6224500 tn?1388947668

Thyroiditis, Raynauds and possible adrenal issues

I have been told I have a form of Thyroiditis but I also suffer from Raynaud's.

I have been diagnosed as having high Anti-TPO antibodies at 41,000 (<34) however I have been declared hypothyroid since May this year with a TSH of 22 (0.27-4.2). I take thyroxine for this with my dose at 125mcg.

I also went gluten-free for a week, which made a difference as I was not constipated 20 or so minutes after eating anything with gluten in it. My digestive symptoms are worse when I consume pastry or bread - but I also get a lot of itchy skin at my neck after eating bread which I find odd. I haven't had any constipation problems for about 9 or 10 weeks from now. Celiac disease test came back clear as did Diabetes HbA1c test.

My weight is 7 stone 10/108lbs/50kg and my height is 5'3"/161cm/63". BMI is 19.7 (healthy), however my doctor does not want me to lose any more weight - which I can't seem to help since I'm eating fine, sometimes double what I usually eat - and I just shed it all again. I've even cut down on exercising so I don't end up burning the weight off but that hasn't worked either.

I have been referred to an endo by my doctor but I'm also planning on going to a naturapathic doctor to sort out some other issues. I've been losing weight despite eating a lot and I've been getting pains in the back of my sides hence why I've been seeking alternative therapies. I also have records of the following:

* Blood pressure - due to my suspicions of having what I thought was low blood pressure and is actually high blood pressure instead.

* Periods - as they have been heavy, short and early.

* Ovulation - I have absolutely no idea when I ovulate and so my period has a habit of catching me out. Sometimes I've been lucky and gone with my intuition in putting a pad on and realising that I was right in the period starting.

* Complete blood tests - for my own reference.

* Thyroid function tests - as I have Hashimoto's and take thyroxine for it.

*Temperature graphs - as I had a decreased tolerance to the cold despite my BBT appearing normal or just below normal. This has been done with the Dr Barnes BBT Tracker with the information I've transferred onto the tracker on my page.

****All the above are in my trackers, so please feel free to look at them and tell me what you think.****

I have also done an adrenal fatigue test online - I used the Dr Wilson's Adrenal Fatigue Questionnaire and these are my scores:

Past: 59
Now: 72

(More than 32 - adrenal fatigue)

Total score

Past: 156
Now: 202

(More than 132 - severe adrenal fatigue)

Following on from when I mentioned the Raynaud's - I have done a lot of things to help with it. I've worn 2 pairs of socks and worn thermal gloves as well as wearing extra thick socks when at home which help. I also wear thermal leggings which despite being washed so many times still work. Despite my self-help measures the Raynaud's doesn't go away.

Although my doctors have not done the "hand in a bowl of ice" test they clearly said I have Raynaud's as my fingers turn white when I'm anywhere cold - even in a cold room - and my toes have suffered some nerve damage as they have a heightened pain sensitivity when my doctor examined them.

Also because I have a decreased tolerance for the cold I favour the heat and I could happily have a shower with the water piping hot without any issues. Although I'm mainly comfortable with having hot water my toes are not and they start to hurt when the hot water touches them. Is this still nerve damage?

Would the info I have put into my trackers point to anything?


Jo x
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1756321 tn?1547095325
False negative celiac results are more common with very mild disease or if you are already on a gluten free diet.  Supplements that may help with Raynaud's Phenomenom are niacin and ginkgo biloba.  

I'm not sure if you have tried the adrenal insufficiency home tests but I have listed them on another answer of mine...


Helpful - 0
6224500 tn?1388947668
Hi, thanks for your answer and the link.

No, I have not tried the adrenal insufficiency home tests, but I'm hoping that the endocrinologist I am seeing will refer me for adrenal tests when I see her in a couple of months' time. My blood pressure has dropped at times upon standing when I measure it but it doesn't drop that far - only by about 5 points. Sometimes my blood pressure rises upon standing which I find odd. Or maybe not.

With the supplements, I've already been recommended the following on top of my thyroxine and iron meds:

Vitamin D
Vitamin B12

I feel a bit overwhelmed with all of this. :(


Jo xxx
Helpful - 0
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