Aa
Aa
A
A
A
Close
Avatar universal

Thyroiditis

Anyone here that had painful thyroiditis? Now I don't feel just a lump anymore, now my whole left side of the thyroid is swollen to the double. That's why I don't think I have a nodule anymore but subacute thyroiditis. Everything points to that.
I now have a low grade fever, 99.9 to 100.2. The pain is just getting worse and worse and the ibuprofen only lasts for 4 hours now before I feel like sick (fluish) headache and thyroid pain.

I'm going in for my ultrasound this morning but I still don't have an appointment with the female endo I've been directed to.
I called up my doctor two days ago, let him know I was getting scared, my thyroid is bigger and I feel really sick. He just let me know that I should wait for my endo appointment. Which can be weeks from now (?)  I think he thinks I'm a hypochondriac that  makes up stuff. When I saw him less than two weeks ago my thyroid was still small with just that one "nodule".

But I fit the profile for subacute thyroiditis. First the inflammation makes so that thyroid hormones leaks out and cause hyper symptoms, which I have. Both clinical and on the thyroid panel (low TSH)

It's this pain and sick feeling that makes me worried. And I still have to manage to go to my daughters award at school this evening for an hour.

Sorry for ranting, but I'm worried and also a little pissed at my doc.
32 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Just a little update; the thyroid uptake scan was very low and only the left side was visualized. I later got sent to an ultrasound by the radiologist himself and more blood tests, my endo wanted to exclude acute thyroiditis. By that time my whole thyroid was enlarged and very painful, and my fevers were getting higher.
The radiologist said there's no abcesses, so no need for biopsy, my thyroid looks like a dog bone and it's most likely autoimmune.
My endo called me the next day saying my sed rate was very high so yes, it's thyroiditis and possible autoimmune. She called in Prednisone to my pharmacy but I said I really don't want to take it (so I haven't)

The following week was the most horrific one of my life, my right side got so much bigger than the left and hurt so much despite me being on 600 mgs of ibuprophen every 6 hrs and 1000 mgs Tylenol four times a day.

It was so painful to swallow and I have now a very visible big lump all over my neck. My fever and headaches were aweful too and I woke up three times every night drenched in sweat. (which is almost the worst symptom of them all)

Just yesterday it started to ease up. I didn't wake up in pain, I slept for two hours longer before my pain med dose. And I only woke up once in sweat!

Same this night!! I'm so exited! I know I'm no where near out of the woods yet, I still need Atonolol 50 mgs twice daily, I'm still shaky and my heart pounds in between doses, last night it went up to 100 bpm even though I just took 50 mg Atonolol 3 hrs prior.

I'm going back to my endo doc on the 18th of June. This time I will ask for all the Hashi antibodies. Even though I've read that they can be raised in Subacute Thyroiditis as well.
I might ask to have my adrenals tested too, I still wake up from sleep in pure panic several times at night. As if WW3 just started, my pulse raising. And I've been doing that for a year now.

But, yesterday evening I felt well enough to drive to Sprouts market and I bought several bottles of green juice and blueberry juice, kefir (for gut health) and some apples. It felt like heaven to go out, it's so beautiful outside. But I was so weak, my hands and knees were shaking and it was hard to read labels, lol, I must have looked like an odd bird.

I will beat this, whatever it is, autoimmune or passing Subacute thyroiditis. I'm just so happy that the worst of the pain is subsiding.
Helpful - 0
Avatar universal
Thanks Barb, you're the best! :)

Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I received the message; thank you.

I can understand how apprehensive you are.  I know it seems easy for me to say, but please try to remain calm.  All of these things have to be done in order to help you get well.  

I'm putting my money on it being a toxic nodule.  Just hang in there; once they get the workup done, they can recommend treatment.  We're here if you need us.
Helpful - 0
Avatar universal
Barb, I just sent you a message with the info.

Right now I'm waiting to go back to the hospital at 1pm to do the scan. I just went in earlier to swallow two pills. Then I'm repeating the scan tomorrow morning.
Ive been awake since 3 am. I went to bed at 10 pm and woke up once every hour, totally soaked. I don't even want to sleep in my bed anymore, it's more like a waterbed now. At 3 am I just couldn't go back to sleep anymore, my thoughts are just racing. So I've been sitting on the couch drinking hot tea.
Whatever it turns out to be I hope they will make it go away fast. I'm even willing to have surgery by now. Acctually, I wish there was a way they could put me to sleep right now and bring me back when this is all over, lol.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Yes, do, talk to the endo about the antibody testing.  If you have toxic nodules, or are in a hyper phase of Hashimoto's, you will most likely endo up hypo at some point.  Today's scan might even tell what's causing your issues.  

