPOab). To diagnose Hashimoto's, which is the most common cause of hypothyroidism in the developed world, you have to also have Thyroglobulin Antibodies (TgAB). Some people with Hashimoto's only have TPOab, some have only TgAB, and still others have both. In order to diagnose Graves Disease (unlikely) you need a Thyroid Stimulating Immunoglobulin (TSI), which is the definitive test.
Hashimoto's is most often associated with hypothyroidism, but in early stages, can be characterized by periods of hyperthyroidism, as well.
Another thing I noticed is that your TIBC is pretty low in the range, as is your ferritin. Ferritin is an iron storage hormone and low levels indicate low levels of iron. Ferritin should be somewhere around 70. Was there an actual iron test done?
You said you had more tests that you could post. Was there a CBC done? If so, was anything out of range? Vitamin B12? Vitamin D? If you have results for Vitamin B12 and D, please post them, with reference ranges.
I'm not real impressed with your Endo Specialty Center; they left a few stones unturned.
That said, you're on quite a cocktail of medications, and some of those (hydrocodone, in particular) can cause extreme fatigue/exhaustion, plus they have other side effects. You might want to research all their side effects and see if they might be part of your problem.
Barb thankyou so much!!! I will post my other results when I get home later.
Will look forward to seeing them.
The ketogenic diet (high fat, adequate protein, low carbohydrate) is popular for weight loss (ketosis is a state at which the body has an extremely high fat burning rate) but is used to help numerous medical conditions. Check out the article from Perfect Health Diet - Migraine Sufferers Should Try a Ketogenic Diet. An excerpt..
"Anyone with an impairment of brain or neurological function – whether mental illness, depression, seizures, brain cancer, headaches, neuropathy, brain infections, or any other neurological condition – should try a ketogenic diet to see if it improves the condition."
It could be the combination of all the medications you are taking.