I am going throught the same thing, TSH was 118 and now 2.1 but I have felt awful with all meds given, tried different brands, no avail.This has been going on for my for two years. I had wanted to stop the meds also but my doc insist I give it time for if my TSH stays at a high level, and have any kind of heart problems, or any major orgin fail on me I would go into a coma and not come out of it. Given this I feel somtimes to just stop meds and die feeling good then go on like this.
Did she have just her TSH checked or did she also have freeT4 and freeT3 checked as well? If her TSH is high then she should have had her frees checked. If so, what were the values?
Has she had any other tests on hormones produced by the pituitary (ACTH, Prolactin, LH, FSH)?
It would be interesting to know your mothers FT-4 and FT-3.
What is meant by "She was unable to tolerate any of them"
If you mean depression, then she needs separate treatment for that. It might not be the meds. but rather the hypo condition. Thyroid disease can play havoc with every part of the body, mind and emotions. Also exacerbate existing body, mind and emotion conditions.
A lot of us are on either antidepressants or anxiety medication. And some times we have to try different ones or a combo of two, before finding the one that works for us.
The natural course of hypothyroid is for the thyroid to eventually burn off. However, how long that would take is an individual matter. It could be a few years or 30 years, and for some possibly never. Mean while it can have adverse effects on the body if untreated, as well as, long periods of untreated hypo can cause coma and/or death.
A lot of us feel good with our thyroid condition, but it doesn't mean that the thyroid condition is still not there as a health problem.
Some people prefer having thyroid take out through surgery or RAI to stop the fluctuation levels, getting the process done and over sooner than later, so they can get on with their lives. However, thyroid meds. will still need to be taken for life.
If her mind and emotions/depression is the issue, she needs to be treated separate for it and separate from thyroid, perhaps by a professional in that area. Treatment doesn't necessarily mean forever, but just long enough to get us over the rough spots of thyroid. This is nothing to be a shamed about, because it its not your mother, its the thyroid condition and a lot of us go through it. I myself go through what is refered to as "Graves' Rage" and I am on medication to control it.
Your mother needs her thyroid medication, and, perhaps treatment for her mind and emotions.
Good luck to your mother, I really feel for her.
Thanks for your comments. My mother is also a recovering alcoholic (sober over 15 years). She took antidepressents and antianxiety drugs in the past and felt too out of control. She is always concerned about addiction because of her past.
The endocrinologist told us that she could have potential heart problems by not treating her thyroid but that all the studies were done 40 years ago on cadavers. He couldn't site anything concrete regarding potential effects (i.e. coma and/or death) that would offset continuing the suicidal/antisocial, sick feelings she was having while on the meds.
I will pass this information on to her.
Sounds EXACTLY like what my mom has been going through. She decided she would rather take her chances and die feeling good than live life being completely miserable.
Hang in there.
She has had all her thyroid levels checked but I don't have her results with me today. I can get them.
We asked the endocrinologist specifically about testing her pituitary and he said that it was unlikely that it was the problem so he wouldn't order the tests. Sounds like we need to find another doctor.