I'm happy that you found a doctor who would listen and pay attention to what you were saying.  If she turns to be all you hope for, can you please send me, via PM, her name and contact info, in case we have someone else in your area who needs a good thyroid doctor?  

I'm assuming that you won't want to return to your old pcp, so I'd suggest that you contact his office and get a complete copy of your record (don't tell them you're not coming back), then start looking for another pcp.

Will look forward to the results of the scan, whenever you get them, as well as an update on your progress.
Helpful - 0
Avatar universal
No, the hospital didn't run antibodies, only the thyroid panel and a CBC.
The female endo doctor seems really nice and attentive, she listened to me and took notes and didn't rush anything. She thinks too that this is either Graves or toxic nodules. We never talked about AB testing, but I'm going back there next Wednesday and I will definitely ask. She said the scan tomorrow will tell a lot. The results will most likely be ready by Monday.

She told me I will start to feel much better as soon as we start treating me if this is Graves or nodules. She said a lot of her first time patients looks and feels really bad but after a few weeks looks much better!
Made me feel hopeful. Acctually, the whole staff were so sweet.

Again, thank you Barb for listening to me and replying, it means a lot! :)
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I've been offline all day... I'm glad you got things going at the ER and are getting in to see the endo today.  

I hope you got the med and that it's helping with the heart rate.  80 bpms is still well within the normal range for heart rate, but I know it can be upsetting/scary

IMO, your pcp has some things to answer for, but that's just my opinion.  At any rate, the important thing is that you're finally getting treatment.  

Do you know if the hospital ran any of the antibody tests or did they leave that for the endo?  Remember, you have to have positive TSI antibodies to be diagnosed with Graves Disease.  I thought, from what I remember of your other thread that your symptoms leaned more toward hypo than hyper.

Now that things are moving, hopefully it won't be long before you're feeling better again.  Do keep us posted, as things move along.
Helpful - 0
Avatar universal
Things are moving quickly now! I'm going to the endo doctor at 3 pm today and going for the nuclear scan tomorrow morning at the hospital. And then I'm having another appointment at the hospital on Friday morning. Yay!
Helpful - 0
Avatar universal
Barb, thanks, yes, the way the ER doctor explained it, it made me relax about possible cancer. He said thyroid cancer doesn't produce hormones and such and he sounded so confident that this shouldn't turn out to be cancer.

My PCP already had the ultrasound when I called yesterday morning and I said yet again I don't feel good and wants to be seen. But his assistant said I should call the ENT and see him. My endo refferal isn't even done yet.

The ER doc said I'm not going to the ENT anymore and they said don't worry about the refferal, they're going to make sure I can be seen fast. And I got the name and number of the same female endo I was going to go to anyways. I'm going to call her today and make an appointment.

So I'm hopeful, finally things gets moving. I just so want all of this nightmare to be over.
I couldn't fall asleep last night even though I was so tired. Finally I went to bed at 2.30 am just to wake up to the same sweat scenario again at 4 am. Eew, I jumped out of the bed, tore my pj off and got a bath towel. Got to sleep for another 2 hours, had to get my kids up and take them to school. Right now I'm way tired. I'm gonna sleep like a baby right after I go to Walgreens at 8 am and get my meds.
My resting pulse is up to 80 again which kind of scares me so I just want to get the meds ASAP.

Hashimotos would make so much more sense than Graves. I've been convinced since last summer I have hypo. But, I also suffered from major hot flashes last year for about six months until they just stopped. They came several times an hour and were much more intense than the ones I'm having now but the night sweats were similar.
I'm constipated, I haven't had diarrhea for 2 years. I'm not losing weight, not a single pound, even though I have no appetite and hardly eat.
My sister who has Graves said she lost 20 pounds in just a few months even though she was hungry like a wolf and ate like a sumo wrestler. She also had debilitating diarrhea, causing her not to be able to work.

This thyroid thing is just one confusing gland.

Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Forgot to mention that thyroid cancer is very rare - less than 5% of cases and is one of the easiest to cure, by removing the thyroid.  

Relax and rest.

At some point, you might want to make sure you get copies of all the paperwork and send it to your pcp, so he can see what he did.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
Yes, thyroid storm can be dangerous, so it's a good thing you went in.

Make sure they do all the adequate testing, such as the anti-body testing, etc.   In order to get a diagnosis of Graves Disease, they have to run a TSI (Thyroid Stimulating Immunoglobulin) test.  They'll also need to test for Hashimoto's, which can be characterized by periods of hyper in the early stages.  

Hopefully, you will start feeling better, now that your heart rate is coming down.  Did they give you anti-thyroid med?
Helpful - 0
Avatar universal
So, I went to my ENT appointment, but then they told me the doctor got called away to the hospital for an emergency. So I left for the urgent care, my PCP still didn't want to see me.
I got triaged at the UC, my pulse was 120 and the nurse told me to go to the ER, she wanted me to take an ambulance but I refused.
At the ER I got helped almost immediately and they took my blood. About an hour later I was told I was in thyroid storm, my TSH was 0.02, my FT4 3.12 and FT3 8.57 ( I have no ranges on my copy.)
They wanted to keep me overnight but the doctor said later they will give me IV beta blockers and also orally and give me a prescription for it. My pulse went down fairly quick, and I have to come back to the hospital in 2 days for nuclear scan to see what's going on.
The US shows my left thyroid is very enlarged with two nodules and several enlarged lymph nodes. I got scared but the ER doc told me he really didn't think it was cancer.
He said I have either Graves, toxic nodules and/or inflammation.

I'm glad I went, they told me thyroid storm is really dangerous. I'm still really pissed at my PCP but happy I'm feeling somewhat better with a normal pulse. I'm gonna look for a new PCP that for sure. Right now I just want to get better and get my life back. And right now I'm sooo tired, I could sleep for 24 hours straight.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I'm sure the ENT can prescribe beta blockers, but not sure he will, since that's not typically in his area of expertise.  Good luck...

Helpful - 0
Avatar universal
Update: they called and I'm going in to see the ENT today at 1 pm. Finally! And he has the results from the US so I will know what's going on here. And hopefully he can give me beta blockers, I think they can help with the sweats too.
Last night I woke up at 1 am and I was completely drenched in sweat, it was as if someone poured a bucket of water over me. The sheets were all wet and the inside of the cover, it was so gross, I had to put a bath towel on top of the sheet and went and got another blanket to sleep under. These sweats are so disgusting. I'm clammy pretty much all day long and then they pour over me several times a day, like a wave.

But I'm so happy I can try to get to the bottom of this today. I'll keep you posted. :)
Helpful - 0
Avatar universal
So I've called both doctors, PCP and ENT and left messages, that was at 8 am, it's 9.30 here now, so I will have to wait and see. Again.
But all I know is that I will be seen by a doctor today, wether it's my own doc or an ER doc. I can't take this anymore and I'm fed up about relying on doctor Google.
I know people can get same day appointments for minor stuff like ear aches and such. So being seen by one of these doctors shouldn't have to be so hard. But right now it's like pulling teeth to even be believed that the whole situation has changed since I saw them initially.
Gaaaahhh! Can you tell I'm frustrated???
Helpful - 0
Avatar universal
My thyroid panel I did on May 8 was;

TSH 0.12 (0.40 - 4.00)
FT3 4.6 (2.3 - 5.0)
FT4 1.12 (0.80 - 1.76)

I then went to my PCP, he didn't know what this was so he referred me to an ENT. He said he only does surgeries, said he thought I have a hot nodule since he felt a lump he said must be about 1 cm. This was before my thyroid "exploded".
He said he should tell my PCP to refer me to an endo.
When the referral lady called she said my ENT now had said I should do an ultrasound before I see the endo. I did get the name and number of the endo, but when I called my PCP last Thursday the referral still wasn't done.

So I don't think they realize my thyroid has become so much larger since I saw any of them and thinks its just an annoying hot nodule.

My heart palpitations started weeks ago but now they're insane and my resting pulse is between 90 and 100. I've had a fever for soon a whole week and now I'm constantly sweating, before it was just night sweats. And the pain has tripled since I saw the doctors, luckily ibuprophen works wonders.  But I can't really eat solid foods since the lumps hurts and it feels like food is getting stuck and I have no appetite . And last night when I went to bed my stomach started to hurt so that made me worried I'm getting an ulcer due to all the ibuprophens I'm eating on a pretty empty stomach.

Life is good...:)  What acctually freaks me out the most is that I will probably miss out on the whole summer.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I haven't asked about your latest thyroid lab results. I think you posted them on another thread.  I'm beginning to wonder if you even have sub-acute thyroiditis.  I know you have low TSH, but that, in itself, doesn't mean you're hyper.

If you are hyper, there's a good chance that you will be given anti-thyroid meds; I don't think cortisone will be offered.  Beta blocker can help with the pounding, but there's really nothing that can be done for the sweats... those will go away when thyroid hormone levels come down, if they are too high now.

Are you being referred to an ENT doctor or an endo doctor?  Yes, I think you should go ahead and call them.  If I'm being given a referral and haven't hear from the referred doctor, I, typically, call the referring doctor to make sure they sent over the referral.  Usually, they will just tell me to go ahead and call myself.  

You may still have to opt for a walk-in clinic or the ER if you can't get in.  Good luck.
Helpful - 0
Avatar universal
I've haven't been to the ER since I was 13 years old and broke my arm, much because I feel the very same about crowding the place for insignificant matters. But this morning I felt like I might had to but changed my mind as soon as the ibuprophen kicked in. And I read that SAT usually spreads to both sides (creeping).

I will call the ENT doc tomorrow morning and plead to be seen, I just want to know what this is and why. And I might opt to take the cortisone anyways, if they offer, I can't see myself living like this for month after month. And I would like beta blockers for my pounding heart and something for my sweats.
If that doctor can't see me I will call up another doctor and see if I can come in. I really, really hope so, I'm desperate.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
I doubt there's any need to freak out.  It's been quite a few hours since you posted?  What did you decide to do?  Go to the ER or wait until tomorrow to call your doctor?

If your doctor refuses to see you, and it's a while until your endo appointment, the ER may be your only option if the pain is bad enough.  While I don't condone use of the ER as the only way to get treatment, one should never hesitate to go if they are in medical distress.
Helpful - 0
Avatar universal
Wth??? I just woke up here, at 5 am because my neck and my head hurts. And this time the RIGHT side of the thyroid hurts too. I felt after, gently, and yes, there's a little hard, painful lump there too now!!???

Now I'm really freaking out. And really considering going to the ER right now (memorial day). I'm scared as crazy...:(
Helpful - 0
Avatar universal
I don't dare to call up either doctor again, I think they'll get angry, lol. Honestly, they think I'm a pain in their butts already. :)

A cheek piercing is a dimple piercing. I really love mine but not at all costs. You never have to change anything but I wanted to change color and stone. I've changed before without problems but this time it didn't go so well. Dimple piercings are notorious for being finicky, which I am now totally agreeing to. :)
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
You can always call the doctor's office and tell them about the issue with the piercing.  Maybe they will get you an antibiotic.

While I do have pierced ears, I'm not big on other body piercing so I'm not familiar with cheek piercing, terminology or how often you have to change things.  Sounds like a real pain in the butt, to me.  If the infection became encapsulated, it could probably be lanced for drainage.  
Helpful - 0
Avatar universal
You've been through the ringer, sounds tough. But I'm glad you're feel fine now, I would give my right arm for having energy again.

I've been thinking about removing the piercing but I've heard the infection needs to be gone first or the infection can become incapsulated and stay. I really don't want to have to deal with this every time I change labrets. Or have to eat strong antibiotics once a year. I was just "lucky" last year getting the tooth infection. But I will ask for some meds for it as soon as I see a doctor.
It's now 11.30 am and I still haven't heard anything. I'm really starting to lose faith and realize I might have to tough it out and wait until Tuesday.
Helpful - 0
649848 tn?1534633700
COMMUNITY LEADER
If your piercing keeps getting infected, you might have to think about taking it out... at the very least, you're very likely to end up with a large scar there.

I do have Hashimoto's and my bout with thyroiditis lasted several months... until I'd been on thyroid replacement hormones for a while.  My thyroid was not removed - they rarely are for Hashimoto's, as the antibodies eventually "kill" the thyroid.  My endo can no longer even feel my thyroid, which indicates that there's nothing left of it.  I feel fine, now -- the only symptom of hypothyroidism I have left is the weight issue, but I've also been diagnosed with insulin resistance and metabolic syndrome, both of which make weight loss all but impossible.
Helpful - 0
2
Have an Answer?

You are reading content posted in the Thyroid Disorders Community

Top Thyroid Answerers
649848 tn?1534633700
FL
Avatar universal
MI
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.